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Search took 0.11 seconds; generated 58 minute(s) ago. Search: Posts Made By: hutchibk
Forum: her2group 07-18-2012, 04:35 PM
Replies: 41
Views: 10,275
Posted By hutchibk
Re: Anxiously Waiting

I/insurance doesn't pay Genetech for the drug for compassionate use to the best of my knowledge, Genetech pays to administer it and collect data... I am only responsible for travel (I go from TX to...
Forum: her2group 07-17-2012, 08:54 PM
Replies: 14
Views: 5,220
Posted By hutchibk
Re: Perjeta #2 with Herceptin

S, have you had a node/skin met biopsied? Is there any chance they are necrotic (even though growing... something I am akin to) and not tumor? Just asking.
Forum: her2group 07-14-2012, 08:26 AM
Replies: 42
Views: 11,664
Posted By hutchibk
Re: Pertuzumab not avaliable to stage 4 contrary to what you have heard

I could have misunderstood, but I believe that Pertuzamab can be prescribed as a doctor wishes... after ONE time with a docetaxol. The FDA requires it be used with a docetaxol, but only once.

Then...
Forum: her2group 07-11-2012, 05:17 PM
Replies: 42
Views: 11,664
Posted By hutchibk
Re: Pertuzumab not avaliable to stage 4 contrary to what you have heard

There have been a few on the boards here who have been on Ty/Xel/Herc together! Whatever works, we say. You should ask that question as a thread. I personally have been on Ty/Xel and Ty/Herc and now...
Forum: her2group 07-11-2012, 03:54 PM
Replies: 42
Views: 11,664
Posted By hutchibk
Re: Pertuzumab not avaliable to stage 4 contrary to what you have heard

Yan yan - progressing while taking Herceptin is not the same as progressing on a chemo or failing Herceptin. It has many ways to work, and will often work with other combinations. Don't go off of it...
Forum: her2group 07-11-2012, 03:49 PM
Replies: 6
Views: 1,729
Posted By hutchibk
Re: LVEF false Readings & Protecting your heart New Info

Coreg (Beta blocker) is GREAT for those who can take it. I can't take it because I have naturally low blood pressure and we with low BP are not allowed to take a Beta blocker... often Lisinopril (ACE...
Forum: her2group 07-08-2012, 07:45 PM
Replies: 42
Views: 11,664
Posted By hutchibk
Re: Pertuzumab not avaliable to stage 4 contrary to what you have heard

Hmmm.... "If you have had Herceptin, then you do not qualify for Pertuzumab." But I have a stage IV friend who has had lots of Herceptin who is getting it... I don't know about insurance paying, etc,...
Forum: her2group 07-04-2012, 10:09 AM
Replies: 2
Views: 1,523
Posted By hutchibk
Re: It might be possible to PREDICT who lapatinib+capecitabine will work for

It worked for me for 18 months, then Tykerb/Herceptin worked another 18 months. And I assume Tykerb keeps working to protect my brain, as I have had no more brain lesions.
Forum: her2group 07-04-2012, 06:06 AM
Replies: 0
Views: 2,397
Posted By hutchibk
Pituitary doctor, highly recommended

http://cancer.osu.edu/mediaroom/releases/Pages/Ohio-State-Surgeons-Pioneer-Removal-Of-Skull-Based-Tumors-Through-The-Nose-And-Mouth,-Sparing-Patients-From-Open-Brain-Surg.aspx

Dr. Prevadello, Ohio...
Forum: her2group 07-03-2012, 11:54 AM
Replies: 9
Views: 2,827
Posted By hutchibk
Re: Outlaw Vit D?

I am not sure if you covered this Jackie, but the real problem seems to be HOW MUCH Vit D 3 is taken. Don't take too much or too little...

Thanks for your fun asides Andrea!!
Forum: her2group 07-03-2012, 11:50 AM
Replies: 60
Views: 16,309
Posted By hutchibk
Re: INFUSING Perjeta as we speak!!! I am blessed

All I can say is YAY! PBs are on the way! (hehe)
Forum: her2group 07-03-2012, 11:49 AM
Replies: 31
Views: 6,766
Posted By hutchibk
Re: Good news on scans!

