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Search took 0.03 seconds; generated 39 minute(s) ago. Search: Posts Made By: Emmay
Forum: her2group 12-21-2006, 03:10 PM
Replies: 12
Views: 2,979
Posted By Emmay
I should clarify that the early encouraging...

I should clarify that the early encouraging results that my sister's neuro-oncologist is seeing is with patient(s?) melanoma metastasis in the brain, but since melanoma mets are notoriously...
Forum: her2group 12-20-2006, 03:03 PM
Replies: 12
Views: 2,979
Posted By Emmay
We met with my sister's neuro-oncologist, who...

We met with my sister's neuro-oncologist, who suggested a combination of Temodar/Sorafenib. The Sorafenib (also known as Nexavar, and "a sister compound" of Sutent) is an antiangiogenesis drug. I...
Forum: her2group 12-17-2006, 09:42 PM
Replies: 12
Views: 2,979
Posted By Emmay
Thanks so much, Pattyz. That whole long thread...

Thanks so much, Pattyz. That whole long thread about "Sutent"(it sounds like Sorafenib is close to it) on bcmets.org was very interesting - I copied a lot of the info. And thank you also for sharing...
Forum: her2group 12-17-2006, 09:14 PM
Replies: 12
Views: 2,036
Posted By Emmay
So glad the surgery went well, Barbara. Please...

So glad the surgery went well, Barbara. Please do rest up as well as you can, and enjoy the holidays.
Forum: her2group 12-15-2006, 05:53 PM
Replies: 12
Views: 2,979
Posted By Emmay
Chemo options for brain mets after CyberKnife

My sister(age 49) is being treated with CyberKnife every 3 months or so as new brain mets appear, usually 2-3 each time, and she's had 6 or more sessions now. She's already had Whole Brain...
Forum: her2group 12-12-2006, 07:53 AM
Replies: 8
Views: 1,719
Posted By Emmay
Barbara - You are a very valued member of this...

Barbara - You are a very valued member of this group, and we appreciate your sharing your experience. Our thoughts and prayers are with you for successful surgery and quick recovery!
Forum: her2group 09-05-2006, 07:14 PM
Replies: 5
Views: 1,925
Posted By Emmay
Whenever my sister has had to take decadron...

Whenever my sister has had to take decadron before/during/after CyberKnife radiation treatment for her brain mets, her leg muscles become very weak soon after the course has begun, to the point where...
Forum: her2group 08-27-2006, 06:55 PM
Replies: 7
Views: 2,076
Posted By Emmay
Dear PattyZ, Thank you for "going on" with...

Dear PattyZ,

Thank you for "going on" with so much detail -- it's very helpful. Can you say why you were denied the Temodar after starting on it?

Though the Lapatinib (Tykerb) didn't work for...
Forum: her2group 08-27-2006, 02:44 PM
Replies: 7
Views: 2,076
Posted By Emmay
Who's using Temodar for brain mets?

If you are using Temodar (a.k.a. Temozolomide) for bc brain mets, how long have you been on it, is it working to control or shrink brain mets, and what are your side effects, if any?

My sister...
Forum: her2group 08-07-2006, 02:55 PM
Replies: 9
Views: 2,188
Posted By Emmay
You are doing such a wonderful job, MaryAnn,...

You are doing such a wonderful job, MaryAnn, advocating for yourself, doing everything you can to get better and working so well with your doctors -- you are such an inspiration. More power to you!
Forum: her2group 08-05-2006, 07:22 AM
Replies: 30
Views: 8,705
Posted By Emmay
Happy Birthday Christine, Joe, and your whole...

Happy Birthday Christine, Joe, and your whole family!
Thank you so very much for starting this website, sharing your story, and staying up on the latest research for all of us. You are a wonderful...
Forum: her2group 07-26-2006, 03:23 PM
Replies: 6
Views: 1,977
Posted By Emmay
You might want to check the CyberKnife brain...

You might want to check the CyberKnife brain tumor discussion board: http://www.cyberknifesupport.org/forum/default.aspx?f=1

The doctors who monitor the questions on that site are very...
Forum: her2group 07-12-2006, 05:43 PM
Replies: 20
Views: 6,742
Posted By Emmay
My sister was told that having a...

My sister was told that having a breast-conserving lumpectomy would be just as effective as a mastectomy, so she had the lumpectomy for the 2.3cm tumor, clear margins, no positive lymph nodes. She...
Forum: her2group 07-11-2006, 08:36 PM
Replies: 7
Views: 2,607
Posted By Emmay
Thanks, Cathya, for the suggestion of herceptin...

Thanks, Cathya, for the suggestion of herceptin being possibly injected directly to the brain. I had seen an abstract about that procedure being tried with one patient in Europe. I asked my sister's...
Forum: her2group 06-28-2006, 08:59 PM
Replies: 7
Views: 2,607
Posted By Emmay
My sister had a 2.3cm tumor in rt breast...

My sister had a 2.3cm tumor in rt breast diagnosed in May '03, lumpectomy 7/03 no positive nodes, started AC chemo 8/03, Taxol started 12/03, mets to right breast diagnosed 1/04, rt brst mastectomy...
Forum: Articles of Interest 04-04-2006, 08:43 AM
Replies: 9
Views: 4,524
Posted By Emmay
Ap2 and Decadron - biochem problem for Her2+ bc?

Dexamethasone is Decadron. These articles (the first one from Christine MH-UK and the immediately previous one from unregistered guest sent on 3/28 at 7:17) are so technical, I'm not sure if I'm...
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