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Search took 0.01 seconds; generated 64 minute(s) ago. Search: Posts Made By: Linda
Forum: her2group 09-23-2007, 05:26 PM
Replies: 56
Views: 9,397
Posted By Linda
Thanks Audrey. I agree totally. Wisely written....

Thanks Audrey. I agree totally. Wisely written.
Linda
Forum: her2group 09-14-2007, 11:24 PM
Replies: 10
Views: 2,970
Posted By Linda
Happy New Year to you all. Wishing you all a year...

Happy New Year to you all. Wishing you all a year of joy and health.
Linda
Forum: her2group 09-13-2007, 09:19 PM
Replies: 17
Views: 4,061
Posted By Linda
Hi all. Here's my info: I was advised to be...

Hi all. Here's my info:
I was advised to be tested because both my grandmothers' had bc (one in her 40's, one at 70) and I am an Ashkanaze Jew, which is a high risk ethnic group. I had something...
Forum: her2group 09-06-2007, 06:01 PM
Replies: 10
Views: 2,873
Posted By Linda
My onc told me that if the two year study had...

My onc told me that if the two year study had been having beneficial results, that info would have been released by now -- the fact that results are not being publisized means that it's not showing a...
Forum: her2group 09-05-2007, 07:50 PM
Replies: 9
Views: 2,397
Posted By Linda
Hi Sandy; To answer your question. The...

Hi Sandy;
To answer your question. The genetics counselor I saw told me that one of the BRCAs (1 or 2 -- i can't remember) is most often hormone +, and the other BRCA mutation is often triple neg. ...
Forum: her2group 09-04-2007, 05:29 PM
Replies: 9
Views: 2,397
Posted By Linda
Hi Dorinda: I was tested (was negative) and can...

Hi Dorinda:
I was tested (was negative) and can tell you that docs like you to consult with a genetics counselor before tested. The counselor will determine your risk (it depends on your age at dx,...
Forum: her2group 08-24-2007, 06:54 PM
Replies: 1
Views: 1,503
Posted By Linda
Hi Kerry: To find info on BRCA testing google...

Hi Kerry:
To find info on BRCA testing google "Myriad Labs" in Salt Lake City. To my knowledge, they have the patent on BRCA tests, so all blood is sent to them. Their web site has lots of info. ...
Forum: her2group 08-08-2007, 06:10 PM
Replies: 25
Views: 4,197
Posted By Linda
Hi all. I'm chiming in as another who had...

Hi all.
I'm chiming in as another who had "routine" scans (scheduled by my onc, I never asked for them) which led to two terrifying false positive scares, (the second scan was scheduled to make sure...
Forum: her2group 08-06-2007, 08:34 PM
Replies: 10
Views: 2,651
Posted By Linda
Hi Steph: I did it twice a week during chemo,...

Hi Steph:
I did it twice a week during chemo, because I was advised by other women that it might help. All I know is that it helped keep me sane (and working!) and that it was incredibly relaxing...
Forum: her2group 08-05-2007, 07:59 PM
Replies: 20
Views: 4,705
Posted By Linda
Krista: You're just in the midst of treatment,...

Krista:
You're just in the midst of treatment, and yes, it sucks, and yes, it makes you crazy and yes, it makes you sick! But...you're getting through it. And you have a great prognosis. Once you...
Forum: her2group 08-03-2007, 06:25 PM
Replies: 11
Views: 2,558
Posted By Linda
Hi Cheryl: I hope you get some other replies,...

Hi Cheryl:
I hope you get some other replies, to help you make this decision. And you have some time to research.
From every doc I talked to, I was told that her2 bc is NOT high risk for showing...
Forum: her2group 07-27-2007, 06:20 PM
Replies: 7
Views: 1,790
Posted By Linda
Ps. I did not have a CR (far from it) but still...

Ps. I did not have a CR (far from it) but still was not advised to do more chemo. More chemo is not necessarily better -- get different opinions. Chemo is very hard on your body and isn't something...
Forum: her2group 07-27-2007, 06:13 PM
Replies: 7
Views: 1,790
Posted By Linda
Hi again. I think this is a grey area, how to...

