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Search took 0.16 seconds; generated 82 minute(s) ago. Search: Posts Made By: Mtngrl
Forum: Profiles In Courage 10-25-2014, 06:06 AM
Replies: 11
Views: 32,103
Posted By Mtngrl
Re: Stage IV Survivors out there?

Dear Gift,

I, too, find StephN's story inspiring, especially when I read studies of long-term survivors who are ER-positive, or only have bone mets, or are oligometastatic (only one, or just a...
Forum: her2group 10-25-2014, 05:38 AM
Replies: 37
Views: 7,122
Posted By Mtngrl
A Place to Vent about "Awareness"

Several of us have strong opinions about "breast cancer awareness month." If you want, you can talk about them here.

Here's a blog post I wrote about it. http://www.durfeewest.com/pinktober-again/...
Forum: Herceptin / Tykerb 10-25-2014, 05:10 AM
Replies: 21
Views: 26,105
Posted By Mtngrl
Re: Severe breathlessness - heart/herc. or lungs?

Belinda,

What a huge relief! I'm so happy to hear this.

TDM-1 has been very, very effective for some people, with lasting results. Several folks on the board have been NED for an extended...
Forum: her2group 10-22-2014, 10:25 AM
Replies: 13
Views: 5,034
Posted By Mtngrl
Re: Liver mets....advice?

Embur,

As others have said, everyone's different and responds to treatments in different ways, but many of us have conquered liver mets, following different paths.

I was stage iv at diagnosis,...
Forum: her2group 10-22-2014, 10:13 AM
Replies: 10
Views: 5,930
Posted By Mtngrl
Re: New HER-2 iPhone App

That's one interpretation, but if the "an" prefix only referred to males, then "anthropology" would be the study of men and a "misanthropist" would not hate all of humankind, but only males. My...
Forum: her2group 10-22-2014, 09:57 AM
Replies: 20
Views: 6,591
Posted By Mtngrl
Re: End of my strength

Wow, Patty. I am so sorry you and your family are having such a rough time. As others have said, I can't imagine what that would be like. All I can do is send you good wishes and loving support.
Forum: her2group 10-22-2014, 09:53 AM
Replies: 49
Views: 15,174
Posted By Mtngrl
Re: Prayers for Kristin Schwick

Carol Ann,

I'm with you. October used to be my favorite month. No more.

Poor Kristin. It's so very sad.
Forum: her2group 10-03-2014, 09:58 PM
Replies: 13
Views: 23,013
Posted By Mtngrl
Re: "remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for Sta

I'm on Herceptin and Perjeta too, though I started out with no chemo and now I'm taking Xeloda, which I'm tolerating well.

The best thing about the "mab" drugs (stands for "monoclonal antibody")...
Forum: her2group 10-03-2014, 09:44 PM
Replies: 0
Views: 1,612
Posted By Mtngrl
LBBC Conference Videos

Here's a link to the session on metastatic breast cancer. https://www.youtube.com/watch?v=c7TrE9ttO6s

And here's a link to the session on ER/PR+ and HER-2+ breast cancers....
Forum: her2group 10-03-2014, 09:29 PM
Replies: 10
Views: 5,930
Posted By Mtngrl
New HER-2 iPhone App

I went to the LBBC fall conference last Saturday, and in the schwag bag I found a beautiful white journal from Genentech with a card announcing a new "4HER" app for iPhone to be released this month....
Forum: her2group 09-26-2014, 08:48 PM
Replies: 11
Views: 4,070
Posted By Mtngrl
Re: Chemo/GERD/ILD

I have a partial update.

One other thing I've been experiencing is dizziness and near-fainting. And I sometimes just run out of air through my larynx in the midst of talking or singing. I sing in...
Forum: her2group 09-26-2014, 08:28 PM
Replies: 22
Views: 6,945
Posted By Mtngrl
Re: Prayers needed... Scared

Keep in mind that your uterus and ovaries may protect you against heart disease. And you are very young to go into surgically-induced sudden menopause. You may find it unbearable, and then need...
Forum: her2group 09-26-2014, 08:13 PM
Replies: 8
Views: 2,504
Posted By Mtngrl
Re: Supplements/diet changes to prevent recurrence

The one thing that has actually been proven to reduce the chance of recurrence is moderate exercise. Walk 30 minutes a day.

