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Search: Posts Made By: Myra Lynn
Forum: her2group 07-28-2011, 05:13 AM
Replies: 14
Views: 4,630
Posted By Myra Lynn
Re: trigger finger

You have both given me some real options and a lot of hope. I am most grateful.
Forum: her2group 07-27-2011, 10:34 PM
Replies: 14
Views: 4,630
Posted By Myra Lynn
trigger finger

I'm having a hard time with joint pain and recently developed a "trigger finger" in my right thumb (in addition to mild swelling in middle finger). I'm starting to lose use of the thumb. Had...
Forum: her2group 07-18-2011, 06:59 AM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Good news! The PET scan was completely clear. Will take another blood test end of August and take it from there. I am so relieved and grateful to all of you for your support. I don't know what I...
Forum: her2group 07-12-2011, 07:47 PM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

You got that one right, Chrisy!
Thanks for the well-placed humor. And just to add to the fun, I am right in the middle of the prep for a colonoscopy. (Got any more bad jokes?)
I don't know how I...
Forum: her2group 07-12-2011, 02:20 PM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Thanks everyone,
I don't know if it's exactly the same substance as Cosamin DS, but I also highly recommend glucosamine sulfate.
The MRI to my head came back negative. I asked for it because of...
Forum: her2group 07-11-2011, 07:21 PM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Hi Sassy,
I'm trying to change my signature. I have lost the sense of where that is and how you do it.
Your help is very welcome.
Forum: her2group 07-08-2011, 05:53 AM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Thanks Ishy. I so appreciate the support. Yes, it was from femara. Very severe pain. Took a month off; switched to Arimidex. Still a little swollen, but tolerable.
Forum: her2group 07-07-2011, 08:47 PM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Thanks for the help and the kind thoughts.
Forum: her2group 07-07-2011, 11:14 AM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

My CA27.29 numbers started inching up, right after finishing Herceptin. Had a PET scan in Oct. 2010, but nothing conclusive. The numbers continue to rise, so now I am scheduled this Sat. for a Head...
Forum: her2group 06-30-2011, 05:53 AM
Replies: 16
Views: 5,078
Posted By Myra Lynn
Re: CA27.29 ups & downs

Thanks for the feedback, Becky. All of my blood test numbers are all over the place too, above and below the norm, but this one , when it exceeds 38, is raising concern. I don't know if there is...
Forum: her2group 06-29-2011, 03:51 PM
Replies: 16
Views: 5,078
Posted By Myra Lynn
CA27.29 ups & downs

Hello to everyone,
I am wondering what you might think or know of this: I am having follow-up blood tests and physical exams every 3-4 months. For some unknown reason the CA27.29 numbers are going...
Forum: her2group 06-22-2011, 10:18 PM
Replies: 19
Views: 3,262
Posted By Myra Lynn
Re: Is weekly Herceptin common?

I did have it weekly for the full 52 weeks. Seemed to go fine.
Forum: Clinical Trials 10-08-2010, 03:49 PM
Replies: 30
Views: 18,292
Posted By Myra Lynn
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Thanks Didi & everyone else,

First the good news: It looks like there is NED based on the results of the PET/CT scan. I will take a blood test in 2 months to make sure my numbers hold.

I...
Forum: Clinical Trials 10-05-2010, 12:17 PM
Replies: 30
Views: 18,292
Posted By Myra Lynn
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Hi Didi,
I have just finished Herceptin and am waiting to discuss the results of a PET/CT scan. Assuming I am OK, I was interested in the vaccine trials. I think that being pro-active is a good...
Forum: Diet and Nutrition 05-16-2010, 08:13 AM
Replies: 6
Views: 4,079
Posted By Myra Lynn
Question about Vitamin C

Does anyone know what the prevailing wisdom says about Vitamin C through food or supplements once you're finished with chemo & radiation? I know about the Sloan Kettering study, but don't know if I...
Forum: Articles of Interest 01-24-2010, 06:40 PM
Replies: 3
Views: 2,173
Posted By Myra Lynn
Re: looking for an article on radiation

Thanks for the help from everylone.
I have started radiation & femara at the same time & continue with Herceptin. There is some idea that there is a synergistic effect.
Forum: Articles of Interest 01-23-2010, 06:37 PM
Replies: 3
Views: 2,173
Posted By Myra Lynn
Re: looking for an article on radiation

I am replying to myself. I did find the article. It was the one provided by Rich66. It is not specific to HER2+, but does speak to the resiliency of cancer stem cells.
Forum: Articles of Interest 01-23-2010, 05:57 PM
Replies: 3
Views: 2,173
Posted By Myra Lynn
looking for an article on radiation

I posted this earlier under Newcomers, but thought it might make sense to post it here as well.

I believe I read an article posted by a member that had to do with the special nature of HER2 +,...
Forum: her2group 01-22-2010, 04:32 PM
Replies: 17
Views: 2,265
Posted By Myra Lynn
Re: Graduation Day!

Alice,
Your Graduation has really made my day. Congratulations! And thank you for sharing your anxious feelings as well as that great picture. I can certainly relate to both states (and that's a...
Forum: General Cancer News 01-22-2010, 04:12 PM
Replies: 1
Views: 947
Posted By Myra Lynn
Re: Hi This is my first post

Welome, fapsEpila! I couldn't agree more with you about this forum. We are all very sorry to be here, but so thankful for the help and support.

My daughter lives in Vienna & has been...
Forum: Clinical Trials 01-01-2010, 06:02 PM
Replies: 17
Views: 12,352
Posted By Myra Lynn
Re: Mayo Clinic Vaccine Trial MUC1/Neuvax

Interesting. I like the idea of targeted approaches (like Herceptin) rather than "slash & burn" (chemo). Just a practical question: Does anyone know if you have to get to a Mayo Clinic to...
Forum: her2group 12-31-2009, 09:02 AM
Replies: 3
Views: 1,498
Posted By Myra Lynn
Re: concerned about what's next

Rich66 & Cannon,
Many thanks. It is always helpful to hear other's experiences and points of view. I ruminate, then decide what to do & have made good choices so far, with great input. Always...
Forum: her2group 12-30-2009, 09:15 PM
Replies: 3
Views: 1,498
Posted By Myra Lynn
concerned about what's next

I have not been here for awhile, but from the beginning of this journey, have valued everyone's input. Happy to say that I am done with chemo (12 weekly treatments of taxotere, cytoxin,...
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