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Search took 0.11 seconds; generated 79 minute(s) ago. Search: Posts Made By: Joan M
Forum: her2group 11-29-2015, 12:12 PM
Replies: 58
Views: 43,240
Posted By Joan M
Re: Compiling Data on HER2 Brain Mets

Thanks, Agness for compiling the data. I only had time to look at some of it. Thank you for the 2015 piece on Canadian doctors using vibration? to break the BBB. That's been in the news lately.
...
Forum: her2group 11-29-2015, 11:57 AM
Replies: 15
Views: 9,263
Posted By Joan M
Re: GOOD MORNING EVERYONE!: oligometastatic breast cancer-- possibility of cure

Amy, I'm not surprised about their response, and it's great to know that you knew better.

I'm sorry for all the delay, Juls. Very frustrating.

Often, oncologists will use local procedures for...
Forum: her2group 11-28-2015, 06:22 AM
Replies: 15
Views: 9,263
Posted By Joan M
Re: GOOD MORNING EVERYONE!: oligometastatic breast cancer-- possibility of cure

Thanks for posting this.

I eagerly await the results of Steven Chmura's clinical trial of using radiation on MBC survivors with a limited number of mets. Preliminary results are due out next year....
Forum: her2group 02-08-2015, 05:09 PM
Replies: 26
Views: 7,088
Posted By Joan M
Re: Cyberknife Success and Ceesun

Great news, Cathy!! I very happy for you, and glad that you were able to take the plunge! NED forever.
Forum: her2group 07-14-2014, 08:29 AM
Replies: 8
Views: 3,035
Posted By Joan M
Re: And I'm off....of Herceptin

Good luck to you! You've reached a goal that I could only hope to reach some day!

I too wonder when to stop Herceptin. An oncologist recently suggested that to me (not my oncologist, but someone...
Forum: her2group 06-09-2014, 08:14 AM
Replies: 2
Views: 3,420
Posted By Joan M
Re: Final report on Phase I/II trial of E75 her2 bc vaccine

Lani,

Thanks for this post. I'm glad to hear that some vaccine trials for breast cancer are in phase III.

I recently asked my oncologist why we don't see more phase III vaccine trials. It's as...
Forum: her2group 06-09-2014, 08:02 AM
Replies: 30
Views: 10,273
Posted By Joan M
Re: Help, cancer has spread from bones to my lungs

Joanne,

I remember going back and forth with you with many PMs about two years ago, and thinking at the time, what a nerve your doctor had about the 7 months!! Well, it goes to show us how wrong...
Forum: her2group 06-09-2014, 07:49 AM
Replies: 8
Views: 2,829
Posted By Joan M
Re: Little Pink Houses of Hope (Ocean City, MD) Retreat

Karen,

Love this! Sounds like it was a lot of fun!!

Joan
xo
Forum: her2group 06-09-2014, 07:43 AM
Replies: 5
Views: 2,324
Posted By Joan M
Re: Advanced HER2+ disease in the era of adjuvant Herceptin

Great questions, Deb!

I did Herceptin off label in 2004 after being diagnosed in fall 2003 at stage II with 7+ nodes. I didn't try to enroll in the Herceptin adjuvant clinical trial because of the...
Forum: her2group 06-07-2014, 08:20 AM
Replies: 30
Views: 10,273
Posted By Joan M
Re: Help, cancer has spread from bones to my lungs

I'm wondering how your team feels about oligometastatic disease, or treating some metastatic lesions with a local procedure, such as surgery, radiation, and interventional radiology. I advocate for...
Forum: her2group 06-05-2014, 11:18 AM
Replies: 30
Views: 10,273
Posted By Joan M
Re: Help, cancer has spread from bones to my lungs

After having stage 2 in 2003, the breast cancer metastasized to my lung in Jan. 2007.

I started Herceptin and had a wedge resection in April 2007. Even though the margins were clear, the cancer...
Forum: her2group 04-12-2014, 04:35 PM
Replies: 56
Views: 11,304
Posted By Joan M
Re: It's Not Working! Three Weeks Of Nothing But Side Effects!

