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Search: Posts Made By: Lori R
Forum: her2group 03-29-2012, 08:22 PM
Replies: 33
Views: 6,796
Posted By Lori R
Re: courtney is starting hospice

I started to cry when I read the post and then realized that Courtney continues to lead us with her positive spirit.

Courtney and Jay gave me another gift by sharing her discussion with God.
"...
Forum: her2group 03-22-2012, 11:37 AM
Replies: 14
Views: 3,795
Posted By Lori R
Re: Abraxane

I am on my 2nd round of Abraxane and have found it both tolerable AND effective on both occasions.

It is strange. The first time I was on it I didn't lose what little hair I had remaining...
Forum: her2group 03-18-2012, 10:07 AM
Replies: 37
Views: 6,158
Posted By Lori R
Re: Fire up the flux capacitor...new drug trial for me!

Chrisy,
Thank you...thank you!!! You are so brave to try these new drug combos. I am so hoping this proves to be another magical combo.

Best wishes....Lori
Forum: her2group 03-06-2012, 06:25 AM
Replies: 61
Views: 11,781
Posted By Lori R
Re: Hail Mary Pass - dropped the ball

Although the contracting C-Diff has been a horrible nightmare, I concur with your statement about being glad you had the liver resection. I too had a resection which revealed hidden nodes and the...
Forum: her2group 03-06-2012, 05:56 AM
Replies: 29
Views: 6,930
Posted By Lori R
Re: New role call for stage IVers

It's been a while since I've posted.

I was diagnosed 4 1/2 years ago. 10/2007. I was stage IV at the time of diagnosis.

Although I've been through 3 rounds of Chemo (bye bye hair), I am...
Forum: her2group 02-07-2012, 05:56 AM
Replies: 76
Views: 16,656
Posted By Lori R
Re: NEW update on chrisy...scanxiety replay on the horizon

Chrisy,
I am glad that the pesky tumor is going to get hit with another round of the new drug combo. Wouldn't want to toss out a potentially winning combination due to technical and human...
Forum: her2group 02-03-2012, 06:36 AM
Replies: 55
Views: 9,918
Posted By Lori R
Re: Update - and uber-scanxiety!

Chrisy,
Just to let you know...you have been in my thoughts the last couple of days.

Hugs....Lori
Forum: her2group 01-24-2012, 12:26 PM
Replies: 55
Views: 9,918
Posted By Lori R
Re: Update - and uber-scanxiety!

Chrisy,
You are our pioneer in blazing successful trails for these new drug combos. Keeping my fingers crossed that this one is another silver bullet.

If this doesn't work magic, there are so...
Forum: her2group 01-23-2012, 06:09 AM
Replies: 59
Views: 10,142
Posted By Lori R
Re: Crossroads

Cool Breeze,
Hoping you are regaining your strength and confidence.

How is the scrap booking going? That is on my "to do" list. I am great at buying the cute little stickers and papers but...
Forum: her2group 01-09-2012, 05:57 PM
Replies: 7
Views: 2,428
Posted By Lori R
Re: Blood work and mets

Like Cool Breeze, my blood always appears normal.

We only know what is happening via scans.

So...scans it is...lots of them. Makes me nervous but no option.

Lori
Forum: her2group 01-07-2012, 06:13 PM
Replies: 59
Views: 10,142
Posted By Lori R
Re: Crossroads

I was going to tally the responses for keeping working vs quit. But I was too lazy. You get the drift.

I vote for don't quit. I am amazed at what you have been through in a very short amount...
Forum: her2group 01-07-2012, 05:51 PM
Replies: 16
Views: 4,020
Posted By Lori R
Re: I could really use some input

Deena,
Responding to your question about insurance denial. I recently successfully worked through this process.

First, your Dr. has to be on board with the approach. My Onc wrote a page and a...
Forum: her2group 12-30-2011, 07:32 AM
Replies: 12
Views: 4,675
Posted By Lori R
Re: Has anyone gone on disability?

