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Search took 0.01 seconds; generated 72 minute(s) ago. Search: Posts Made By: linzer
Forum: her2group 09-16-2014, 03:53 PM
Replies: 2
Views: 1,917
Posted By linzer
Re: Her2 vaccine

Thanks! I will check it out.

Linda
Forum: her2group 09-15-2014, 04:15 PM
Replies: 2
Views: 1,917
Posted By linzer
Her2 vaccine

I've been reading about the seemingly great outcomes from the vaccines. I am due to be on Herceptin through the middle of next year. I've only done my initial four infusions, and have 13 to go after...
Forum: her2group 08-30-2014, 08:36 AM
Replies: 11
Views: 4,980
Posted By linzer
Re: Managing Diarrhea

I agree with the fiber, water, and probiotics (although I was advised against it by a NP because she said that sometimes when immunity is down the probiotic can encourage growth of bacteria - not...
Forum: Caregivers Corner 08-23-2014, 06:50 PM
Replies: 6
Views: 14,648
Posted By linzer
Re: Caregiver burnout!!

So sorry you and your sister are going through this. Perhaps you could get a social worker or some other advocate on board to help navigate this and take some of the stress off. If your sister has...
Forum: her2group 08-18-2014, 02:14 PM
Replies: 18
Views: 5,765
Posted By linzer
Re: Will you share how you "live your legacy," with me?

I think it's so wonderful you've been chosen to speak and share your insight. I'm fairly new to all of this having just been dx'd in May. I do think differently now in the sense that I don't say "no"...
Forum: her2group 08-15-2014, 08:09 AM
Replies: 55
Views: 18,261
Posted By linzer
Re: Went for mammo and cancer has returned...

I am so sorry. I hope that you get solid answers and a plan in place. We are here for you. Please update us when you are ready and able. - Linda
Forum: her2group 08-06-2014, 04:36 PM
Replies: 7
Views: 5,143
Posted By linzer
Re: losing feeling in finger tips on taxotere

Is she taking L glutamine? Here's a link to a study out of Dana Farber:

http://www.dana-farber.org/Health-Library/Alleviating-Peripheral-Neuropathy-Symptoms.aspx

I'm in my 3rd week of taking...
Forum: her2group 08-06-2014, 02:02 PM
Replies: 12
Views: 3,869
Posted By linzer
Re: Last Herceptin Infusion - Done and Dusted!

Congratulations! Well said. And, so it shall be :) All the best to you and your family.

Linda
Forum: her2group 08-03-2014, 09:08 AM
Replies: 4
Views: 4,024
Posted By linzer
Re: Does your port hurt - have to wear bra 24/7?

I've had my port for 8 weeks. It's not uncomfortable during the day, but I find it is a bit when trying to sleep on that side (left) or on my stomach. It also itches sometimes lately. Perhaps more...
Forum: her2group 08-02-2014, 07:58 AM
Replies: 7
Views: 3,921
Posted By linzer
Re: Kudos to Kiri and Kai

As you should be! What a wonderfully grounded couple. Thank you for sharing. I was pleased to see that I live just about 20 miles west of them. Nice to make the local connection! May they continue to...
Forum: her2group 07-30-2014, 05:18 PM
Replies: 21
Views: 6,750
Posted By linzer
Re: Gemzar & Herceptin

I'll be thinking of you and hoping for nothing but continued progress :)
Forum: Clinical Trials 07-30-2014, 05:16 PM
Replies: 7
Views: 27,006
Posted By linzer
Re: Perjeta reaction

I have not had a Perjeta reaction. I have one more to go. I do know though that my center, Dana Farber, has a desensitization team whose sole job is to come up with a protocol to make sure that each...
Forum: her2group 07-30-2014, 05:12 PM
Replies: 21
Views: 6,750
Posted By linzer
Re: Gemzar & Herceptin

So glad you are on an encouraging path. I have been taking L-glutamine powder (30g a day) for 2 weeks now (started during week 6 of Taxol, Herceptin, Perjeta) and am astounded at the progress I've...
Forum: her2group 07-22-2014, 06:23 PM
Replies: 13
Views: 4,322
Posted By linzer
Re: Sharing Good News

That's such wonderful news! So happy for you. Let the healing begin :)
Forum: her2group 07-08-2014, 12:05 PM
Replies: 5
Views: 3,980
Posted By linzer
Re: Life insurance

Oops! Sorry that I didn't take note of the stage when I posted the link. I'll keep looking and see if I can find something different that does cover IV.

Linzer
Forum: her2group 07-08-2014, 11:09 AM
Replies: 5
Views: 3,980
Posted By linzer
Re: Life insurance

This may help:

http://www.massmutual.com/mmfg/pdf/breast_cancer_surviviors.pdf
Forum: her2group 07-03-2014, 12:13 PM
Replies: 23
Views: 8,284
Posted By linzer
Re: Pre-Melanoma Mole

Thank you for posting. I have never had a skin/mole check and just booked one today after reading this. I also have a slightly "off" mole on my thigh that I'm anxious to have looked at. Hopefully...
Forum: her2group 07-03-2014, 12:10 PM
Replies: 2
Views: 2,317
Posted By linzer
Re: Things I've learned

Great suggestions! I agree with, and have done all of them and am really feeling good about myself physically and mentally during this otherwise trying time. I'll add a few, if that's okay :)

1....
Forum: her2group 07-02-2014, 03:26 AM
Replies: 10
Views: 3,765
Posted By linzer
Re: depression?

Others have much more experience (unfortunately) than I do since I'm just starting out with chemo (4th treatment today). I have found that I actually, for the first time really, crave my daily walk...
Forum: her2group 06-21-2014, 01:01 PM
Replies: 52
Views: 16,257
Posted By linzer
Re: I'm NED

Congratulations! I stopped over and read some of your blog, and look forward to reading more.

I'm new here and am using Perjeta as a first-line treatment. It has obliterated my tumor and also...
Forum: her2group 06-17-2014, 03:53 PM
Replies: 17
Views: 6,221
Posted By linzer
Re: Newly diagnosed

I was dx'd the week after you. I agree that it's no fun to be "welcomed" to this club, but I've found the information and encouragement from this group to be invaluable.

I don't know whether you...
Forum: her2group 06-15-2014, 10:54 AM
Replies: 27
Views: 6,328
Posted By linzer
Re: Encouragement Needed

I'm so new to this process that I feel like my words are inadequate, but I wanted to wish you well as you navigate this new challenge. I hope that you get answers from your oncologist so that you can...
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