HonCode

Go Back   HER2 Support Group Forums > Search Forums
Reload this Page Search Results
Register Gallery FAQ Members List Calendar Today's Posts

Page 2 of 20 1 2 3412 Last »
Showing results 26 to 50 of 500
Search took 0.15 seconds; generated 79 minute(s) ago. Search: Posts Made By: Mtngrl
Forum: her2group 05-30-2017, 07:18 PM
Replies: 45
Views: 25,841
Posted By Mtngrl
Re: Port or No Port?

Update: Tomorrow's the day! I'll get a port put in, then get my first infusion of navelbine, which is a vesicant, a class of drug that can cause severe tissue damage if it leaks out of the IV. My new...
Forum: her2group 05-18-2017, 08:46 AM
Replies: 8
Views: 7,473
Posted By Mtngrl
Re: 11 years!

That's great, Melissa!

Many happy returns.

Amy
Forum: her2group 05-17-2017, 05:18 PM
Replies: 28
Views: 18,589
Posted By Mtngrl
Re: Brief Update

Tiffany,

I'm so sorry about the pneumonia and collapsed lung. That can take a lot out of a person. (I know from personal experience.)

I hope you get a good response to the TDM-1. Most people...
Forum: her2group 05-17-2017, 05:11 PM
Replies: 12
Views: 8,104
Posted By Mtngrl
Re: A Blessing From Cancer

That's so fantastic! I'm really, really happy for you. So amazing that you got a baby out of the deal!

Live, love, thrive, and enjoy!

Amy
Forum: her2group 05-12-2017, 08:16 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

Lauren,

Here's what my oncologist said in an email to me:

"The discussion at the Molecular Tumor Board on Friday suggests that perhaps your tumor has become resistant to HER2 targeted...
Forum: her2group 05-12-2017, 06:44 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

Thank you, Joan. Good food for thought.

Hey, all, I've been misspelling the amplification. It's MYC and not MYK. There are various kinds of MYC. They are all oncoproteins.

In my Foundation One...
Forum: her2group 05-12-2017, 04:24 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

Update: The tumor board looked at the Foundation One report and saw things that might indicate I'm becoming resistant to HER2 antibodies. They said I should do a tyrosine kynase inhibitor instead of...
Forum: her2group 05-12-2017, 04:07 PM
Replies: 15
Views: 9,166
Posted By Mtngrl
Re: twelve years !

Thank you so much for posting this! I'm sure it will encourage others. And good for you for 12 years NED after your scary, sucky diagnosis.

Amy
Forum: her2group 05-07-2017, 11:47 AM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

Good luck on Kadcyla, Tiffany. It is a good drug. I hope it helps you for a good long time.

Amy
Forum: her2group 05-07-2017, 11:43 AM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

I can't actually find the link for the MYK trial. I searched for it on the BCT site. I'll update when I know more.

I was nonchalant about the collapsed lung because it doesn't hurt and my O2...
Forum: her2group 04-25-2017, 05:33 PM
Replies: 14
Views: 7,571
Posted By Mtngrl
Re: Surprise from my biopsy

My onc doesn't think the PR factor is anything to get excited about. It's too weak.

Also there are no drugs for it. They use the same stuff as for ER+.

Onward and upward. . . .
Forum: her2group 04-25-2017, 05:27 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

Good question, Kat. I'm sure they'll tell me if I go down that road.

Everything out here in "outlier" land is unknown. If I'm going to do a Phase 1 it would be best to do it while I'm relatively...
Forum: her2group 04-25-2017, 04:45 PM
Replies: 11
Views: 8,103
Posted By Mtngrl
Laurie7 has died

This member joined the board about the same time time I did. She was only 31 in 2006 when she was first diagnosed with breast cancer. RIP, Laurie.

Laurie A. Fiumefreddo, 43, of Pingree Grove,...
Forum: her2group 04-25-2017, 04:34 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
Re: New Plan

Dear Becky,

Thank you so much for raising those points. And it came at a great time.

The molecular tumor board thinks they see evidence that I'm developing some resistance to Herceptin, and...
Forum: her2group 04-24-2017, 07:00 PM
Replies: 20
Views: 12,296
Posted By Mtngrl
New Plan

I had some progression on Eribulin & Herceptin, including a partially collapsed right lung. It doesn't hurt and my O2 levels are OK. But still. . . . I would prefer to get the detectable cancer...
Forum: her2group 04-24-2017, 06:19 PM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

My oncologist agrees that chemo is a double-edged sword. It can kill the cancer, but it suppresses the immune system, which may hinder Herceptin and Perjeta in doing their job helping my body handle...
Forum: her2group 04-19-2017, 07:49 AM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

Juls--Abraxane and Taxol have the same active ingredient (Paclitaxel). The difference is the stuff they're dissolved in. Interestingly, I got an email from my oncologist yesterday saying perhaps I...
Forum: her2group 04-18-2017, 05:04 PM
Replies: 14
Views: 7,571
Posted By Mtngrl
Re: Surprise from my biopsy

Tiffany--

I heard somewhere that HER2 status doesn't usually change over time. But since it had been four years since I had a biopsy, my doctor wanted to be sure.

"Stable" is just as good as...
Forum: her2group 04-18-2017, 04:26 PM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

I'm on Herceptin and Perjeta as a maintenance treatment, and it's the third time I've been on it. I also had two go-rounds with Kadcyla. Others on this board have said that once a drug "fails" it's...
Forum: her2group 04-14-2017, 01:12 PM
Replies: 14
Views: 7,571
Posted By Mtngrl
Re: Surprise from my biopsy

Thanks, Fern. That's good information.

Unless my bone met is hormone receptor positive I won't be able to be on only targeted treatments. It acts like it's triple negative, or at least not HER2...
Forum: her2group 04-14-2017, 08:10 AM
Replies: 6
Views: 12,843
Posted By Mtngrl
Re: Alternative Meds?

Dear Katt,

I live in Colorado, which has had medical marijuana for some time. People are always asking me if I use it.

I think the reason you can't find good evidence for efficacy is that ...
Forum: her2group 04-14-2017, 07:30 AM
Replies: 14
Views: 7,571
Posted By Mtngrl
Re: Surprise from my biopsy

I was on an AI (Arimidex) with Herceptin when my one bone met developed and I had some other progression.

I haven't had any of the vinca drugs. It's my understanding that I'd have to get a port...
Forum: her2group 04-13-2017, 11:40 AM
Replies: 14
Views: 7,571
Posted By Mtngrl
Surprise from my biopsy

Hello, friends.

My oncologist recommended that I get a lung biopsy, since cancer mutates and I hadn't had a biopsy in about four years. So I got that done on March 23.

To my relief, the lung...
Forum: Clinical Trials 04-10-2017, 02:58 PM
Replies: 6
Views: 22,654
Posted By Mtngrl
Re: Has anyone been on Neratinib?

I talked to my oncologist abut neratinib. She said the people who do best on it have a mutation in their HER2 cells. Garden-variety HER2 amplification doesn't respond as well. Just thought I'd pass...
Forum: her2group 04-10-2017, 02:53 PM
Replies: 56
Views: 26,098
Posted By Mtngrl
Re: Kadcyla - Scotland

Juls,

Those stories are kind of scary. If I were you I'd have questions.

I'm glad people in Scotland can get Kadcyla from your health service now. It's pretty darn expensive.

Best wishes,...
Showing results 26 to 50 of 500
Page 2 of 20 1 2 3412 Last »

 
Forum Jump

All times are GMT -7. The time now is 01:11 AM.
Contact Us - HER2 Support Group - Archive - Privacy Statement - Top

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter