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Search took 0.02 seconds; generated 66 minute(s) ago. Search: Posts Made By: forher
Forum: her2group 07-26-2015, 08:03 AM
Replies: 27
Views: 11,760
Posted By forher
Re: IT Hercepton and update on Saygoon

Wow! Hoping to continue to hear this great news from you!
Forum: her2group 07-26-2015, 08:01 AM
Replies: 1
Views: 2,639
Posted By forher
Is anyone on the neratinib trial?

I was hoping some of you might be in the neratinib and xeloda trial. I have brain mets and I am not really clear what my options are. My RO suggested WBRT but that really scares me. I can't really...
Forum: her2group 07-05-2015, 11:41 PM
Replies: 5
Views: 3,689
Posted By forher
Re: Meningioma?

I hope you don't have to wait 6 months to take care of the symptoms you are having. Hopefully you can get some relief through meds or some other kind of treatment. Take care and do keep us posted.
Forum: her2group 07-05-2015, 11:37 PM
Replies: 27
Views: 11,760
Posted By forher
Re: IT Hercepton and update on Saygoon

Saygoon, thank you for thinking of others and sharing the info. I glad you are in great, caring hands. You are truly amazing. I have thought if you often. I wish you the best of outcomes with your...
Forum: her2group 06-30-2015, 11:22 PM
Replies: 5
Views: 3,689
Posted By forher
Re: Meningioma?

Hi derbygrrl, do you have an onc you can talk to? I don't see your history so it's hard to answer. What about stereotactic rads? I'm not sure how they reach an area close to your eye. I'm sorry I'm...
Forum: her2group 06-27-2015, 10:39 AM
Replies: 39
Views: 15,847
Posted By forher
Re: 10 yrs brain mets - still NED ...

StephN, Congrats! And hoping for decades more for you. Thank you for posting this. It really helps me, being stage IV brain mets, hearing about your successful longevity of NED. I will be thinking of...
Forum: Diet and Nutrition 06-16-2015, 04:27 PM
Replies: 1
Views: 11,512
Posted By forher
Milk Mushroom

Hello everyone,
Has anyone heard of or tried milk mushroom to boost immunity and as a source of probiotics? Thank you.
Forum: her2group 06-15-2015, 10:26 AM
Replies: 19
Views: 7,336
Posted By forher
Re: A decade

Wishing all of you many, many more years of celebrations and posts like these! Congrats!
Forum: her2group 06-14-2015, 11:24 PM
Replies: 3
Views: 2,696
Posted By forher
Re: from ASCO 2015--optimal treatment of her2+ bc, hr2+ brain mets

Thank you, Lani, for this article. I actually met with dr. Melisko at ucsf about my brain mets earlier this year for a second opinion. She offered a few options for my case. I ended up choosing to...
Forum: her2group 05-27-2015, 09:14 PM
Replies: 12
Views: 4,621
Posted By forher
Re: Brain mets but no systemic disease

Lani! Thank you so much for posting! You are a wealth of knowledge and analogies (love them). So scary that any time we can awaken "the sleeping giant" and mets can show up.

Amy- I am considering...
Forum: her2group 05-26-2015, 11:52 PM
Replies: 9
Views: 5,352
Posted By forher
Re: "Healed" rib fracture or...??

Hi LeahM, I read over your signature and I noticed that you had severe vitamin D deficiency and rib pain before. I wonder if your pain is related to that? I have my first bone scan coming up. My...
Forum: Profiles In Courage 05-26-2015, 11:38 PM
Replies: 9
Views: 36,658
Posted By forher
Re: Diagnosed 1999, no recurrence. Chronic pain biggest problem.

I believe in your pain! I, too, suffer from chronic pain. It's everywhere. Mainly I have terrible pain on my surgical side from rads. I see a lymphedema specialist who massages my scar tissue and...
Forum: her2group 05-26-2015, 11:26 PM
Replies: 18
Views: 5,672
Posted By forher
Re: 10 years and well

Double digits!!! Happy for you!
Forum: her2group 05-26-2015, 11:25 PM
Replies: 20
Views: 8,127
Posted By forher
Re: 8 years!

Awesome, Bonnie! And wishing you many, many more years of NED.
Forum: her2group 05-26-2015, 11:22 PM
Replies: 9
Views: 3,624
Posted By forher
Re: Xeloda and Tykerb

Oops. Sorry for the mix up. Thanks for the correction, Becky. How are you, Saygoon?
Forum: her2group 05-22-2015, 10:08 AM
Replies: 9
Views: 3,624
Posted By forher
Re: Xeloda and Tykerb

My onc said that there were side effects with Tykerb, such as hand and foot syndrome. I may need to take this drug if things progress, but I have opted to hold off on it for now. Perhaps you can take...
Forum: her2group 05-22-2015, 09:27 AM
Replies: 103
Views: 48,347
Posted By forher
Re: Please, Lord

Dear Redwolff, I'm joining hands with the women here to send you strength during this difficult time. I'm so saddened to hear that things have taken a bad turn, but still hoping chemo will help. I...
Forum: her2group 05-16-2015, 08:05 AM
Replies: 103
Views: 48,347
Posted By forher
Re: Please, Lord

Dear Penny, That sounds like a scary few days. But glad to hear the up side that bilirubin is down ( and stay down! :) ) and that you feel better and you are back home. