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Search took 0.02 seconds; generated 123 minute(s) ago. Search: Posts Made By: Janelle
Forum: her2group 04-17-2008, 06:42 PM
Replies: 3
Views: 1,610
Posted By Janelle
New Phase II Trial Info

Here is the email that I just received from Dr. Mittendorf:

Ms -

It was nice chatting with you today regarding our program using HER2/neu-derived peptide vaccines. As we discussed, it will...
Forum: her2group 04-17-2008, 05:49 PM
Replies: 3
Views: 1,610
Posted By Janelle
New Phase II Trial Info

Donna,
I will absolutely post more info when I receive it. I was expecting a follow up email today from Dr. Mittendorf but I haven't received anything yet. You could try to look her up on the MD...
Forum: her2group 04-17-2008, 11:26 AM
Replies: 3
Views: 1,610
Posted By Janelle
New Phase II Vaccine Trial information

Hi,
I contacted MD Anderson about enrolling in the E75 vaccine trial but learned that I probably won't qualify for the Phase III trial as it is not anticipated to start enrolling participants until...
Forum: Articles of Interest 03-02-2008, 01:24 PM
Replies: 3
Views: 1,734
Posted By Janelle
oncoplastic surgery

I am participating in the nipple sparing clinical trial that is being conducted by Dr. Mabry's practice. I am very happy with my results. Hopefully, the long term outcome will be in line with Dr....
Forum: her2group 01-21-2008, 01:26 PM
Replies: 55
Views: 12,251
Posted By Janelle
ER/PR percentages

Becky,
I'm actually not sure off hand and I am traveling now so I can't look at my path report. I initally thought I was highly Er/Pr positive but when I consulted with Slamon he told me I was...
Forum: her2group 01-21-2008, 10:46 AM
Replies: 55
Views: 12,251
Posted By Janelle
hormone positive and Her2

Dr. Slamon, one of the Herceptin developers) told me that Her2 cancers tend to be hormone negative or low hormone positive. I am a triple positve but he says I am mildly estrogen postive and low PR...
Forum: her2group 01-16-2008, 05:26 PM
Replies: 11
Views: 2,433
Posted By Janelle
Okay, that nursing assistant should be FIRED. ...

Okay, that nursing assistant should be FIRED. She has no idea if extra herceptin will be beneficial or not. Nobody knows yet as far as I can determine. I asked my onc about this last week and she...
Forum: her2group 01-15-2008, 12:02 PM
Replies: 23
Views: 4,589
Posted By Janelle
YOu won't start tamox until your finished with...

YOu won't start tamox until your finished with all chemo. You can take tamox and herceptin at the same time though. Just not with chemo or rads as far as I know.
Forum: her2group 01-15-2008, 10:58 AM
Replies: 23
Views: 4,589
Posted By Janelle
Gerri, I'm in your shoes....same conversation...

Gerri,
I'm in your shoes....same conversation with onc, same advice given.....I am 38 though so natural menopause is probably a bit later for me. I wish I knew the answer to this questions too.
Forum: her2group 01-12-2008, 02:55 PM
Replies: 23
Views: 4,589
Posted By Janelle
Katie, I had a normal CYP2DP test result. I...

Katie,
I had a normal CYP2DP test result. I don't have terrible symptoms from tamox. Is there another test us Her2 and hormonal positive women should be taking to see if the tamox is working for us?...
Forum: her2group 01-12-2008, 02:13 PM
Replies: 55
Views: 12,251
Posted By Janelle
I was 37 when I was diagnosed. Triple positive....

I was 37 when I was diagnosed. Triple positive. Details are in my signature.

I haven't had any children yet and did not take hormonal birith controls pills for any length of time. Birth control...
Forum: her2group 01-04-2008, 08:46 PM
Replies: 11
Views: 2,433
Posted By Janelle
I consulted with Dr. Slamon, the Herceptin guru...

I consulted with Dr. Slamon, the Herceptin guru and devoloper, and he said the one year mark is completely arbitrary and I should not worry if I can't finish out one year. He cited a European study...
Forum: her2group 01-04-2008, 08:39 PM
Replies: 9
Views: 2,473
Posted By Janelle
Shadow, I'm so happy you made a decision! ...

Shadow,
I'm so happy you made a decision! Congratulations. I experienced very few side effects from taxol and herceptin. It was a breeze for me expecially after 3 months of A/C. I hope you have...
Forum: her2group 12-27-2007, 10:14 PM
Replies: 30
Views: 4,197
Posted By Janelle
Joe and Christine, Thank you for this wonderful...

Joe and Christine,
Thank you for this wonderful site and your dedication in helping all of us. I am an active lurker and truly appreciate your dedication and all the support and information I have...
Forum: her2group 12-23-2007, 03:43 PM
Replies: 25
Views: 5,784
Posted By Janelle
Shadowpilot, I am no scientist but my...

Shadowpilot,
I am no scientist but my understanding is that even with small her2 positive tumors agressive treatment is warranted. I had very few side effects from taxol. I took it weekly for 12...
Forum: her2group 12-18-2007, 04:19 PM
Replies: 4
Views: 1,273
Posted By Janelle
I think that EF frequently go back up with a...

I think that EF frequently go back up with a break from Herceptin. Also, I consulted with Dr. Slamon about how long I should take Herceptin and asked him how concerned I should be if my LVEF dropped...
Forum: her2group 12-18-2007, 04:13 PM
Replies: 4
Views: 1,351
Posted By Janelle
Maybe you are anemic....Maybe your period pushed...

Maybe you are anemic....Maybe your period pushed you into an anemic condition. I hope you regain your energy soon!
Forum: Articles of Interest 11-23-2007, 11:49 AM
Replies: 9
Views: 3,915
Posted By Janelle
Red Wine

Okay, as an avid red wine drinker I like where this study is going....But I have been told by my onc to give up red wine which I have not done. I believe my onc's reasoning is that alcohol increases...
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