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Search took 0.02 seconds; generated 95 minute(s) ago. Search: Posts Made By: DianneS
Forum: her2group 12-26-2009, 09:49 PM
Replies: 37
Views: 23,715
Posted By DianneS
Re: Bilateral mastectomy support group

Laurel,

Well, reconstruction won't work for me and I don't want to put myself thru surgery anymore. I am noticing so many women who are so flatchested and they don't seem to care.

I'm glad...
Forum: her2group 12-26-2009, 09:47 PM
Replies: 37
Views: 23,715
Posted By DianneS
Re: Bilateral mastectomy support group

Suzan,

You just look like a very happy person from your picture! If implants were needed I'd do it, but for vanity I don't think so. My thinking is that my body has undergone enough, what with...
Forum: her2group 12-26-2009, 09:44 PM
Replies: 37
Views: 23,715
Posted By DianneS
Re: Bilateral mastectomy support group

Celeste,

I am amazed at your panache! When you say you are a dancer, what kind of dancer are you? My daughter is an exotic dancer, until she finishes her RN degree. I think it's wonderful that...
Forum: Diet and Nutrition 12-25-2009, 06:44 PM
Replies: 10
Views: 5,929
Posted By DianneS
Re: Breast cancer, India & curry?

Dear Tanya,

I have read that some bc women are taking up to 800 mg (or IU, can't remember) of curcumin. One brand is called Life Extension with bioperine (pepper) - 5 mg. Is this a recommended...
Forum: her2group 12-24-2009, 09:47 PM
Replies: 37
Views: 23,715
Posted By DianneS
Re: Bilateral mastectomy support group

Thank you, ladies, for your responses. I don't feel quite so alone now!

I can't have reconstruction where tissue is taken from another part of my body, usually the abdomen, because I have a...
Forum: her2group 12-23-2009, 11:19 PM
Replies: 37
Views: 23,715
Posted By DianneS
Bilateral mastectomy support group

I had bilateral mastectomies in Sept. 2008. Though only one breast had DCIS/IDC, I did not trust either one anymore. I feel I made the right decision for me. But it was a difficult decision.
...
Forum: her2group 12-23-2009, 10:40 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Taking hormone therapy is a highly personal decision. I am weakly ER positive so hormone therapy would benefit me 4-6%. That is a very very minimal amount of benefit, considering the serious side...
Forum: Herceptin / Tykerb 12-05-2009, 05:19 PM
Replies: 689
Views: 477,663
Posted By DianneS
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I finished herceptin in Sept. and have noticed since stopping that I sometimes get what I call the chills. I get really cold even tho I am bundled up. Other times I get hot. It's very annoying. ...
Forum: her2group 11-30-2009, 10:58 PM
Replies: 21
Views: 4,214
Posted By DianneS
Re: Striking a Major Nerve

Hi lizm100,

Yes fear is a driving factor and doesn't say much about all the freedom one hears Americans are supposed to have. We have free speech here in Canada as well and are quite free to...
Forum: her2group 11-30-2009, 10:36 PM
Replies: 21
Views: 4,214
Posted By DianneS
Re: Striking a Major Nerve

For info on the Canadian healthcare system from a government website in Canada please read the following:

http://www.healthcoalition.ca/index-eng.pdf

I believe it's page 21 that talks about...
Forum: her2group 11-30-2009, 10:35 PM
Replies: 21
Views: 4,214
Posted By DianneS
Re: Striking a Major Nerve

For any curious folks who want to know about the Canadian healthcare system FROM the Canadians go to this government website. If you want info on a specific topic the table of contents can help you....
Forum: her2group 11-30-2009, 09:46 PM
Replies: 21
Views: 4,214
Posted By DianneS
Re: Striking a Major Nerve

Hi hutchibk - and others who posted,

Thanks for referring me to the article hutchibk.

I am suspect of what a Los Angeles journalist knows about healthcare in Canada. Has this person lived...
Forum: Herceptin / Tykerb 11-29-2009, 02:53 PM
Replies: 17
Views: 8,233
Posted By DianneS
Re: Allergic reaction to taxotere

I had taxotere with carboplatin and herceptin. I also had an allergic reaction to the taxotere within about 10-15 minutes of infusion - every time. They tried mixing up different pre-meds and that...
Forum: Herceptin / Tykerb 11-29-2009, 02:47 PM
Replies: 17
Views: 8,233
Posted By DianneS
Re: Allergic reaction to taxotere

Ursula,

I was reading your signature and noticed you are 15% ER and PR and you live in Finland. I am weakly ER positive, so I assume I am less than 15% but my onc here in Canada is saying I...
Forum: her2group 11-29-2009, 02:37 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Hi Debra,

I was taking the AI's with breakfast and vitamins, which I always take in the AM. I did the same thing when I began the Tamoxifen.

Why would I feel ok for the first week or so on...
Forum: her2group 11-29-2009, 02:28 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Hi Celeste,

I am working with a naturopath as well. I'd love to know what your naturopath suggests. I thought I'd list some of the suggestions from mine, below. Some of the supplements I was...
Forum: her2group 11-27-2009, 06:34 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Hi Debra,

Maybe I didn't give it long enough. I felt pretty yucky while on herceptin as well and my onc wanted to wait for a couple of months after I finished herceptin before he began the...
Forum: her2group 11-27-2009, 06:05 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Anyone weakly ER+ and NOT taking AI's or Tamoxifen?
Am I the only one in the world???

Dianne
Forum: her2group 11-27-2009, 06:04 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Debra,

I was almost ready to log off when I saw your message. Welcome to the club.....I forgot to say that to Marcia. Guess it's a club we'd rather not be in, eh? :)

I think you meant to...
Forum: her2group 11-27-2009, 05:55 PM
Replies: 22
Views: 5,076
Posted By DianneS
Re: The weakly er+ group

Hi Marcia,

Thanks for responding!

My doctor (I live in Canada) said that all of the AI and Tamoxifen trials included weakly ER+ and strong ER+ women so no way to tell how just the weakly...
Forum: her2group 11-27-2009, 05:45 PM
Replies: 21
Views: 4,214
Posted By DianneS
Re: Striking a Major Nerve

The healthcare crisis in the US has sparked lots of debates. I am a third generation Californian, was born & raised in Calif. My husband & I came to Canada 13 years ago to build a home and vacation...
Forum: her2group 11-27-2009, 05:02 PM
Replies: 22
Views: 5,076
Posted By DianneS
The weakly er+ group

I want to start a thread on women who are her2+ and weakly ER+. We are a small group and I feel left out.

I know many of you are strongly ER+, but please, I would like to hear from as many of us...
Forum: her2group 11-27-2009, 04:41 PM
Replies: 6
Views: 2,087
Posted By DianneS
Re: to those taking AIs, especially those who started on tamoxifen, switched AIs, or

My onc said exactly the opposite: he said I should take Tamoxifen for a year to build up the bones then switch to an AI. The AI would reduce bone density, he said, but I would be back to where I...
Forum: her2group 11-21-2009, 11:21 PM
Replies: 13
Views: 2,068
Posted By DianneS
Re: Echocardiogram question

ok, guys.....I will try and not worry too much about it.

I guess I should be more concerned that I can't take anything for my weak ER+. That's such a small group of women that I guess nothing...
Forum: her2group 11-21-2009, 11:16 PM
Replies: 15
Views: 3,018
Posted By DianneS
Re: PJ Hamel

Why isn't anyone talking about Meditherm, digital infrared thermal imaging, or DITI? It's a 15 minute non invasive test of physiology. It can help detect early stage breast disease or changes in...
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