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Search took 0.14 seconds; generated 79 minute(s) ago. Search: Posts Made By: KDR
Forum: her2group 05-06-2015, 03:43 PM
Replies: 18
Views: 5,547
Posted By KDR
Re: Liver Enzymes Up Again...

Penny,
You are close enough to a doctor I know who can get your liver back in shape. PM if you want details. L-Glutathione via IV is my strong recommendation.
Best,
Karen
Forum: her2group 05-02-2015, 05:44 PM
Replies: 11
Views: 3,234
Posted By KDR
Re: Not the end of the world

YanYan,
Take the trips. It'll do you good. Try not to worry until you really have something to worry about. It's nothing until it's something, right?
I am totally confident that you will be...
Forum: her2group 04-27-2015, 04:47 PM
Replies: 13
Views: 4,919
Posted By KDR
Re: Spreading My Thanks

Not any more!! Check out a good one at Duke. AVX, I think! Advanced breast cancer patients accepted.

Best of luck!

Karen
Forum: her2group 04-27-2015, 10:48 AM
Replies: 13
Views: 4,919
Posted By KDR
Re: Spreading My Thanks

Penny, you are such a hero. You and I started out at the same time, huh? I really think you should look into an immunotherapy treatment at this point. You've made it this far for a reason! Red...
Forum: her2group 04-24-2015, 08:45 PM
Replies: 13
Views: 4,919
Posted By KDR
Re: Spreading My Thanks

Laurel...have always loved your wit...and wisdom

Everyone here is someone very special...too many to mention

Just today was a high-point day,

Love
Karen
Forum: her2group 04-24-2015, 10:06 AM
Replies: 13
Views: 4,919
Posted By KDR
Spreading My Thanks

I am just about to embark on my sixth year of treatment. Over time, there are few people who have sheltered me in my greatest storms...

Phil and Lorraine McCartin, you are two of the most amazing...
Forum: her2group 04-24-2015, 09:50 AM
Replies: 60
Views: 25,628
Posted By KDR
Re: Cancer in Spinal Fluid - given 6 months

Carol Ann, I LOVE your fire! Saygoon, how are you, love?
Karen
Forum: her2group 04-24-2015, 09:14 AM
Replies: 10
Views: 3,099
Posted By KDR
Re: Frustrated

Kathryn,
One key is supplements. My liver function is normal due to Zemplar. a vitamin D analog and supplements (I take about 50 high-grade customized supps every day). Before doing this, my liver...
Forum: her2group 04-24-2015, 09:03 AM
Replies: 3
Views: 2,283
Posted By KDR
Re: ingenious new way to get neural stem cells to rid brain of bc mets (with built-in

This is the future! I'm going for it! Please friends, do your research and search out facilities doing immunotherapy! Do not be afraid! The cure is within YOU!

Karen
Forum: her2group 04-23-2015, 06:47 PM
Replies: 10
Views: 3,099
Posted By KDR
Re: Frustrated

I get it. Look at my signature. Still, I know everything is going to be alright. And, yes, I still believe in the cure.
Happy days ahead!
Karen
Forum: her2group 04-22-2015, 04:00 PM
Replies: 6
Views: 3,124
Posted By KDR
Re: Immunotherapy?

Jackie,
I have been interested in this trial for quite some time. I think I posted about it quite some time ago, and I am glad that someone is on it so we can watch the results. I have not spoken...
Forum: her2group 04-22-2015, 11:48 AM
Replies: 6
Views: 3,124
Posted By KDR
Re: Immunotherapy?

JJ:
Sounds exciting. There are a number of places doing immunotherapy on advanced breast cancers. I recently looked into one in New York, and held a slot in it, but I opted out because I had to...
Forum: her2group 04-22-2015, 11:45 AM
Replies: 4
Views: 2,895
Posted By KDR
Re: Anybody had 3D nipple & areola tattoos?

I never had breast surgery, but if I did, here's where I'd go:
https://www.youtube.com/watch?v=kzO2U0fJ0jM

I do have a five-inch thoracotomy scar that I plan to put a permanent henna tattoo on...
Forum: her2group 04-22-2015, 11:40 AM
Replies: 3
Views: 3,083
Posted By KDR
Re: LFT's keep going up...

Penny,
I have the itches in certain spots, and it never happened before being on Gemzar.

For the LFT, I am in the normal range, just beginning my sixth year of chemo. Try finding the Vitamin D...
Forum: her2group 04-21-2015, 04:52 PM
Replies: 13
Views: 7,648
Posted By KDR
Re: important-- turning her2+ Stage IV into chronic treatable disease

I see a huge disparity between immunotherapy costs and long-term treatments costs, much to the dismay of Big Pharma.

Karen
Forum: her2group 04-21-2015, 01:51 PM
Replies: 13
Views: 7,648
Posted By KDR
Re: important-- turning her2+ Stage IV into chronic treatable disease

Paul,
How fully on board do you think pharma is with immunotherapy?
Karen
Forum: her2group 04-21-2015, 01:45 PM
Replies: 6
Views: 3,124
Posted By KDR
Immunotherapy?

Friends,
Have any of you tried immunotherapy? If so, would you share your experience? So many new trials and therapies already underway. My research is pulling up some amazing things, and amazing...
Forum: her2group 04-20-2015, 06:04 PM
Replies: 60
Views: 25,628
Posted By KDR
Re: Cancer in Spinal Fluid - given 6 months

Getting on the right track after the shock factor is crucial. Best of luck, Saygoon!
With heartfelt best wishes,
Karen
Forum: her2group 04-19-2015, 08:37 AM
Replies: 1
Views: 1,673
Posted By KDR
Re: research report on immune system to fight cancer

I just looked into an IL-10 trial at my center. Nixed it because Herceptin could not be used. Have spoken with Lotze at UPMC as he's written many articles on IL and believes it's definitely a drug...
Forum: her2group 04-19-2015, 08:34 AM
Replies: 60
Views: 25,628
Posted By KDR
Re: Cancer in Spinal Fluid - given 6 months

Saygoon,
I texted Paul to visit the board. Hang in there, beauty.
Karen
Forum: her2group 04-18-2015, 02:01 PM
Replies: 44
Views: 127,706
Posted By KDR
Re: Kadcyla Side Effects

Yes.

Karen
Forum: her2group 04-16-2015, 11:42 AM
Replies: 20
Views: 8,908
Posted By KDR
Re: Looking at Clinical Trials

Hi, Amy,
I have been on Gem/Perj/Her since last July. I found it very tolerable. Neupogen shots twice after infusion. There are two doses 1400 and 1700. I was on 1400 until last month, and...
Forum: her2group 04-09-2015, 09:33 AM
Replies: 32
Views: 20,718
Posted By KDR
Re: HER-2 Positive & Triple Negative = Cannabis Intervention

Thanks for that information, Fern. It's complicated. Conflicting. At first I thought it was CBDs, which would make sense as the cells have CBD receptors. Then, I was told I was wrong, that it's...
Forum: her2group 04-04-2015, 05:28 PM
Replies: 32
Views: 20,718
Posted By KDR
Re: HER-2 Positive & Triple Negative = Cannabis Intervention

The cannabis oil, or Rick Simpson Oil, is the curative method of the plant. It is oil that is extracted from the plants. No smoking. You can google Rick Simpson Oil or Phoenix Tears to learn more. ...
Forum: her2group 04-03-2015, 11:35 AM
Replies: 5
Views: 3,039
Posted By KDR
Re: Back from cyperspace

Hello, Darita!! So glad to hear from you!
Hang in there, great things are happening!
Karen
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