While I don't have a lot of answers, I wanted to let you know that there are other Stage IV women on the site who are in a similar situation. My husband works for a small company with limited...
Forum: her2group 12-28-2011, 08:32 AM
Replies: 9
Views: 3,793
Posted By Lori R
Re: Scared of prognosis-stage IV liver mets

Dear KS,
First of all welcome!!! We always say....so sorry we had to meet this way.

I am glad you were able to locate some immediate encouraging posts on the site. Never hesitate to come to...
Forum: her2group 12-24-2011, 09:32 AM
Replies: 43
Views: 8,232
Posted By Lori R
Re: Update on the Journey for NED

Sheila,
As always, so nice to see a post from you. Sorry to hear of continued challenges. UGH!!! Many of us know the frustration well.

It sounds as if your home is warm and cheery this holiday...
Forum: her2group 12-21-2011, 04:12 PM
Replies: 16
Views: 3,808
Posted By Lori R
Re: NED Stage IV? Chemoless stage IV?

Kim,
I am a Stage IV liver mets gal and I wanted to provide your mom with reassurance that she is on a tough combination and is almost done.

I did get a break and was fearful that if the cancer...
Forum: her2group 12-15-2011, 03:26 PM
Replies: 22
Views: 5,249
Posted By Lori R
Re: My New Treatment: T-DM1 Taxol/Pertuzumab

Karen,
Wow, I am so excited for you. That sounds like quite the combination to get after that bad boy that likes to hang out in your liver. He is in for a big surprise.

You should be pleased by...
Forum: her2group 12-01-2011, 06:48 AM
Replies: 5
Views: 2,317
Posted By Lori R
Re: Experience with Pertuzumab?

Debbie,
Thank you for starting this thread. I am very anxious to hear about the status of Pertuzumab. My onc has expressed excitement about this possibility, yet when I try to gain insights she...
Forum: her2group 11-28-2011, 08:54 PM
Replies: 21
Views: 6,774
Posted By Lori R
Re: Possible Progression/New Treatment For Liver Mets

Karen,
Just remember...this is just a speed bump on this crazy journey. You will feel much better when you have a new direction.

I was on Navelbine and had minimal side effects. Good news...
Forum: her2group 11-12-2011, 08:25 AM
Replies: 15
Views: 3,543
Posted By Lori R
Re: From IIIc to IV with liver mets

Dear Redwolf,
I have been reluctant lately to post as my signature doesn't reflect a quick back to NED status for those fighting liver mets.

However, since you have a 14 year old daughter I...
Forum: her2group 10-25-2011, 05:46 PM
Replies: 23
Views: 5,182
Posted By Lori R
Re: Very nervous

Dear Cool Breeze,
I encourage you to be a pain in the butt and push for what your heart is telling you. Call the Surgeon's office and get on a cancelation list. Explain to them that his inability...
Forum: her2group 10-19-2011, 04:52 PM
Replies: 51
Views: 12,606
Posted By Lori R
Re: Honoring Our HER2 Lost

I can appreciate that for some, such a thread would be disturbing.

But for me...I thought about Lolly and others just yesterday and wanted to go out and post that I still am thinking of them and...
Forum: her2group 10-19-2011, 04:45 PM
Replies: 26
Views: 4,967
Posted By Lori R
Re: PET Scan results

Jessica,
This is fantastic news!! Go Halaven. NED would be fantastic, but I am with you on thinking MED was Ok too.

You've been so strong for so long I am hoping you can settle in and just...
Forum: her2group 10-05-2011, 05:47 AM
Replies: 23
Views: 5,395
Posted By Lori R
Re: can people chime in as to what insurance companies they have and what troubles

This is a very insightful thread and I appreciate everyone's feedback.

I have continued to work full time (a very supportive company and manager) and do so because I am the primary insurance...
Forum: her2group 10-05-2011, 05:37 AM
Replies: 60
Views: 15,724
Posted By Lori R
Re: Liver Resection Surgery

Cool Breeze,
Thinking of you and happy to know you are surrounded by family.

Yea!!! Surgery complete...those mets are gone. Breath deep and take care of yourself.

Lori R
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