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Search took 0.11 seconds; generated 100 minute(s) ago. Search: Posts Made By: Carolyns
Forum: her2group 11-25-2009, 01:41 PM
Replies: 26
Views: 4,117
Posted By Carolyns
Re: Does Anyone Know Why We Are No Longer to Do Self Exams?

I asked a question about cost of treatment and drugs to an aids advocate. I asked how the HIV aids community addressed the cost of meds. He said that in that community everyone is "outside of the...
Forum: her2group 11-25-2009, 09:40 AM
Replies: 26
Views: 4,117
Posted By Carolyns
Re: Does Anyone Know Why We Are No Longer to Do Self Exams?

Hi Laurel,

Are you saying that it says somewhere in the current language that the US will stop treating patients with Stage IV cancer or terminal illness? I hadn't heard that although I have been...
Forum: her2group 11-24-2009, 06:52 PM
Replies: 32
Views: 4,977
Posted By Carolyns
Re: A Good Day but a Sad Day

Hi Sheila,

I am sorry to hear about your doctor leaving but thrilled to hear about your response to treatment! That is great news... I am so happy. You made my night!

Take care, Carolyn
Forum: her2group 11-24-2009, 12:56 PM
Replies: 26
Views: 4,117
Posted By Carolyns
Re: Does Anyone Know Why We Are No Longer to Do Self Exams?

Hi Laurel,
I didn't get why they are telling women not to do self exams. I think that most women got that message and not the distinction of a formal self exam verses a "feel you boobies" free...
Forum: her2group 11-24-2009, 08:05 AM
Replies: 20
Views: 5,495
Posted By Carolyns
Re: Questions about TDM1

Hi Jessica,

I am sorry to hear your news. It sounds like you have your dukes up and you are ready to get this turned around and headed back in the right direction.

T-DM1 - I am on it now...
Forum: her2group 11-23-2009, 07:52 PM
Replies: 6
Views: 2,706
Posted By Carolyns
Re: "Evidence based" task force - read for answers

Hi Jackie,

The challenge with these types of recommendations is that young women's doctors will read these guidelines and follow them... hide behind them for cover if things go wrong. I was put...
Forum: her2group 11-23-2009, 01:55 PM
Replies: 14
Views: 2,972
Posted By Carolyns
Re: Members of the Task Force

Thank you for this list and the breakdown of participants in the panel.

Excluding members with actual experience in the trenches seems like the Ivory Tower mentality to me. I mean look behind...
Forum: her2group 11-20-2009, 06:48 AM
Replies: 24
Views: 3,897
Posted By Carolyns
Re: Toolbox makeover?

Hi Rich,

I think it is a good discussion. I wish I could continue getting Herceptin weekly rather than the 3 week dose with TDM1. It is not up to me and I am grateful to be in the study... just...
Forum: her2group 11-09-2009, 07:28 PM
Replies: 18
Views: 4,529
Posted By Carolyns
Re: you are not going to like this--first evidence based guidelines 4 brain met treat

Lani - You are right!

"Re: you are not going to like this--first evidence based guidelines 4 brain met treat
My problem is that if they don't keep trying they won't find out what DOES help" So...
Forum: her2group 11-04-2009, 04:28 PM
Replies: 15
Views: 2,598
Posted By Carolyns
T-DM1 - after inscanity

Hi All -

Well the CT scans show liver tumors down by almost half after 3 treatments. Now I get to get my treatment at home and no more travel to Detroit! The good news hasn't sunk in yet...
Forum: Herceptin / Tykerb 11-03-2009, 06:29 PM
Replies: 15
Views: 4,398
Posted By Carolyns
Re: Herceptin/T-DM1 trial ?

Hi Rich,

I am not sure about this. All I know is that the trial seemed quite specific about the tumor sample that they wanted and it had to be of ample size to get a bunch of "slides" out of it...
Forum: her2group 11-03-2009, 04:37 PM
Replies: 6
Views: 1,746
Posted By Carolyns
Re: T-DM1 Trial...New Sites, 2 in Illinois

That is great news. I have my fingers and toes crossed for you.

Carolyn
Forum: Herceptin / Tykerb 11-03-2009, 04:36 PM
Replies: 15
Views: 4,398
Posted By Carolyns
Re: Herceptin/T-DM1 trial ?

