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Search took 0.01 seconds; generated 70 minute(s) ago. Search: Posts Made By: Erin
Forum: her2group 05-11-2007, 05:20 PM
Replies: 7
Views: 2,415
Posted By Erin
Becky, The waiting is definitely the worst! ...

Becky,
The waiting is definitely the worst! You can see my dx below, but my onc agreed to do a bone scan and CT scan because of my worries about mets. I am not at high risk, but with HER2, who...
Forum: her2group 05-11-2007, 08:45 AM
Replies: 9
Views: 1,635
Posted By Erin
I love that site for the info and people and HATE...

I love that site for the info and people and HATE IT for the horribly long time it takes for anything to load! I have not been on it in a long time because of that. Last thing I need is more...
Forum: her2group 05-08-2007, 08:27 AM
Replies: 1
Views: 1,965
Posted By Erin
Coenzyme Q10 and Flaxseed seems to be making a big difference

Hello all,

Well, based on many of your posts I decided to add Coensyme Q10 (sp?) and flaxseed capsules to the fish oil I already take. I started it a few days after my last round almost 3 weeks...
Forum: her2group 05-06-2007, 12:16 PM
Replies: 16
Views: 2,722
Posted By Erin
Susan, ....all of what everyone else said,...

Susan,

....all of what everyone else said, and more. I am so sorry that your onc didn't realize how his comments would affect you. Sometimes after trying so hard to stay upbeat and positive, it...
Forum: her2group 04-30-2007, 08:26 AM
Replies: 6
Views: 2,708
Posted By Erin
I was one of those who already ate very well...

I was one of those who already ate very well (though we can always so better!) and exercised, both weights and running/aerobics, regularly prior to my bc diagnosis (I taught aerobics for years). The...
Forum: her2group 04-29-2007, 10:03 PM
Replies: 68
Views: 20,986
Posted By Erin
It's all below...

It's all below...
Forum: her2group 04-29-2007, 10:28 AM
Replies: 4
Views: 1,893
Posted By Erin
Thanks for the info. I am also planning on...

Thanks for the info. I am also planning on talking to my onc and the chemo nurses for their antecdotal experiences. I'll post when I get more feedback from them.
Forum: her2group 04-28-2007, 08:06 PM
Replies: 56
Views: 12,939
Posted By Erin
Wonderful! Your are right, the tape recorder was...

Wonderful! Your are right, the tape recorder was a brilliant idea. Thanks!
Forum: her2group 04-28-2007, 05:46 PM
Replies: 4
Views: 1,893
Posted By Erin
Herceptin - does the length of actual infusion change side effects?

Hello Everyone,
My sister-in-law, who is NED seven years after being dx with stage 3 bc (Yay!), keeps in touch with some of her chemo friends. Recently someone told her that increasing the length...
Forum: her2group 04-26-2007, 01:12 PM
Replies: 16
Views: 3,040
Posted By Erin
Hi Donna and Kathy, Welcome, I am sorry you...

Hi Donna and Kathy,

Welcome, I am sorry you need this group, but you are lucky to have found it. First, on the issue of the paperwork, I will volunteer my opinion, even though you didn't ask for...
Forum: her2group 04-25-2007, 09:24 PM
Replies: 13
Views: 2,513
Posted By Erin
Annie, I don't want to be negative, but I am...

Annie,

I don't want to be negative, but I am a big fan of being armed with info. so I will be pretty frank.

My first 3 rounds were pretty good..not easy, but doable as they say, but a little...
Forum: her2group 04-25-2007, 08:09 PM
Replies: 7
Views: 2,240
Posted By Erin
Karen, I was surprized to find that I did not...

Karen,
I was surprized to find that I did not lose all my hair, as my onc had "promised" me. I did shave it, as you can see from my photo, but lo and behold, here I am one week after my 4th round...
Forum: her2group 04-25-2007, 07:52 PM
Replies: 1
Views: 1,176
Posted By Erin
Good Scans for me too!

