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Search took 0.06 seconds; generated 80 minute(s) ago. Search: Posts Made By: Pamelamary
Forum: her2group 07-09-2018, 01:00 AM
Replies: 12
Views: 7,514
Posted By Pamelamary
Re: MBC Triple positive's here's an exciting possibility

Thanks Cathy - good news indeed..... Pam
Forum: her2group 06-13-2018, 11:17 PM
Replies: 44
Views: 21,212
Posted By Pamelamary
Re: Finally joining the thirteen year club!

Congratulations Tricia! Here's to many more.
Best wishes.... Pam
Forum: her2group 06-13-2018, 11:16 PM
Replies: 124
Views: 59,311
Posted By Pamelamary
Re: Treatment after Kadcyla?

Hi Juls,
Sorry to hear this. Might be an idea to find out about what trials are available. I have heard of promising results from Herceptin + Keytruda, and there is some new formulation of Herceptin...
Forum: her2group 05-28-2018, 12:42 AM
Replies: 8
Views: 7,190
Posted By Pamelamary
Re: Long time, no see!

Good to see you back, Ann! And to hear Kadcyla is working so well for you. I am still plodding on with Herceptin every 3 weeks - coming up to cycle 100. Long may it keep working.
Best wishes..... Pam
Forum: her2group 05-23-2018, 12:47 AM
Replies: 71
Views: 30,771
Posted By Pamelamary
Re: Cancer 'n Me

Breathe deep, Flori! Will have all digits crossed for you........ Pam
Forum: her2group 05-10-2018, 09:24 PM
Replies: 3
Views: 6,265
Posted By Pamelamary
Re: When should we consider switching Oncologists

Hi Cathy,
I think there are two important things to consider in regard to choice of oncologist - the personal trust/communication factor and an up to date awareness of current developments in the...
Forum: her2group 05-10-2018, 12:50 AM
Replies: 110
Views: 56,482
Posted By Pamelamary
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

Thanks Cathy - a great article, summarising the latest advances. Any way you can provide a direct link? I would love to share with my Aussie groups, but am a bit of a Luddite.
Best wishes..... Pam
Forum: her2group 05-10-2018, 12:47 AM
Replies: 71
Views: 30,771
Posted By Pamelamary
Re: Cancer 'n Me

Dear Flori,
Your spirit is amazing! I love the humour with which you face even bad problems. It's what keeps us sane. Good luck with the lung stab - will be thinking of you.
Best wishes..... Pam
Forum: her2group 04-17-2018, 03:57 AM
Replies: 4
Views: 6,199
Posted By Pamelamary
Re: stage 4 ladies, can use some hope

Hi there,
I am 6 years on and living well. Recently heard from a woman on an Australian forum who is 17 years Stage IV. Quite a few old hands on this too.
Yes, there is always the uncertainty, but...
Forum: her2group 03-26-2018, 12:09 AM
Replies: 39
Views: 26,633
Posted By Pamelamary
Re: Kadcyla ‘n me

Keep strong, Flori!
Wishing all the best for you..... Pam
Forum: her2group 03-24-2018, 10:05 PM
Replies: 19
Views: 21,309
Posted By Pamelamary
Re: Anyone Stage IV De Novo With 10+ Years NED?

Whonoze, you are my heroine! 11 years of Herceptin! I have had 6 years of the same and am stable, living well. Not de novo though.
Best wishes to you for many more years..... Pam
Forum: her2group 03-15-2018, 10:45 PM
Replies: 110
Views: 56,482
Posted By Pamelamary
Re: almost 14 years NED breast cancer and apparently it's back in my lungs

So sorry to hear this, Cathy. I hope you are able to start treatment quickly and that it is kind to you - but tough on those mets!
Best wishes..... Pam
Forum: her2group 03-10-2018, 02:08 PM
Replies: 33
Views: 17,055
Posted By Pamelamary
Re: Cyberknife or Whole Brain?