Hi Rich,

I am sorry to hear about your mom. As far as Her2 status. The sample of mine that the drug company insisted on using was very specific. In my case it was a sample that had been Her2++...
Forum: her2group 11-01-2009, 07:26 PM
Replies: 16
Views: 2,857
Posted By Carolyns
Re: Update: bad

Hi Rich,

Yes it is amazing how everyone reacts different to the same treatment in many ways including the side effects.

As far as the Pet / CT of my liver. We had decided to go that route...
Forum: her2group 11-01-2009, 01:06 PM
Replies: 16
Views: 2,857
Posted By Carolyns
Re: Update: bad

Hi Rich,

I am sorry that you got this news. I have a few experiences to share. 1). My doctor would not add anything to Xeloda once it began to fail. 2). I found Navelbine very difficult...
Forum: her2group 11-01-2009, 12:55 PM
Replies: 9
Views: 1,886
Posted By Carolyns
Re: possible gentle long-term strategy for treatment of Stage IV

Lani and / or Rich,

Can you please explain? Is this just saying to lower the dose of chemo for mets patients and keep the cancer at bay or stable rather than going full dose?

I have...
Forum: her2group 11-01-2009, 12:47 PM
Replies: 68
Views: 19,666
Posted By Carolyns
Re: Good Advice?

I was finally diagnosed at age 33 (the first time after changing doctors to get a prescription for a mamograhm). I had stage I and learned that my gyno of 14 years said I had an obsessive fear of...
Forum: her2group 11-01-2009, 12:11 PM
Replies: 5
Views: 1,968
Posted By Carolyns
Re: Continue to Wait

Hi Barb,

Thank you for keeping us posted even if it is to say that you are still waiting. Please know that we value hearing from you regardless of the type of information you have to share. ...
Forum: her2group 10-26-2009, 01:05 PM
Replies: 43
Views: 7,389
Posted By Carolyns
Re: Prayers are answered ~~~

Hi Sheila,

This is GREAT news and Win Win is right. Whatever works out is what is meant to be. I will keep you in my thoughts and prayers.

(Big sigh of relief... phewww, thank goodness)
...
Forum: her2group 10-26-2009, 10:56 AM
Replies: 1
Views: 1,154
Posted By Carolyns
Re: Tweens challenged by grown-up malady: Breast cancer

Rhonda,

Thanks for posting. This is a frightening trend and I feel terrible for these young girls.

I have beleive that the rate of younger women getting breast cancer is increasing at a...
Forum: her2group 10-23-2009, 11:00 AM
Replies: 83
Views: 18,732
Posted By Carolyns
Re: Insurance Company Does Not Want to approve TYKERB

Hi Sheila,

I hope that you are getting somewhere with this fight.

Please forgive me if you have already gone into this but can you please explain why they can prevent your doctor from...
Forum: her2group 10-23-2009, 10:48 AM
Replies: 21
Views: 3,995
Posted By Carolyns
Re: taxol/carbo/herceptin not working

Hi Pam,

I don't have any advice. I just want to wish you well and tell you that you are in my thoughts and prayers.

Love, Hope, Peace, Carolyn
Forum: her2group 10-23-2009, 10:42 AM
Replies: 25
Views: 5,511
Posted By Carolyns
Re: The 411 on me... not much too new, but a new wrinkle or two.

Hi Brenda,

Thank you so much for the update. You are a trail blazer and I learn from you each time you post. Please keep us posted and I hope that you have the best possible outcome.

Love,...
Forum: her2group 10-22-2009, 05:29 AM
Replies: 3
Views: 1,688
Posted By Carolyns
Re: FDA's New Rule For Compassionate Use

Hi Courtney,

I have not gone this route yet although I have investigated it a little. Women with mets and the general patient population with advanced disease find out about these challenges at...
Forum: her2group 10-21-2009, 06:42 AM
Replies: 28
Views: 5,757
Posted By Carolyns
Re: I just hate this part of the whole thing....

Irene,

I am so sorry that you got this news. I know that you will overcome this too. It sounds like you are getting your plan in place. Please know that you are in my thoughts and prayers.
...
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