Karen,

I'm very sorry to hear this! STUPID cancer!!!

I noticed that you haven't tried any of the platinum drugs, as in carboplatin. Some oncologists have replaced Adriamycin with Carboplatin,...
Forum: her2group 11-21-2013, 04:13 PM
Replies: 189
Views: 55,530
Posted By Joan M
Re: NEDenise Has Died

I'm very sad over the loss of Denise. We spent time together in Philadelphia in the spring. We laughed a lot, despite cancer. My condolences to her family.
Forum: her2group 11-17-2013, 09:49 AM
Replies: 12
Views: 2,772
Posted By Joan M
Re: MRI tomorrow

You're in my prayers.

Joan
Forum: her2group 10-31-2013, 09:29 PM
Replies: 29
Views: 8,536
Posted By Joan M
Re: How long Should I continue herceptin ?

This issue was brought up to me today. I've been NED in the body for 5 years as of August, and if my brain MRI in December goes well, that will be 5 years, too.

I'm very reluctant to go off of...
Forum: her2group 04-29-2013, 12:37 PM
Replies: 165
Views: 38,956
Posted By Joan M
Re: update I hate to give (with a little more positive spin)

Steph, thanks for letting us know about Chrisy. My condolences to you and her husband and other family members for the loss of such a fabulous and great lady. I will miss her tremendously. We were...
Forum: her2group 04-18-2013, 07:40 AM
Replies: 29
Views: 5,623
Posted By Joan M
Re: number 8

Jean,

Congratulations!!

Joan
xo
Forum: her2group 04-17-2013, 10:59 AM
Replies: 47
Views: 8,308
Posted By Joan M
Re: Progression or Necrosis in the brain?

Jill,

Congratulations on your wedding !!! Love it!!

Joan
xo
Forum: her2group 04-17-2013, 10:56 AM
Replies: 14
Views: 2,572
Posted By Joan M
Re: Kim in CA is our birthday girl!

Kim, Happy Birthday!! Joan
Forum: her2group 04-17-2013, 09:06 AM
Replies: 0
Views: 980
Posted By Joan M
News on Cryoablation

Here is a news story from MedPage Today on using cryoablation for lung metastases. I wonder what would have happened if patients didn't have "few remaining treatment options," as the story noted.
...
Forum: her2group 04-11-2013, 01:13 PM
Replies: 23
Views: 4,755
Posted By Joan M
Re: BC Mets to Uterus - Roller Coaster Ride

Joanne,

I've been thinking about you this last week, and glad that you're now home from the hospital.

Pressing the gyn/onc about potential problems from radiation gave you more information to...
Forum: her2group 04-06-2013, 05:19 PM
Replies: 34
Views: 4,168
Posted By Joan M
Re: Ambiguity Resolved

Amy,

Sorry to hear this. I had a lung met that was removed surgically, and I have not had any others in the lung since 2008.

In 2003, I had stage II bc, which spread to my lung in 2007. I went...
Forum: her2group 04-05-2013, 03:35 PM
Replies: 165
Views: 38,956
Posted By Joan M
Re: update I hate to give (with a little more positive spin)

Chrisy, Crap!!! And you know that doesn't really do justice to what I want to write. Love you always, girl. Joan
Forum: her2group 04-03-2013, 09:57 AM
Replies: 4
Views: 1,260
Posted By Joan M
Re: Gamma Knife surgery for treatment of 5-15 brain mets

Jackie,

That pretty much explains it in a nutshell! And this is very good news for women who have had a brain met as their only site of metastasis.

Thanks much!

Joan
Forum: her2group 04-03-2013, 07:18 AM
Replies: 4
Views: 1,260
Posted By Joan M
Re: Gamma Knife surgery for treatment of 5-15 brain mets

Lani,

Thanks for posting this.

I need a layman's interpretation! I was not familiar with the RPA statistical method and looked it up, but I'm unclear about the class distinction. Does that...
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