Great News!!!!!!!!!

Talked to my onc today regarding my MRI, which was follow up to a bone scan that lit up a spot on my spine. The results lead him to believe that there is little cause for...
Forum: her2group 04-23-2007, 02:21 PM
Replies: 13
Views: 2,875
Posted By Erin
Thanks for the feedback :-)

Thank you all so much for your thoughts and comments. I was starting to feel better but I had already called the onc and that sets a whole chain of events in motion.

Onc sent me to urgent care...
Forum: her2group 04-23-2007, 11:29 AM
Replies: 13
Views: 2,875
Posted By Erin
Chemo, round 4, very tough morning - need reassurance

Hello Ladies,
I need a little advice this morning. This is day 6 after my 4th round and while I felt like sh*t yesterday, it was manageable. Today I feel as if I am dying. First thing this am I...
Forum: her2group 04-19-2007, 01:06 PM
Replies: 18
Views: 2,832
Posted By Erin
Great posts about this, but being a very...

Great posts about this, but being a very "high-need for information" person. I needed the (admittedly vauge) reassurance that scans could offer. As you can see from my signature, I am stage 1,...
Forum: her2group 04-19-2007, 12:50 PM
Replies: 14
Views: 2,928
Posted By Erin
Just to be the odd-ball, mine are always 45...

Just to be the odd-ball, mine are always 45 minutes....split the difference!
Forum: her2group 04-15-2007, 05:41 PM
Replies: 15
Views: 3,592
Posted By Erin
Marie, I have my fingers crossed for both of us...

Marie,
I have my fingers crossed for both of us ;-)
What secondary testing did your onc order? MRI? CT? SPECT?
Forum: her2group 04-13-2007, 11:33 PM
Replies: 6
Views: 3,019
Posted By Erin
I have almost your same dx, but my onc suggested...

I have almost your same dx, but my onc suggested chemo and I, wanting to be the as agressive as was reasonable in my situation, agreed. You can see my tx in my signature. I have read of several women...
Forum: her2group 04-13-2007, 11:27 PM
Replies: 15
Views: 3,592
Posted By Erin
You guys are wonderful!!! :-)

Thanks for all the info! It is impossible to not worry some, but knowing the plethora of thing this could be, besides mets, makes me feel sooooooo much better! As always, your personal experiences...
Forum: her2group 04-13-2007, 10:38 AM
Replies: 15
Views: 3,592
Posted By Erin
Tammy, Thanks for your reply :-) I know I...

Tammy,

Thanks for your reply :-) I know I am so lucky compared to so many others on this board who have much bigger problems than I do. Do other kinds of things show up on bone scans? You...
Forum: her2group 04-13-2007, 10:09 AM
Replies: 15
Views: 3,592
Posted By Erin
Need help! Kind of in a panic about bone scan results

I recently had my onc order a abdominal CT and a bone scan due to my lingering worries about mets. As you can see from my signature, I am not statistically at great risk for them, but I had not felt...
Forum: her2group 04-09-2007, 08:41 PM
Replies: 2
Views: 1,536
Posted By Erin
swtiching out a too-large port?

Hello again ladies,

New question for you tonight. I am considering having my port changed to a smaller one and would like to know the kinds you have and the pros and cons.

The port that the...
Forum: her2group 04-08-2007, 12:52 PM
Replies: 19
Views: 3,443
Posted By Erin
As you can see from my picture I chose to go...

As you can see from my picture I chose to go ahead and shave my head as most others do. My neighbor (in the pic) is a hair dresser and did it for me in her garage. We are a very close group of...
Forum: her2group 04-02-2007, 10:14 PM
Replies: 13
Views: 6,979
Posted By Erin
Well, lack of interest is certainly a problem...

Well, lack of interest is certainly a problem when you don't feel well. I am lucky that my baldness and scars are not seeming to affect my DH. But I do have to admit to using "locally grown...
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