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Search took 0.01 seconds; generated 82 minute(s) ago. Search: Posts Made By: Carol.hope
Forum: her2group 03-14-2010, 01:29 PM
Replies: 13
Views: 3,524
Posted By Carol.hope
Re: Insurance questions

Anita,
Another thought. Your oncologist may not be familiar with chemo brain injury (and should be). You could write down what your life is like, give some examples of how the fatigue keeps you from...
Forum: her2group 03-14-2010, 01:19 PM
Replies: 13
Views: 3,524
Posted By Carol.hope
Re: Insurance questions

Anita,
It sounds like you may have a "chemo brain injury," as I do. There are several studies showing that these severe cognitive deficits often last more than 10 years (in 15% or more of chemo...
Forum: her2group 12-19-2009, 06:54 PM
Replies: 5
Views: 2,501
Posted By Carol.hope
Re: research into possible way to reverse chemo brain toxicity

Barbara,
There is no doubt that Chemo Brain is real! I am still working on recovering from it, 3-1/2 years past the end of treatment.

One thing that helped me was reading Brainlash by Dr. Gail...
Forum: Articles of Interest 12-19-2009, 06:30 PM
Replies: 1
Views: 2,725
Posted By Carol.hope
Chemo brain research results

http://esciencenews.com/articles/2009/12/17/ur.study.reveals.chemos.toxicity.brain.possible.treatment

excerpts:

Study reveals chemo's toxicity to brain, possible treatment

Published:...
Forum: her2group 09-16-2009, 04:03 PM
Replies: 15
Views: 3,756
Posted By Carol.hope
Re: cataracts

Sandra, I chose no other "relaxant" for those surgeries and for several others. I did receive a shot of a local anaesthetic in the eye area. You do have to have the ability to remain still, which I...
Forum: her2group 09-16-2009, 02:11 PM
Replies: 15
Views: 3,756
Posted By Carol.hope
Re: cataracts

Sandra,
I, too got cataracts from treatment. I understand that steroids (such as Decadron) can promote these. Perhaps I'd had the beginnings of cataracts for years, because after the cataract...
Forum: her2group 08-19-2009, 11:20 AM
Replies: 17
Views: 4,828
Posted By Carol.hope
Re: Herceptin and supplements

Dianne,
I have a Naturopathic Doctor who used to work in a cancer clinic, supporting patients through chemo. She recommended quite a few supplements throughout the process, only withholding one or...
Forum: her2group 08-19-2009, 11:09 AM
Replies: 4
Views: 1,467
Posted By Carol.hope
AFTER chemo taste deficiencies

Thanks, Alaska Angel. I changed the title, hoping others long finished with chemo will read my question.

Recently I've been hearing that thyroid issues are common with brain injury. I wonder if...
Forum: her2group 08-18-2009, 07:47 PM
Replies: 4
Views: 1,467
Posted By Carol.hope
Long-term taste deficiency

Do others have this problem? It's not up there with the serious stuff, but...

It's been over 3 years since chemo, and my taste buds still haven't woken up! Every year I look forward to NEXT year...
Forum: her2group 12-27-2008, 04:41 PM
Replies: 28
Views: 6,714
Posted By Carol.hope
Brain healing

Hi Melanie. Glad to be in touch.

It's interesting to me that two of my worse symptoms are two of the few you didn't check. I have extreme sensitivity to sound, even 2-1/2 years after stopping the...
Forum: her2group 12-26-2008, 07:24 PM
Replies: 28
Views: 6,714
Posted By Carol.hope
Hi Melanie. By now you know you are not alone. ...

Hi Melanie. By now you know you are not alone.

I have been dealing with these issues for three years (since starting Taxol), except for the nausea. 1-1/2 years ago my MD diagnosed a CHI, closed...
Forum: Clinical Trials 09-24-2006, 07:29 PM
Replies: 0
Views: 2,547
Posted By Carol.hope
Preventing heart damage

L-carnitine helped my heart recover from a low LVEF apparently due to Anthracycline (Adriamyacin) followed by Herceptin. I would recommend this study to new HER-2 patients.
...
Forum: her2group 08-31-2006, 06:09 PM
Replies: 9
Views: 10,741
Posted By Carol.hope
My Naturopath had me start on 20 mg Melatonin at...