Most supplements have not been proven, which doesn't mean they are...
Forum: her2group 09-26-2014, 08:04 PM
Replies: 0
Views: 1,528
Posted By Mtngrl
Live Webstreaming for LBBC Conference 9-27

Hi friends,

I'm in Philadelphia for the Living Beyond Breast Cancer Fall conference tomorrow. You can watch it from the comfort of your laptop at...
Forum: her2group 09-23-2014, 06:55 PM
Replies: 13
Views: 3,711
Posted By Mtngrl
Re: Fever & neutropenia

Penny,

I just said a prayer for you. I know our beloved Denise is watching over you too. And if I know Denise, the mere fact of dying did not interrupt her vigilant prayer ministry for all the...
Forum: her2group 09-23-2014, 06:44 PM
Replies: 10
Views: 2,953
Posted By Mtngrl
Re: T-Dm1: "'...decreased in size... density"

Thank you for sharing! I'm glad she's responding well to TDM-1.

I'm also impressed she's had lung mets for almost 14 years and has (apparently) been pretty stable. If I make it 14+ years I'll be...
Forum: her2group 09-22-2014, 07:19 AM
Replies: 2
Views: 1,970
Posted By Mtngrl
Re: Ok, I'm sure I should know this but what are Mets & micromets?

I think Nurse4u2day has it right.

Keep in mind there's a difference between "metastasis" and "stage IV." Metastasis is cancer cells traveling beyond the original tumor. Micromets are tiny clumps...
Forum: her2group 09-22-2014, 07:15 AM
Replies: 10
Views: 3,604
Posted By Mtngrl
Re: Interstitial lung disease and CEA levels

As I've said before, lungs are complicated!

I found an article a couple of years ago that said some lung lesions look like metastatic breast cancer but are actually benign. I remember when I was...
Forum: her2group 09-22-2014, 07:09 AM
Replies: 34
Views: 10,283
Posted By Mtngrl
Re: Frightening development with my daughter

Oh, my. That's very scary. I'm so sorry.

Thank you for letting us know what to pray about.
Forum: her2group 09-20-2014, 08:05 PM
Replies: 17
Views: 5,097
Posted By Mtngrl
Re: Dragon is back....need support

I don't know about radiation first-hand. Hopefully someone else will chime in. I do know several people who had it a long time ago and are fine. They don't have much hair, but they're well.

I...
Forum: her2group 09-20-2014, 08:02 PM
Replies: 16
Views: 5,725
Posted By Mtngrl
Re: One of the original ladies on first Herceptin trial alive and doing well.

Thank you! That's fantastic.

Last time I checked, Barbara Bradfield (played by Bernadette Peters in the movie "Living Proof") was also still alive. I did a quick search and didn't find her this...
Forum: her2group 09-20-2014, 07:46 PM
Replies: 10
Views: 3,604
Posted By Mtngrl
Re: Interstitial lung disease and CEA levels

I'm so sorry you're facing progression. I hope this new course will get you stable again.

I have never had tumor markers. Sometimes I think that might be a good thing.
Forum: her2group 09-14-2014, 07:55 PM
Replies: 11
Views: 4,070
Posted By Mtngrl
Re: Chemo/GERD/ILD

Dear Cat,

Oh, I hope this helps you!

It's so complicated, all the effects and side effects. I can say I'm doing much better. I took a nice deep breath when I woke up this morning and didn't...
Forum: her2group 09-14-2014, 06:12 PM
Replies: 11
Views: 4,070
Posted By Mtngrl
Re: Chemo/GERD/ILD

Caya,

I didn't have asthma before breast cancer treatment.

I've figured out that lungs are complex.

Good to hear from everyone. I think I'm going to get this resolved--soon I hope.
Forum: her2group 09-14-2014, 08:33 AM
Replies: 11
Views: 4,070
Posted By Mtngrl
Re: Chemo/GERD/ILD

I didn't list all the symptoms of GERD, or all the aggravating factors. Here are some links.

http://www.aafp.org/afp/2008/0815/p483.html

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1681743/
...
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