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Search took 0.11 seconds; generated 79 minute(s) ago. Search: Posts Made By: Joan M
Forum: her2group 08-14-2017, 05:50 PM
Replies: 4
Views: 6,761
Posted By Joan M
Northwest MBC conference

Fred Hutchinson in Seattle is having a conference for those of us living with MBC, September 22-23. You can apply for a travel grant to cover some of the cost of travel and hotel. I will be attending...
Forum: her2group 08-01-2017, 06:34 PM
Replies: 42
Views: 28,952
Posted By Joan M
Re: Phooey--Brain Mets

Amy,

I'm hopeful that the targeted rads will eliminate the mets. Good luck with the treatment!

All my best,

Joan
Forum: her2group 05-12-2017, 06:07 PM
Replies: 20
Views: 12,296
Posted By Joan M
Re: New Plan

Amy,

It does take a village, and it seems like you have one. At least it appears that you have options, and you're now aware of a phase 1 trial based on your genomic testing.

Back in a January...
Forum: her2group 01-20-2017, 06:07 PM
Replies: 40
Views: 26,761
Posted By Joan M
Re: 15 years stage IV - no drugs in 8yrs - still NED

Congratulations, Steph! Great news for the new year!

Best always, Joan
Forum: Herceptin / Tykerb 10-27-2016, 04:11 PM
Replies: 1
Views: 8,468
Posted By Joan M
Some clues to resistance

Just read this story in Science Daily. It discusses mutations that may contribute to survival.

https://www.sciencedaily.com/releases/2016/08/160817185346.htm#.WBKBb9p

Joan
Forum: her2group 09-09-2016, 04:34 PM
Replies: 28
Views: 18,425
Posted By Joan M
Re: Local treatment in lungs?

Amy,

Praying for success in treating your lung mets.

Joan
Forum: her2group 09-09-2016, 03:59 PM
Replies: 4
Views: 5,158
Posted By Joan M
Re: Circulating tumor cells

Amy,

Thanks for your reply and the links. I'm going to start working on getting a test. To get around my onc's resistance.

Joan
Forum: her2group 09-02-2016, 05:01 AM
Replies: 4
Views: 5,158
Posted By Joan M
Re: Circulating tumor cells

Did your test ever show circulating cells? I'm assuming that it doesn't show them now. It seems like Dr. G is using the test to keep an eye on you.
Forum: her2group 08-30-2016, 07:01 AM
Replies: 4
Views: 5,158
Posted By Joan M
Circulating tumor cells

Has anybody had a circulating tumor cell or circulating cell-free DNA test? If so, what is the name of the test or the name of the outside lab (like Foundation One, etc.), if the test was done...
Forum: her2group 08-15-2016, 05:40 AM
Replies: 18
Views: 11,416
Posted By Joan M
Re: CEA: How low can you go?!

Cathy, A great score! Joan
Forum: her2group 08-15-2016, 05:37 AM
Replies: 28
Views: 18,425
Posted By Joan M
Re: Local treatment in lungs?

I've had mixed results with local procedures.

First, a lung wedge resection in April 2007 for a solitary met. However, the cancer recurred in the same area of the lung a year later. To treat it, I...
Forum: her2group 06-18-2016, 08:30 AM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

As it turns out, the HERMIONE clinical trial is phase 2, not phase 3.

Merrimack sent a pdf that details the trial, but here is a link to the web version of that document. Except for never having...
Forum: her2group 06-18-2016, 08:24 AM
Replies: 2
Views: 3,761
Posted By Joan M
Re: Hello, to my Canadian sisters

Hey, Laurel,

Good to see that you're doing well!! I'm sure the if the group still had a booth at SABCS, you'd be there like before. As it turns out, many of the groups that used to have booths...
Forum: her2group 06-17-2016, 06:17 AM
Replies: 12
Views: 4,826
Posted By Joan M
Re: Subcutaneous Herceptin

Excellent news. Thanks for sharing it.

Joan
Forum: her2group 06-13-2016, 10:45 AM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

PS Here's more information about the MM-302 clinical trial, HERIMONE, from the company's website with links for further information. Also, the site notes the trial as Phase 2, but at the meeting the...
Forum: her2group 06-11-2016, 03:14 PM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

Hi Steph,

Good idea about adding the update!

I was thinking of Chrisy. She was in the phase I trial for MM-302, after her stellar run on T-DM1 clinical trial. She had become Genentech's poster...
Forum: her2group 06-10-2016, 07:27 PM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

Micha, Good to hear from you!!

... And Lani, you know that I love you, but just a gentle reminder that the chemotherapy failed the patient, not the other way around. :)
Forum: her2group 06-09-2016, 02:16 PM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

SoCalGal, I think our posts crossed in cyberspace!! Glad to see that you're still on the board. We joined around the same time. Joan :)
Forum: her2group 06-09-2016, 02:12 PM
Replies: 13
Views: 7,684
Posted By Joan M
Re: MM-302: HERMIONE study

I'm not certain about your reference to tofacitinib. I know that it's used for rheumatoid arthritis. Does it also have another indication for cancer, or in particular HER2+ breast cancer?

Have you...
Forum: her2group 06-09-2016, 07:41 AM
Replies: 2
Views: 4,003
Posted By Joan M
Re: Laser Assisted Pulmonary Metastasectomy

I haven't exactly heard of this procedure. However, you may want to contact Dr. Steven Chmura at University of Chicago about a clinical trial that is using local procedures along with systemic...
Forum: her2group 06-09-2016, 07:19 AM
Replies: 2
Views: 3,761
Posted By Joan M
Thumbs up Hello, to my Canadian sisters

While at ASCO I had to pleasure to meet Cathy Ammendolea of Quebec who was at the conference representing the Canadian Breast Cancer Network.

I'm sure that all of you know about this great...
Forum: her2group 06-09-2016, 07:09 AM
Replies: 13
Views: 7,684
Posted By Joan M
Thumbs up MM-302: HERMIONE study

Hello ladies and (of course) some gents,

At ASCO I met with representatives from Merrimack who is now conducting a Phase III clinical trial of MM-302 for anthracycline naive, MBC patients who are...
Forum: her2group 03-07-2016, 07:04 AM
Replies: 17
Views: 7,671
Posted By Joan M
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

Thanks for posting this information. I guess I would be considered to be a long-term survivor since I've been NED since Oct. 2008, after having two lung recurrences and one brain met. I'm still on...
Forum: her2group 12-14-2015, 02:32 PM
Replies: 15
Views: 10,316
Posted By Joan M
Re: The metastatic breast cancer alliance

Andi,

Thanks for pointing out the MBCProject. I filled out the form about a month ago.

I believe Corrie Painter is an angiosarcoma survivor, and that the lump was found in her breast. The...
Forum: her2group 11-29-2015, 12:18 PM
Replies: 5
Views: 10,459
Posted By Joan M
Re: For Reference: Symptoms of brain mets

I never had any symptoms with the 2.6 cm lesion in the left frontal lobe. The tumor was found incidentally on a second, annual routine scan ... which I had convinced my oncologist to start doing...
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