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Search took 0.02 seconds; generated 96 minute(s) ago. Search: Posts Made By: KirisMum
Forum: her2group 05-06-2013, 05:46 PM
Replies: 21
Views: 6,989
Posted By KirisMum
Re: SBRT/Liver mets?

No experience, but if it helps any stereotactic radiation is a big thing here in New York; they're always talking about it. There's also something called TheraSphere, which is tiny little balls of...
Forum: her2group 05-06-2013, 05:42 PM
Replies: 14
Views: 3,307
Posted By KirisMum
Re: NOW this IS ASTOUNDING!!!!!

Congrats to you, Lani!!! and Congrats to us! :-))
Forum: her2group 04-23-2013, 06:13 AM
Replies: 62
Views: 10,824
Posted By KirisMum
Re: More Progression

Amanda, my heart goes out to you. When will they scan to see if the Abraxane is working? There are so many different kinds of tumors, that might just be the combo you need. You say you've only had a...
Forum: her2group 04-21-2013, 03:57 AM
Replies: 5
Views: 1,988
Posted By KirisMum
Re: synergism of herceptin+pertuzumab and their effect on bc stem cells IDd

I didn't realize that. How arbitrary and unfair. I can't imagine what the rationale behind limiting perjeta's availability that way could be. I'm so sorry. :-(
Forum: her2group 04-20-2013, 12:48 PM
Replies: 5
Views: 1,988
Posted By KirisMum
Re: synergism of herceptin+pertuzumab and their effect on bc stem cells IDd

Perjeta IS approved as a first-line treatment for Stage IV. My daughter, recently diagnosed as stage IV, is being treated with perjeta, herceptin and taxol as a first-line approach. I believe perjeta...
Forum: her2group 03-30-2013, 04:28 AM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

Thank you so much, ladies. We're doing a little better now. My husband and I are keeping busy, going for walks, and generally holding each other up (we've a rule that we both can't collapse at the...
Forum: her2group 03-29-2013, 05:20 PM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

Thanks so much, girls, for all your support and encouragement. To answer some of your questions, Kiri did have followups - the protocol at Dana is to scan only when there are symptoms. So she had a...
Forum: her2group 03-29-2013, 05:23 AM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

Jackie thank you very much for the link to Imerman Angels. I was looking for just such a group when K was first diagnosed. She is not a group joiner herself, but I've passed this on to her, as she...
Forum: her2group 03-28-2013, 08:01 PM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

Kiri called me tonight at work. She had just got out of her MRI. She was straight up, laid down the law for me, didn't let me speak. Mindful of my need to let her take control, I stayed quiet and...
Forum: her2group 03-27-2013, 07:29 PM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

Thank you all so much for your wonderful and caring replies. I can't tell you how much they all help. I feel as if I am living in a nightmare again, just praying to wake up, but with even more fear....
Forum: her2group 03-27-2013, 09:59 AM
Replies: 24
Views: 6,431
Posted By KirisMum
Re: Haven't been on this board for nearly 3 years

So good to hear you say "Keep the faith" again Bonnie. I needed that! She's at Dana again and they're pretty conservative, but if there's a clinical trial that's appropriate, I know they will...
Forum: her2group 03-27-2013, 05:41 AM
Replies: 24
Views: 6,431
Posted By KirisMum
Haven't been on this board for nearly 3 years

My daughter Kiri was diagnosed with Stage 2 IDC and DCIS in October 2010, successfully treated at Dana Farber with neoadjuvant chemo, surgery, chemo, radiation, herceptin, and tamoxifen. We thought...
Forum: her2group 12-05-2011, 05:11 PM
Replies: 6
Views: 2,264
Posted By KirisMum
Re: Help - Talk me down!

P.S.Tricia, where in Ireland are you? My family is from Ballsbridge and Belfast.
Forum: her2group 12-05-2011, 05:10 PM
Replies: 6
Views: 2,264
Posted By KirisMum
Re: Help - Talk me down!

Thanks, girls. I heartily appreciate the sanity! ProfBee, DON'T tell her I posted here!! She gets furious when I "spread her name all over the internet" - LOLOL. How are you doing?? You look...
Forum: her2group 12-05-2011, 02:11 PM
Replies: 6
Views: 2,264
Posted By KirisMum
Help - Talk me down!

Kiri has been doing so wonderfully lately--through her chemo and radiation and on Herceptin every three weeks and very active and happy, getting her life back, traveling - and I was just starting to...
Forum: her2group 08-20-2011, 02:03 PM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

You also might want to think about getting genetic testing, sweetsunflwr, for BRCA 1 & 2. it's a long shot, but with so much breast cancer in your family, I would want to have that issue settled (...
Forum: her2group 08-20-2011, 01:36 PM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

Chekmark, you've misunderstood. Her tumor was 1.5mm, not 1.5 cm - one-tenth the size of yours. Personally,I think your oncologist is giving you wise advice, sweetsunflwr. Treatment is not without its...
Forum: her2group 08-18-2011, 07:24 AM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

You might have to go farther afield for a second opinion - not sure how good an idea it is to stick with the same practice. I'm not sure where the nearest major cancer center to Wichita is - I'm in...
Forum: her2group 08-18-2011, 06:45 AM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

My daughter did lose her hair on Taxol. But it comes back, and there are wigs. Some people don't lose their hair, just get some thinning.

NEVER feel bad for asking questions!!! How do you think...
Forum: her2group 08-18-2011, 06:39 AM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

P.S. I just read the article myself, and your tumor was so small (1.5mm) that you may actually be getting the right treatment, as Herceptin is not recommended for tumors smaller than .5cm. Maybe...
Forum: her2group 08-18-2011, 06:35 AM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

Yes, you get it in an infusion, every three weeks generally. It doesn't take long - maybe half an hour or so. The protocol is often to start you off with some chemotherapy to make it "kick in,"...
Forum: her2group 08-18-2011, 06:18 AM
Replies: 60
Views: 16,270
Posted By KirisMum
Re: HER2 learning more is it a bad thing?

You need to be on Herceptin. At the time you were diagnosed, I'm not sure Herceptin was standard treatment for very small tumors, such as yours, but it is now. You need to stay on the Tamoxifen, as...
Forum: Caregivers Corner 07-16-2011, 01:35 PM
Replies: 23
Views: 24,976
Posted By KirisMum
Re: Grieving already

Oh Biddy I am so very sorry. My heart aches for you. I hope you and Kelly were able to share some precious times in the past few months that will help you get through this. Right now you must just be...
Forum: her2group 05-31-2011, 04:03 PM
Replies: 10
Views: 2,241
Posted By KirisMum
Re: SPAMMER ALERT/dish on the date and public information threads

Steph, who is Carlynda? She posted a nonsequitur on an old thread of mine today. She's not registered. Have we been invaded again?
Forum: her2group 04-27-2011, 01:58 AM
Replies: 33
Views: 6,199
Posted By KirisMum
Re: Brain MRI - Update

Oh, Kris, I am so happy to read this!!! I have been waiting for this kind of news from you. Sharing your happy dance!!
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