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Search: Posts Made By: Julie2
Forum: her2group 12-18-2010, 11:09 AM
Replies: 6
Views: 8,700
Posted By Julie2
Re: anyone on navelbine / herceptin?

I was on Navelbine for three years taking it off and on. Each time I used it only for 4 cycles as I had complete response. But the 4th time I had progression while on the drug and had to go off. The...
Forum: her2group 12-16-2010, 08:28 PM
Replies: 31
Views: 4,996
Posted By Julie2
Re: Mixed reviews on scans while on tdm-1

Wonderful news Shiela! I am very thrilled for this new drug.

Julie
Forum: her2group 12-11-2010, 12:33 PM
Replies: 17
Views: 2,720
Posted By Julie2
Re: Anybody did University of Washington adoptive T cell therapy?

Courtney,

Thank you very much for a detailed message. I hope this vaciine and T cell therapy will work well and give us hope for the future.

Thanks,
Julie
Forum: her2group 12-05-2010, 11:32 AM
Replies: 17
Views: 2,720
Posted By Julie2
Anybody did University of Washington adoptive T cell therapy?

Is there anybody who participated in the adoptive T cell therapy clinical trial from University of Washington?
I would really appreciate if somebody can share their experiences and how they are...
Forum: her2group 11-12-2010, 02:35 PM
Replies: 44
Views: 10,552
Posted By Julie2
Re: Freaking Out! Abnormal chest xray after 7 years

Michelle,
My prayers are with you. Hope everytjign turns out to be OK.

Julie
Forum: her2group 11-08-2010, 04:38 PM
Replies: 6
Views: 2,524
Posted By Julie2
Re: asthma medication found to work against breast cancer stem cells(including her2+o

Anybody tried Tranilast? It looks really promising.

Julie
Forum: her2group 11-07-2010, 04:47 PM
Replies: 6
Views: 2,524
Posted By Julie2
Re: asthma medication found to work against breast cancer stem cells(including her2+o

Looks very promising. I am really tempted to use it for my lung mets. Hope it is available here.

Julie
Forum: her2group 11-07-2010, 08:37 AM
Replies: 55
Views: 10,179
Posted By Julie2
Re: Lost my Mom today

Shiela,
Sorry for your loss. My condloenses for you and your family.
Julie
Forum: her2group 10-09-2010, 08:09 AM
Replies: 33
Views: 5,764
Posted By Julie2
Re: Courtney, how are you?

Courtney,

Thinking about you. Hope everything is going well as you planned.

Julie
Forum: her2group 10-01-2010, 05:17 PM
Replies: 48
Views: 7,624
Posted By Julie2
Re: I'm in the tdm-1 eap!!!!!!

I am so, so happy for you Sheila. Long awaited good news.

Julie
Forum: her2group 09-11-2010, 10:10 AM
Replies: 35
Views: 5,257
Posted By Julie2
Re: Would appreciate prayers

Tricia,

You are in my prayers and thoughts. I wish everything turns out to be OK.

Julie
Forum: her2group 08-18-2010, 02:16 PM
Replies: 24
Views: 4,386
Posted By Julie2
Re: JOE laid to rest

Christine and the family are in my thoughts and prayers. They will get all the support they need.

JUlie
Forum: her2group 08-13-2010, 03:12 PM
Replies: 7
Views: 1,470
Posted By Julie2
Re: Me again, need answers, please

Adriana,

I saw your signature and you are eligible for TDM1 EAP. If there is a center near you who offers it, it doesn't take much time to start the drug. You just need to have the recent scan...
Forum: her2group 08-13-2010, 03:06 PM
Replies: 32
Views: 4,968
Posted By Julie2
Re: I am Fine - but bad new for my sister

Becky,

You and your family are my prayers. Hope everything turns out to be OK.

Julie
Forum: her2group 08-13-2010, 03:03 PM
Replies: 139
Views: 34,100
Posted By Julie2
Re: Joe passed on this evening

I am so sad to hear about Joe. I am really depressed and feel pain in my heart. He was such a wonderful person, we didn't know that he had been going through all this pain.

I am so sorry and my...
Forum: her2group 08-12-2010, 01:47 PM
Replies: 40
Views: 6,284
Posted By Julie2
Re: A Rainbow of Hope FINALLY!!!!

Sheila,

I am so happy for you. You deserve this much needed good news.

Julie
Forum: her2group 08-10-2010, 08:09 AM
Replies: 31
Views: 5,779
Posted By Julie2
Re: Trying not to panic

Pam,

TDM1 EAP does not require you to be having mesurable disease. I think you can easily get accepted, please try it soon.

Julie
Forum: her2group 08-09-2010, 01:51 PM
Replies: 2
Views: 1,494
Posted By Julie2
Effect of Herceptin cycle on Scan results

Hi All,

Can the scan results be effected by on which day during the Herceptin cycle we get the scan?

I got my PET/CT scan a week after I got my 3 week dose of Herceptin. My san results...
Forum: her2group 07-30-2010, 08:28 PM
Replies: 8
Views: 1,490
Posted By Julie2
Re: Please give me some suggestions

Thanks for all the advices. I think my oncologist's idea was that TDM1 was very effective even for people who used multiple prior chemos and it is a better drug to keep when the body is exposed to...
Forum: her2group 07-30-2010, 08:14 PM
Replies: 54
Views: 7,919
Posted By Julie2
Re: It's back...

Cheele,

Tykerb and Herceptin is not a bad option when disease is not that big. In addition to that I think it is better to get the axilla lymph node removed. You don't need to run out of options...
Forum: her2group 07-29-2010, 07:22 AM
Replies: 8
Views: 1,490
Posted By Julie2
Re: Please give me some suggestions

Barbara,

Thank you very much for your kind advice. I am still waiting for my scan. My mind is not at rest during this period. Trying best to control my thoughts.

Julie
Forum: her2group 07-28-2010, 08:44 AM
Replies: 8
Views: 1,490
Posted By Julie2
Please give me some suggestions

I am on Navelbine for the fourth time in 3 years for mets in mediastinal nodes. Every time I used it only for 3 cycles and stopped as I reached NED with it. Whenever I reached NED I stopped Navelbine...
Forum: her2group 06-30-2010, 02:11 PM
Replies: 15
Views: 2,623
Posted By Julie2
Re: good scan results "down under"

Jackie,

Congratulations for a good scan. I have a question regarding your suppliments.
Do you take Curcumin while you are on chemo? Which day of the week you take it? or you take it all the days?...
Forum: her2group 06-28-2010, 03:16 PM
Replies: 5
Views: 1,343
Posted By Julie2
Re: ASCo report--the more things change, the more things change

Lani,

Just want to find out if doing biopsy of CTCs is a proven method and whether oncologists will agree to do that.

As Brenda mentioned I have mediastinal mets and I would like them to see if...
Forum: her2group 05-24-2010, 01:58 PM
Replies: 75
Views: 13,397
Posted By Julie2
Re: Update on our sister Sheila

Sheila,

Thinking about you and wishing you a fast recovery after the procedure. Please let us know how you are doing as soon as you can.

Julie
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