My Naturopath had me start on 20 mg Melatonin at bedtime as soon as I got cancer dx. I'm still on it a year later and she says to stay on it. Right now (because of chemo-brain) I can't remember...
Forum: her2group 08-18-2006, 07:40 PM
Replies: 7
Views: 1,927
Posted By Carol.hope
Blondey, there are several posts about this. You...

Blondey, there are several posts about this. You can click on Search at the top of the screen and type in LVEF or MUGA and probably find them. My LVEF went from 56 to 35. It's back up now. You're in...
Forum: her2group 07-28-2006, 07:42 PM
Replies: 2
Views: 1,603
Posted By Carol.hope
Yes, I was taken off Herceptin. My first MUGA (in...

Yes, I was taken off Herceptin. My first MUGA (in Feb.) was after 12 weekly doses and was 56% - ok to keep going. The second MUGA (in May), after 3 months of every-3-week Herceptin, was 35%, and I...
Forum: her2group 07-21-2006, 05:28 PM
Replies: 16
Views: 3,389
Posted By Carol.hope
My hair fell out 13 days after the first A/C...

My hair fell out 13 days after the first A/C infusion.

Tryto remember that you are beautiful from the inside, even when you're sick and bald!

- Carol
Forum: her2group 07-21-2006, 05:17 PM
Replies: 14
Views: 2,949
Posted By Carol.hope
Hello Hope. It sounds like you are thinking well...

Hello Hope. It sounds like you are thinking well about what's good for you. Your daughter and friend are privileged to be part of your life and share their support. Hundreds of us on this site are...
Forum: her2group 07-15-2006, 03:52 PM
Replies: 29
Views: 5,085
Posted By Carol.hope
Yay! Looking forward to her return. Thanks for...

Yay! Looking forward to her return. Thanks for sharing the good news.

-Carol
Forum: her2group 07-13-2006, 11:50 AM
Replies: 4
Views: 2,049
Posted By Carol.hope
Thank you, R.B. I have read most of your posts...

Thank you, R.B. I have read most of your posts on the Omega 3:6 ratios and am reading Smart Fats, at your suggestion. Sometimes I understand better than other times, as my brain feels overloaded...
Forum: her2group 07-13-2006, 10:25 AM
Replies: 4
Views: 2,049
Posted By Carol.hope
Coconut oil?!

R.B., would you please look at this and tell us what you think? Thanks for your articles. For those of us recovering from chemo brain, a few sentences in simple language are helpful, too. Thank you!...
Forum: her2group 07-11-2006, 08:18 PM
Replies: 20
Views: 3,842
Posted By Carol.hope
Great idea! Thanks for sharing it. Have a good...

Great idea! Thanks for sharing it. Have a good vacation. You certainly deserve it. We will miss you.

- Carol
Forum: her2group 07-11-2006, 08:03 PM
Replies: 7
Views: 2,190
Posted By Carol.hope
Hi Chrisy. Just to help you through til you get...

Hi Chrisy. Just to help you through til you get to hear from the doc, yes, I think degenerative disease means basically wear and tear. I have lots of it. I have wonderful physical therapists who...
Forum: her2group 07-11-2006, 07:27 PM
Replies: 46
Views: 7,543
Posted By Carol.hope
Sandy, what a sad loss for you. I am so sorry....

Sandy, what a sad loss for you. I am so sorry. Thank you for sharing this with us. Take especially good care of yourself right now, as you are precious to so many. My prayers are with you, and I know...
Forum: her2group 07-08-2006, 05:15 PM
Replies: 5
Views: 1,857
Posted By Carol.hope
Here's a link with some alternatives to...

Here's a link with some alternatives to ibuprofen. R.B. keeps telling us to take fish oil - here it is again! http://www.mercola.com/2005/jun/16/pain_killers.htm- Carol
Forum: her2group 07-08-2006, 04:49 PM
Replies: 5
Views: 1,857
Posted By Carol.hope
Hi Mary. I'm no expert, but since no one else has...

Hi Mary. I'm no expert, but since no one else has replied to you yet, let me at least say that I can certainly relate to the stress of waiting for all these tests and then the results. Sounds like...
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