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Search: Posts Made By: Julie2
Forum: her2group 05-21-2010, 06:47 PM
Replies: 43
Views: 7,057
Posted By Julie2
Re: Bad news, no longuer NED

Hoping that it is just a temporary set back and wishing you back to NED very soon.
Forum: her2group 04-02-2010, 06:01 PM
Replies: 38
Views: 6,222
Posted By Julie2
Re: Not the news i had hoped for

Sheila,

You are in my thoughts and prayers. Hoping for some good news is on your way.

Julie
Forum: her2group 03-26-2010, 11:50 AM
Replies: 22
Views: 4,199
Posted By Julie2
Re: how much more?

Hi Patricia,

Thanks for letting us know how you are doing. Please know that you have lot of options left. Is there any TDM1 trial in your area? That is very easy on your body and seems to be very...
Forum: her2group 03-19-2010, 09:13 AM
Replies: 55
Views: 9,558
Posted By Julie2
Re: Chelee????

Chelee,

I am thinking about you and praying that you will get clear scans.

Julie
Forum: her2group 03-08-2010, 10:41 AM
Replies: 20
Views: 5,212
Posted By Julie2
insomnia

I am not able to sleep during the night, sometimes I go with out sleep the whole night. Anybody has any solutions for this.

Thanks,
Julie
Forum: her2group 02-27-2010, 11:39 AM
Replies: 34
Views: 7,811
Posted By Julie2
Re: thought you would like to read this--REAL HOPE OF A CURE

Rich,

Do you know where to get Honokiol or IP-6?

Thanks,
Julie
Forum: her2group 02-26-2010, 08:19 PM
Replies: 34
Views: 7,811
Posted By Julie2
Re: thought you would like to read this--REAL HOPE OF A CURE

Courtney,

Any idea when is the trial coming to UCSF? I goto UCSF too.

thanks,
Julie
Forum: her2group 02-26-2010, 05:23 PM
Replies: 9
Views: 2,981
Posted By Julie2
Anybody used Herceptin with Avastin

Is anybody using Herceptin with Avastin? How effective is it? I am currently on Herceptin and Tykerb(for the second time) and my recent scan shows increase in uptake in the same mediastinal...
Forum: her2group 02-08-2010, 08:47 PM
Replies: 10
Views: 2,090
Posted By Julie2
Re: HER2 Serum Test

May I know what vaccine did you take? I am very interested to know what could be the reason the her2 serum went down by itself.

Thanks,
Julie
Forum: her2group 02-01-2010, 06:10 PM
Replies: 24
Views: 2,839
Posted By Julie2
Re: Scanxiety denied...license to breathe renewed

Thank you Chrisy,

It is so difficult with this disease and small kids. I take a long breath whenever I read some good news. I keep searching for the the options, is there a something I can do to...
Forum: Herceptin / Tykerb 01-30-2010, 10:45 AM
Replies: 13
Views: 4,004
Posted By Julie2
Re: Tykerb SE's -OUCH!!

For finger cuts I use liquid bandage. It helps.

Julie
Forum: her2group 01-29-2010, 08:47 PM
Replies: 2
Views: 1,352
Posted By Julie2
Is Tykerb more effctive if taken with food?

What is your opinion on this article which says that Tykerb is more effective if taken with food.

http://www.healthcentral.com/breast-cancer/c/78/11795/lower-costs

Thanks,
Julie
Forum: her2group 01-20-2010, 05:49 PM
Replies: 18
Views: 2,981
Posted By Julie2
Re: If you have ever had Navelbine, pls reply.

I was on weekly - 3 weeks on 1 week off for some time then 2 weeks on 1 week off.

Julie
Forum: her2group 01-13-2010, 03:19 PM
Replies: 6
Views: 1,426
Posted By Julie2
Re: ELISA Test

Amelia,

I am just wondering, are you not on anything other than Herceptin for your lung nodule? Her2 Elisa is very reliable for me except during the mestrual period. But each individual may be...
Forum: her2group 12-04-2009, 02:23 PM
Replies: 28
Views: 3,793
Posted By Julie2
Re: Hello-update

Sending all positive thoughts,best wishes and the good luck you need.

Julie
Forum: her2group 11-16-2009, 04:07 PM
Replies: 19
Views: 2,096
Posted By Julie2
Re: need prayers - MRI tomorrow on rt leg

Shobha,

I am sure it is siatica. Please relax and go for the MRI.

Julie
Forum: her2group 10-29-2009, 02:56 PM
Replies: 12
Views: 2,419
Posted By Julie2
Re: Tykerb rash

Barbara,

I got it too in the beginning. I didn't use anything for it and cleared up in few weeks.

Julie
Forum: her2group 10-21-2009, 03:07 PM
Replies: 11
Views: 2,388
Posted By Julie2
Re: Decisions...what to do? Chemo related?

Cheele,

You can try Tykerb with Herceptin first and see how you respond to it. You can try Navelbine if it doesn't work out. Also if Tykerb doesn't work with Herceptin it doesn't mean they will...
Forum: her2group 10-16-2009, 04:47 PM
Replies: 112
Views: 21,788
Posted By Julie2
Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie,

I am so sorry to hear the news. It is so depressing that still there is no cure. Please take care of yourself in these difficult days.

Julie
Forum: her2group 09-22-2009, 01:46 PM
Replies: 84
Views: 15,480
Posted By Julie2
Re: Cancer is back...I just knew it.

Cheele,

I am sorry to hear the news. I know its not the news we wanted to hear. I was so panicked and depressed when I heard about my recurrence and I wanted to start chemo immediatly and started...
Forum: her2group 09-16-2009, 08:29 PM
Replies: 10
Views: 2,477
Posted By Julie2
Re: Benign reasons for TM'ers being elevated?

Cheele,

You can try getting the Her2 serum marker. It will not have many false positives.

Julie
Forum: her2group 09-16-2009, 01:41 PM
Replies: 16
Views: 2,002
Posted By Julie2
Re: Scan today

I hope we don't need to undergo this anxiety everytime! Wish you all clean scans.

Julie
Forum: Clinical Trials 09-15-2009, 01:42 PM
Replies: 104
Views: 56,518
Posted By Julie2
Re: Neratinib Clinical Trial

Hi Cranegirl,

I heard good things about this drug. Congrats for participating in the trial. May I know what stage are you?

Thanks,
Julie
Forum: her2group 08-29-2009, 04:15 PM
Replies: 4
Views: 1,174
Posted By Julie2
update on me

I just got my recent PET/CT scan results after 2 cycles of Navelbine with Herceptin. The two hilar nodes reduced in SUV from 3.4 to 1.8 and from 3.0 to 1.4 and the mediastinal node is completely...
Forum: her2group 08-25-2009, 03:34 PM
Replies: 48
Views: 6,992
Posted By Julie2
Re: Remarkable news...

Flori,

Awesome news! You are able to manage without chemo, that is such a wonderful news. Are you on combination of Avastin, Herceptin and Tykerb now?

Julie
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