Just seeing this and F A N T A S T I C! Woo Hoo!
Forum: her2group 06-26-2012, 10:11 AM
Replies: 9
Views: 2,827
Posted By hutchibk
Outlaw Vit D?

http://news.yahoo.com/vitamin-d-plus-calcium-may-extend-life-130407705.html

(and for those who like a lot of judgement with their coffee... it does have a lot of info if you cut to it...)
...
Forum: her2group 06-18-2012, 03:35 PM
Replies: 1
Views: 1,945
Posted By hutchibk
FYI...A list of Integrative Oncologist/Oncology Clinics

For those who are interested... mine is Dr. Dan Labriola at Northwest Natural health, on this list. He does phone consults with me.
http://www.integrativeonc.org/Integrative-Oncology-Practices/
...
Forum: her2group 06-18-2012, 03:32 PM
Replies: 14
Views: 3,913
Posted By hutchibk
Re: TDM1 breathing/fatigue question

Nosebleeds too with large clots. Glad I'm not the only one... yesterday seemed it would never stop, I ended up using an ice pack and that did the trick!
Forum: her2group 06-18-2012, 03:29 PM
Replies: 17
Views: 8,574
Posted By hutchibk
Re: Herceptin and grapefruit

That's great Evebarry! Just be sure you aren't taking other meds besides cancer meds... grapefruit is thought to interfere with lots of things. Just talk to your onc... be sure they know.
Forum: her2group 06-17-2012, 09:31 AM
Replies: 23
Views: 3,534
Posted By hutchibk
Re: WBR for Schoolteacher

Just FYI, rest for the body/brain is huge. Laurel is right!
Forum: her2group 06-17-2012, 09:28 AM
Replies: 17
Views: 8,574
Posted By hutchibk
Re: Herceptin and grapefruit

I don't eat or drink anything grapefruit. My oncs, docs, nurses, etc and even clin trial coordinator asked me not to starting about 8 years ago. I would probably end up on many different kinds of...
Forum: her2group 06-17-2012, 09:10 AM
Replies: 14
Views: 3,913
Posted By hutchibk
Re: TDM1 breathing/fatigue question

On TDM1, (I have been on 1.5 yrs), my current weight has everything to do with my dose, too.
Forum: her2group 06-16-2012, 01:59 PM
Replies: 14
Views: 3,913
Posted By hutchibk
Re: TDM1 breathing/fatigue question

I am on day 4 after treatment with TDM1 and am fatigued but that's all. I can expect a little bloody nose in coming days, and some low platelets, but that is about all. My CBC numbers were good until...
Forum: her2group 06-13-2012, 08:17 PM
Replies: 20
Views: 7,043
Posted By hutchibk
Re: Myelodysplastic Syndrome - Robin Roberts...now I'm feeling nervous

If any of you decide you need a bone marrow biopsy, here's what I went through. I was scared, because you are told to be scared of bone marrow biopsies. But no more!

I had a bone marrow biopsy a...
Forum: her2group 06-13-2012, 08:02 PM
Replies: 11
Views: 2,134
Posted By hutchibk
Re: Final Trial results: lapatinib + herceptin improve overall survival meaningfully

I've had this combo. It's a good one. I now am hoping for the Herceptin/Pertazumab combo. Thanks Lani.
Forum: her2group 06-12-2012, 10:43 PM
Replies: 23
Views: 3,534
Posted By hutchibk
Re: WBR for Schoolteacher

Best wishes to Schoolteacher! It's tough, as Steph and I know! I hope the WBR does it's work and those mets are gone forever...
Forum: her2group 06-12-2012, 10:38 PM
Replies: 20
Views: 7,043
Posted By hutchibk
Re: Myelodysplastic Syndrome - Robin Roberts...now I'm feeling nervous

First things first. You have to go for a bone marrow biopsy first. I have had all of these things recently (except for low whites), and was worried that I had become refractory to platelets (since I...
Forum: her2group 06-12-2012, 08:13 PM
Replies: 0
Views: 1,179
Posted By hutchibk
FYI ~ US Preventative Task Force on Calcium and Vit D for healthy baby boomer

http://www.usatoday.com/news/health/story/2012-06-07/panel-vitamin-d-recommendations/55549414/1

What do you think?
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