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Search took 0.17 seconds; generated 72 minute(s) ago. Search: Posts Made By: tousled1
Forum: her2group 10-22-2007, 12:02 PM
Replies: 12
Views: 2,478
Posted By tousled1
Kim, I was on Neurontin for a few years...

Kim,

I was on Neurontin for a few years back when I had my back surgery. You should never go off it cold turkey -- that may be one of the reasons your flashes became so bad. As with any...
Forum: her2group 10-22-2007, 12:01 PM
Replies: 6
Views: 1,355
Posted By tousled1
Unfortunately you can develop lymphedema at any...

Unfortunately you can develop lymphedema at any time -- even years down the road. Take Becky's advise and get a zpak
Forum: her2group 10-22-2007, 11:57 AM
Replies: 21
Views: 3,507
Posted By tousled1
Stephanie, Praying you get good results on...

Stephanie,

Praying you get good results on your scan.
Forum: her2group 10-22-2007, 03:02 AM
Replies: 7
Views: 1,352
Posted By tousled1
Cathy, So happy to hear that the MRI was...

Cathy,

So happy to hear that the MRI was clear - now that's one less thing to worry about. I'm sure the mastectomy in November will go fine. I'll keep you in my prayers.
Forum: her2group 10-22-2007, 03:00 AM
Replies: 10
Views: 1,977
Posted By tousled1
I will keep Jordan in my prayers.

I will keep Jordan in my prayers.
Forum: her2group 10-21-2007, 11:57 AM
Replies: 33
Views: 5,283
Posted By tousled1
Praying for a speedy and full recovery for your...

Praying for a speedy and full recovery for your husband Kent.
Forum: her2group 10-21-2007, 11:55 AM
Replies: 21
Views: 3,869
Posted By tousled1
Great news!

Great news!
Forum: her2group 10-21-2007, 11:53 AM
Replies: 36
Views: 5,719
Posted By tousled1
You can't believe everything you read. You have...

You can't believe everything you read. You have an excellent prognosis and if I were you I'd consider seeing another oncologist. I'm Stage IV and I'm planning on being here for a very long time. I...
Forum: her2group 10-20-2007, 09:21 AM
Replies: 3
Views: 1,505
Posted By tousled1
Pat, Good thing you insisted on the MRI - better...

Pat, Good thing you insisted on the MRI - better safe than sorry. I agree with Lolly. Ask your doctor for a mild sedative - I take Ativan and find that it's just enough to make me relax. I'll...
Forum: her2group 10-20-2007, 09:17 AM
Replies: 11
Views: 1,740
Posted By tousled1
Brenda, Great news - now you can breath a...

Brenda,

Great news - now you can breath a sigh of relief.
Forum: her2group 10-20-2007, 09:01 AM
Replies: 14
Views: 2,631
Posted By tousled1
Debbie, I developed a 5mm brain met only 3...

Debbie,

I developed a 5mm brain met only 3 months after my last Herceptin treatment. At first they thought it might just be somethng vascualr but sent me for an MRI to make sure - sure enough...
Forum: her2group 10-19-2007, 07:07 AM
Replies: 9
Views: 1,372
Posted By tousled1
I had a double mastectomy and still required...

I had a double mastectomy and still required radiation. Reason being I had so many lymph nodes that were cancerous.
Forum: her2group 10-19-2007, 07:03 AM
Replies: 8
Views: 2,001
Posted By tousled1
Thanks for the information Becky. I'm going to...

Thanks for the information Becky. I'm going to bring this up to my oncologist next week as I have a real problem with my white counts dropping. Yesterday I almost thought I wouldn't be able to get my...
Forum: her2group 10-19-2007, 06:58 AM
Replies: 8
Views: 2,169
Posted By tousled1
Magnolia, The only way they could see the...

Magnolia,

The only way they could see the new breast tumors would be by either doing a CT scan, PET/CT scan, or an MRI. I doubt they could just see them by looking.

And again, please make...
Forum: her2group 10-19-2007, 12:01 AM
Replies: 10
Views: 1,997
Posted By tousled1
John, Sending prayers your way. The waiting...

John, Sending prayers your way. The waiting for the results is the worst part. Please keep us posted.
Forum: her2group 10-18-2007, 11:49 PM
Replies: 8
Views: 2,169
Posted By tousled1
Magnolia, I too had neoadjunct chemo...

Magnolia,

I too had neoadjunct chemo (before surgery) to shrink a very large tumor. I had the "red devil", cytoxan and Taxatore. The treatment did indeed do it's job as the tumor shrunk to...
Forum: her2group 10-18-2007, 11:39 PM
Replies: 13
Views: 2,469
Posted By tousled1
MareJo, Love the humor!! Glad to hear the...

MareJo,

Love the humor!! Glad to hear the test is over and the polyps are removed. I'm sure pathology report will come back great!
Forum: her2group 10-18-2007, 11:32 PM
Replies: 25
Views: 4,575
Posted By tousled1
Bonnie, I had my first port put in the...

Bonnie,

I had my first port put in the left side upper chest as my breast cancer was in my right breast. I had a double mastectomy. I had the port removed after finishing my year of Herceptin...
Forum: her2group 10-18-2007, 11:26 PM
Replies: 36
Views: 4,802
Posted By tousled1
Sherry, I'm sorry your brother is going...

Sherry,

I'm sorry your brother is going through this. But remember never give up hope. I will keep him in my prayers.
Forum: her2group 10-18-2007, 11:22 PM
Replies: 17
Views: 3,055
Posted By tousled1
Sherry, You are probably feeling the way...

Sherry,

You are probably feeling the way you are because you most likely got a loading dose since you are switching to the every three week schedule. Give it a try as it does make your like...
Forum: her2group 10-16-2007, 11:08 PM
Replies: 1
Views: 1,471
Posted By tousled1
Exclamation Living with Metastatic BC - Ask the Expert

BreastCancer.org is having an online Conference and I'm passing this information on to anyone who may be interested.

Upcoming Ask-the-Expert Online Conference: Living with Metastatic Breast...
Forum: Keeping Your Mind Off of BC 10-16-2007, 10:49 PM
Replies: 42
Views: 9,898
Posted By tousled1
Brenda, Thanks for posting TipToe's...

Brenda,

Thanks for posting TipToe's itinerary.
Forum: her2group 10-16-2007, 10:42 PM
Replies: 13
Views: 2,769
Posted By tousled1
I was originally diagnosed October 2005 and...

I was originally diagnosed October 2005 and developed mets July 2007. That's 21 months from diagnosis to mets.
Forum: her2group 10-16-2007, 10:37 PM
Replies: 26
Views: 5,921
Posted By tousled1
Magnolia, I finished my original treatment...

Magnolia,

I finished my original treatment (including Herceptin) April 20, 2007 and I was diagnosed with a single brain met and mets to the lungs in July 2007. So you see, I metastisized very...
Forum: her2group 10-16-2007, 10:32 PM
Replies: 92
Views: 22,369
Posted By tousled1
Alaska Angel, You are correct that the...

Alaska Angel,

You are correct that the HER2 serum test is not approved for early breast cancer. It is however approved for monitoring advanced and Stage IV breast cancer.
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