Hi again.
I think this is a grey area, how to proceed with surgery after neo chemo. Many surgeons have no experience with this -- and the ones that do will admit that it's unpredictable. I had...
Forum: her2group 07-23-2007, 10:49 PM
Replies: 10
Views: 1,603
Posted By Linda
My dermatologist also offered to lazar my port...

My dermatologist also offered to lazar my port scar and bill it to insurance. They did three zaps and the mark is now almost invisable. And I never got any kind of bill, not even for a co pay. ...
Forum: her2group 07-14-2007, 10:40 PM
Replies: 65
Views: 12,497
Posted By Linda
Dear Kate: I'm so sorry to hear this, but glad...

Dear Kate:
I'm so sorry to hear this, but glad you caught things early and know that treatment will go well. Please let us know what happens. Thinking of you
Linda
Forum: her2group 06-29-2007, 03:30 PM
Replies: 26
Views: 4,593
Posted By Linda
Hi. Hope Ruth is getting through treatment...

Hi. Hope Ruth is getting through treatment without too much hardship.
I assume that my onc didn't know about vit D until 6 months ago (the nurses said she (the doc) suddenly started ordering vit D...
Forum: her2group 06-29-2007, 08:39 AM
Replies: 26
Views: 4,593
Posted By Linda
Ask Ruth's onc. It's pretty standard to not take...

Ask Ruth's onc. It's pretty standard to not take many supplements during active treatment. And of course, major sun is not ok on chemo.
My onc only started testing for vit d levels about 6...
Forum: her2group 06-09-2007, 12:01 AM
Replies: 26
Views: 4,593
Posted By Linda
This may seem weird, but my onc is testing my Vit...

This may seem weird, but my onc is testing my Vit D level (and it's been low!) and has me taking supplements. I'm starting to read more about this...
Linda
Forum: her2group 06-08-2007, 11:53 PM
Replies: 27
Views: 3,893
Posted By Linda
Sherry: I've followed your story for a while (I...

Sherry:
I've followed your story for a while (I think we were dx close to the same time) This is most excellent news. Yahoo. YES!
Linda
Forum: her2group 06-05-2007, 11:13 AM
Replies: 9
Views: 2,562
Posted By Linda
I also had rib pain when I began exercising again...

I also had rib pain when I began exercising again after surgery and radiation. Of course, get it checked out. Get anything that troubles you checked out! But the rib muscles seem to be affected by...
Forum: her2group 06-05-2007, 11:07 AM
Replies: 22
Views: 5,427
Posted By Linda
Hi Montana -- I'm another who had a...

Hi Montana -- I'm another who had a through-the-roof ki67 -- mine was 90%!! and stage 3a. My tumor did grow FAST. But that was two years ago, and I'm NED.
I've read that ki67 is not that...
Forum: her2group 05-18-2007, 09:13 AM
Replies: 9
Views: 2,122
Posted By Linda
Hi. This is a hard and personal decision. 2 cm...

Hi. This is a hard and personal decision. 2 cm with great chemo response is definately in the lump/rads territory, assuming no surprises in the surgical pathology (is there is still DCIS, getting...
Forum: her2group 05-14-2007, 10:10 PM
Replies: 5
Views: 2,023
Posted By Linda
Hi Erin. Good to send a message to you again. ...

Hi Erin. Good to send a message to you again. I've worked out with weights and been a runner most of my life, so I couldn't wait to get back (and I had all of my axillary nodes removed.) I'm 2...
Forum: her2group 05-12-2007, 06:51 PM
Replies: 13
Views: 3,606
Posted By Linda
Erin: I know we all make our own decisions, but...

Erin:
I know we all make our own decisions, but I think your choice to take aggressive treatment for stage 1 disease was very, very smart. Her 2 bc is not something to fool around with, or to...
Forum: her2group 04-28-2007, 08:20 PM
Replies: 56
Views: 12,751
Posted By Linda
Dear Barbara: Thank you so much for taking the...

Dear Barbara:
Thank you so much for taking the time to relate all this information to all of us. Your visit with Dr. Pegram was really informative and full of helpful (and reassuring) information...
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