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Search took 0.02 seconds; generated 79 minute(s) ago. Search: Posts Made By: Trish
Forum: Herceptin / Tykerb 09-11-2011, 01:04 AM
Replies: 7
Views: 4,148
Posted By Trish
Re: cancer, maybe diabetes too? terrified?

Hezzy as the others have said it is important to get diabetes well treated. It is thought some diabetes medications can help with tumour control (eg Metformin) so facing the diabetes issue may help...
Forum: her2group 09-09-2011, 10:37 PM
Replies: 8
Views: 3,536
Posted By Trish
Re: The Good Kind

What magic words. Thanks for sharing them.
Trish
Forum: her2group 09-09-2011, 10:29 PM
Replies: 11
Views: 7,842
Posted By Trish
Re: Pain in the sternum bone or heartburn???

Marcia I doubt you can ever be fully free of the anxiety that cancer will return- especially as a mother of little ones- but I hope it it will become less acute as your fears are put to rest. The...
Forum: her2group 09-09-2011, 10:15 PM
Replies: 389
Views: 213,197
Posted By Trish
Re: Calling all stage iv sisters

KG, NED is the Holy Grail as it stands for No Evidence of Disease-what we all aspire to. Unfortunately I and many others still have to take chemo drugs but some lucky folk are stable on Herceptin,...
Forum: her2group 09-09-2011, 10:06 PM
Replies: 21
Views: 3,953
Posted By Trish
Re: decision time: if you NEVER responded to tyk+herc did you respond to other her2 i

Ellie
Even if we are resistant it is possible that the herceptin stilll has a role-at least until something better comes along. The frustration is that research has brought us more options like...
Forum: Caregivers Corner 09-09-2011, 12:04 AM
Replies: 61
Views: 49,551
Posted By Trish
Re: I'm Taking Care of My Mom

Rick
How are you? Thinking of you
Trish
Forum: Caregivers Corner 09-08-2011, 10:01 PM
Replies: 61
Views: 49,551
Posted By Trish
Re: I'm Taking Care of My Mom

So good to hear from you Merry. I've been wondering how you were doing. I'm not bad. Had flu and chemo reaction so have been out of sorts but am back in town now. Remember you said you didn;t expect...
Forum: her2group 09-08-2011, 09:23 PM
Replies: 21
Views: 3,953
Posted By Trish
Re: decision time: if you NEVER responded to tyk+herc did you respond to other her2 i

Sorry to hear your news FOB.I have fairly frequent bad news too but about my liver not lungs. TDM-1 is chemo +herceptin and although I have not responded to Tykerb/Herceptin without chemo I am still...
Forum: Herceptin / Tykerb 09-07-2011, 10:47 PM
Replies: 1
Views: 3,692
Posted By Trish
Re: Anyone here on Keppra for seizures?

Joyce I am so sorry to hear about the problems your daughter is experiencing. Could it be the brain mets themselves rather than the Keppra causing the speech problems and double vision? I hope things...
Forum: her2group 09-07-2011, 10:43 PM
Replies: 5
Views: 2,658
Posted By Trish
Re: Early menaupause and ER negative, what are my choices

FOB I just use lubrication which works for me. How low a dose of Tykerb/Herceptin are you on? I am having big trouble with 3 capcitabine and 3 lapatanib. Do you have a lower dose than that?
Trish
Forum: her2group 09-07-2011, 01:05 AM
Replies: 7
Views: 3,117
Posted By Trish
Re: First diagnosis stage 4

My bone mets have been well under control for nearly 5 years now. I do hope your mother has good treatment. There are some good ones out there. Take heart.
Trish
Forum: her2group 09-03-2011, 11:59 PM
Replies: 16
Views: 4,571
Posted By Trish
Re: People get ready there's a train a'coming... news on pertuzumab, Cleopatra!

