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Search took 0.11 seconds; generated 79 minute(s) ago. Search: Posts Made By: Mtngrl
Forum: her2group 04-03-2017, 03:07 PM
Replies: 23
Views: 17,588
Posted By Mtngrl
Re: Splitting nails

Tiffany--I have a love/hate relationship with Amazon.com. You can order Evonail from them. I also have the problem of the skin beside some of my nails (mostly thumbs and forefingers) cracking, and...
Forum: her2group 03-26-2017, 11:33 AM
Replies: 12
Views: 6,667
Posted By Mtngrl
Re: Recent news

Cathy--

Thanks for the update.

One of the most inspiring things about your story is that you and your caregivers kept trying things until you got a good result. And you've been at it a LONG...
Forum: her2group 03-25-2017, 07:03 AM
Replies: 10
Views: 7,683
Posted By Mtngrl
Re: Heart Issues with Long Term Herceptin Use

Marie,

I'm sorry to hear you're experiencing heart problems. It would be scary to drop Herceptin.

I have not had reduced EF. In fact mine is high enough (and it increased between...
Forum: her2group 03-23-2017, 05:16 AM
Replies: 34
Views: 12,983
Posted By Mtngrl
Re: Perjeta Side-Effects

Tiffany--

I'm so glad you found something that works for you. Thank you for letting the group know.

Dealing with diarrhea by increasing fiber intake goes against conventional wisdom. I tried it...
Forum: her2group 03-20-2017, 05:21 AM
Replies: 18
Views: 11,416
Posted By Mtngrl
Re: CEA: How low can you go?!

Tiffany--

They test breast cancer for hormone receptors and HER2. If all three (ER, PR, and HER2) are present, then a cancer is "triple positive." If none, then it's triple negative.

I don't...
Forum: her2group 03-19-2017, 10:46 PM
Replies: 17
Views: 7,273
Posted By Mtngrl
Re: How long for T-Dm1 induced neuropathy to go away ...

I have had some degree of neuropathy since my first treatment, but it definitely ebbs and flows. I had some neuropathy after TDM-1, though less severe than with taxanes.

I recently stopped getting...
Forum: her2group 03-17-2017, 05:35 PM
Replies: 18
Views: 11,416
Posted By Mtngrl
Re: CEA: How low can you go?!

Oh, hi Juls,

Thank you for asking.

My onc wants me to get a biopsy, and I agree. It's been awhile, and my cancer might have mutated into a different type. (Though if it has changed it won't be...
Forum: her2group 03-09-2017, 02:22 PM
Replies: 2
Views: 4,973
Posted By Mtngrl
Re: endocrine followed by t-dm1 and back to endocrine

Nguyen,

That's an interesting question. I don't recall reading about such an effect, but it would be great if it were true.

Amy
Forum: her2group 03-09-2017, 10:01 AM
Replies: 18
Views: 11,416
Posted By Mtngrl
Re: CEA: How low can you go?!

Hi Tiffany,

Thank you so much for your words of concern and encouragement. I appreciate it. And I'll definitely share what we decide to do next, and report on results.

I would not say Eribulin...
Forum: her2group 03-08-2017, 05:37 PM
Replies: 1
Views: 4,435
Posted By Mtngrl
Re: Anyone else have a line of IDC breast cancer?

I had an actual mass of IDC but no one was ever able to palpate the tumor. Somehow the way it was positioned it couldn't be felt. 2.3 cm--not huge but it should have been detectable. It did show up...
Forum: her2group 03-08-2017, 05:31 PM
Replies: 18
Views: 11,416
Posted By Mtngrl
Re: CEA: How low can you go?!

I have had progression in my lungs (especially the right lung) on Eribulin and Herceptin. So I looked at Ixempra. I'm allergic to Taxol, and I've never had anthracycline, so I am not a candidate.
...
Forum: her2group 03-07-2017, 08:58 PM
Replies: 40
Views: 26,761
Posted By Mtngrl
Re: 15 years stage IV - no drugs in 8yrs - still NED

Dear KaiM,

Your news is awesome too!

Live long and prosper.
Forum: her2group 03-07-2017, 08:55 PM
Replies: 7
Views: 6,171
Posted By Mtngrl
Re: Oh come on now....

Sorry for your troubles.

Hang in there!

Amy
Forum: her2group 03-05-2017, 06:27 PM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

I assume one needs to live in Scotland to sign the petition? Is that a safe assumption?

And I agree. The Daily Mail article is much clearer.

My daughter, who has a master's degree in biomedical...
Forum: her2group 02-28-2017, 09:49 PM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

I hope it works!

Interested that the suffix "um" is added to both halves of the "official" drug name as shown in the illustration. Kadcyla is called "Trastusumab emtansine" here in the US.
Forum: her2group 02-26-2017, 02:56 PM
Replies: 23
Views: 14,774
Posted By Mtngrl
Re: Looking for michka

Dear Michka,

What an ordeal. I'm so sorry, my friend.

I hope you will be able to get Herceptin & Perjeta added to one or more chemo drugs. Or maybe you can get nerartinib on a compassionate use...
Forum: her2group 02-22-2017, 07:56 AM
Replies: 23
Views: 14,774
Posted By Mtngrl
Re: Looking for michka

Andi--

Bless you. Thank you for your persistence and your loving care. I pray she gets the treatment she needs to get back on track.

Amy
Forum: her2group 02-18-2017, 11:00 PM
Replies: 22
Views: 207,786
Posted By Mtngrl
Re: Other than Cancer: What's going on in your life?

Update: I found out early this week that I did pass Exam II on my second attempt! My adviser is a sweetheart--really. And he's the right person for the research I want to do. But he had not gotten...
Forum: her2group 02-18-2017, 11:26 AM
Replies: 9
Views: 6,009
Posted By Mtngrl
Re: CT scan vs PET scan

I get a combined PET/CT. The PET shows areas that are "glucose avid." The CT gives a picture of the shape and size of the thing, but, as Tiffany says, can't detect whether it's metabolically active...
Forum: her2group 02-18-2017, 11:12 AM
Replies: 16
Views: 7,072
Posted By Mtngrl
Re: 8 Years

Thank you for checking in, Estelle! It's wonderful for others to see stories like yours.

All the best,
Amy
Forum: her2group 02-18-2017, 11:08 AM
Replies: 23
Views: 14,774
Posted By Mtngrl
Re: Looking for michka

I love her too. I have no information, though. I share your worry.
Forum: her2group 02-17-2017, 10:48 PM
Replies: 45
Views: 25,841
Posted By Mtngrl
Re: Port or No Port?

Two more "no port" advantages: On another forum, a member posted about her port getting infected. She had to be hospitalized. She had to learn to "pack" the wound once the infected port was removed....
Forum: her2group 02-17-2017, 10:43 PM
Replies: 129
Views: 70,806
Posted By Mtngrl
Re: Need input!

Keep us posted, Juls! Keeping my fingers crossed for you.

Amy
Forum: her2group 02-17-2017, 10:38 PM
Replies: 34
Views: 12,983
Posted By Mtngrl
Re: Perjeta Side-Effects

Tiffany,

The first time I was on steroids I gained about 10 pounds, and I was already maybe 20 pounds overweight. I had been at that weight for quite a few years. I attributed it to menopause and...
Forum: her2group 02-17-2017, 10:13 PM
Replies: 12
Views: 6,619
Posted By Mtngrl
Re: Sophia

I had Xeloda and Herceptin (and Perjeta) for awhile. It wasn't a home run, but it was relatively good at controlling my cancer for a time.

Here in outlier-land, it's more art than science, though...
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