Good luck with the cyber knife procedure. Might be worth finding out about the Her2 Climb study, with ONT 380.
Best wishes.... Pam
Forum: her2group 03-09-2018, 02:50 PM
Replies: 39
Views: 26,633
Posted By Pamelamary
Re: Kadcyla ‘n me

Sending love and support from Australia, Flori!
Forum: her2group 03-03-2018, 08:30 PM
Replies: 4
Views: 6,809
Posted By Pamelamary
Whoops!

So recently celebratory, but I have just found out that I have fractured a bone in my foot. Too many years of Denosumab and Zometa? So now I am the lucky owner of a stylish black moon boot and am...
Forum: her2group 02-28-2018, 10:40 PM
Replies: 18
Views: 11,685
Posted By Pamelamary
Re: Scared and Confused

Katherine,
No experience of brain mets, but there are many others on this forum who should be able to chime in. Also search the threads. There is a lot of hope out there, but I can only imagine how...
Forum: her2group 02-19-2018, 11:57 PM
Replies: 39
Views: 26,633
Posted By Pamelamary
Re: Kadcyla ‘n me

Ah Flori - looks like nothing is ever easy! Have heard the SE's settle down after a while and that sometimes it can cause a flare-up, ( as can many new treatments). Soldier on - not much choice...
Forum: her2group 02-15-2018, 11:31 PM
Replies: 6
Views: 7,613
Posted By Pamelamary
Re: Trends in tumor markers

I try to ignore such small fluctuations in the tumour markers. When I had progression (bones to liver), my markers soared! Try not to worry too much and , when in doubt, check it out with your...
Forum: her2group 02-12-2018, 12:14 AM
Replies: 11
Views: 7,714
Posted By Pamelamary
6 years Stage IV.

Tomorrow is my 6 year Stage IV cancerversary. Today had scans and my kind oncologist emailed me the results - all still stable! Thank the fates (and Slamon) for Vitamin H! While 2012 was a very bad...
Forum: her2group 02-07-2018, 12:10 AM
Replies: 31
Views: 14,652
Posted By Pamelamary
Re: Need input, KADCYLA or TAS116?

Good luck with the Kadcyla! Many have got a long time from this, without too many side-effects. It's my next step, even though I dropped out of the original Marianne trial.
Best wishes.... Pam
Forum: her2group 02-03-2018, 12:11 AM
Replies: 16
Views: 10,455
Posted By Pamelamary
Re: When to consider ending treatment?

A bit depressing though, Paul. Sometimes I feel "survivor guilt" and others, I just wish it was over - the treatment, I guess i mean. So grateful it is working and hope new advances are equally...
Forum: her2group 02-01-2018, 02:11 AM
Replies: 4
Views: 5,942
Posted By Pamelamary
Re: Stealth 22% price rise on herceptin took place in July!

Oh dear - fake news? Sorry for all you US women who have to consider this.
Best wishes... Pam
Forum: her2group 02-01-2018, 02:09 AM
Replies: 16
Views: 10,455
Posted By Pamelamary
Re: When to consider ending treatment?

Colleen, I feel for you - here in Australia, Herceptin is provided at no cost so I am nearly 6 years on. System isn't perfect by any means though as I can't get free access to Perjeta. Sometimes I...
Forum: her2group 01-23-2018, 11:13 PM
Replies: 15
Views: 9,423
Posted By Pamelamary
Re: News old or new -- i recently found out

Thanks Andi - very sad news indeed. Condolences to Michka's family and friends.
Forum: her2group 01-17-2018, 11:00 PM
Replies: 40
Views: 30,463
Posted By Pamelamary
Re: Amy? (Mtngrl)

Such sad news. I have known Amy through this forum for about 5 years. During this time, she has been inspirational - always reaching out to others and remarkably stoic about her own situation. Too...
Showing results 51 to 75 of 477
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