Thank you all for that info.Bring it on! The total blockade approach is yet to be embraced by the Australian Pharmaceutical Benefits Scheme but I fear that has more to do with economics than...
Forum: her2group 09-03-2011, 11:50 PM
Replies: 5
Views: 3,199
Posted By Trish
Re: DIfferent subtypes of her2+ breast cancer with different prognoses being identifi

Thanks Lani. Is basal cytokeratin expression testing done as a clinical standard as is the FISH test? And is it possible to have ER + basal+?
Trish
Forum: Herceptin / Tykerb 08-31-2011, 07:08 PM
Replies: 2
Views: 3,507
Posted By Trish
Re: I need help, idea, and opinion bout doin video

Hi Heather
Sorry to hear about all the difficulties you are experiencing. I think making a video for your six year old is a wonderful idea. I hope you can get the help you need, thinking of you...
Forum: her2group 08-31-2011, 06:46 PM
Replies: 21
Views: 6,854
Posted By Trish
Re: Really bad Brain MRI

Good luck Jaqui. Thinking of you as you make your way through this set back.
Trish
Forum: her2group 08-27-2011, 02:41 AM
Replies: 8
Views: 4,871
Posted By Trish
Re: Anyone on metformin?

My oncologist said not to take Metformin at this stage, not because I wasn't diabetic but because it can cause diahoerrea. Given I am on capcitabine(Xeloda) and lapatanib (Tykerb) she thinks it would...
Forum: her2group 08-27-2011, 02:35 AM
Replies: 22
Views: 7,493
Posted By Trish
Re: PET results suspicious for small metastic lesions

Fantastic news Bonita. Enjoy the painting and the painted house,
Trish
Forum: her2group 08-25-2011, 09:48 PM
Replies: 5
Views: 3,088
Posted By Trish
Re: MRI results and now lack of sleep due to headaches

Hope the headaches ease, Jacqui and I hope there is a good explanation for them. I sympathise re problems getting brain mets diagnosed early-we have a similar situation in Australia but there are at...
Forum: her2group 08-25-2011, 09:29 PM
Replies: 13
Views: 5,092
Posted By Trish
Re: Update on latest scan results

Wonderful news about the regression. All the best
Trish
Forum: her2group 08-20-2011, 01:26 AM
Replies: 36
Views: 10,927
Posted By Trish
Re: scan and doctor update

Pam
All the best with the next options. Hoping TDM-1 is one of them-I'm a bit hopeful based on what Brenda posted. I got nearly a progression free year out of Abraxane so am hopeful it will be good...
Forum: her2group 08-17-2011, 12:01 AM
Replies: 4
Views: 3,042
Posted By Trish
Re: Tykerb/xeloda

Hi Dawn
I also had progression on Abraxane and now I am on Tykerb/Xeloda AND Herceptin. I have been on all three before but am hoping the three in combination will improve the situation till the...
Forum: her2group 08-10-2011, 03:05 AM
Replies: 22
Views: 7,526
Posted By Trish
Re: Up at 5 am on my 5 year cancerversary

The perfect way to celebrate your 5 years. I'm so glad you are able to savour those important things in life. My best wishes to you and Lucy and Ryder.
Trish
Forum: Herceptin / Tykerb 08-10-2011, 02:34 AM
Replies: 16
Views: 9,561
Posted By Trish
Re: Tykerb Rash...help?

Thanks for asking Kristin. The bath certainly soothed the rash but the doctor at chemo simultaneously prescribed the corticosteroid Elocon. I was quickly rash free but am unsure which was effective....
Forum: her2group 08-09-2011, 12:14 AM
Replies: 11
Views: 3,497
Posted By Trish
Re: CA15.3, must I change?

Hi Michka
Is Faslodex Fulvestrant? If so I thought that was supposed to work with chemo. I am thinking I should be on an anti hormonal too but Fulvestrant is the only one I haven't tried and it is...
Forum: her2group 08-08-2011, 04:56 PM
Replies: 19
Views: 9,885
Posted By Trish
Re: Spot on lungs found on PET - nurse says dont lose any sleep!!!

I'm so sorry to hear of the loss of your little Leyton Joshua and you, your daughter and your family are very much in my thoughts.
I have not had a PET scan but fibrotic changes are consistently...
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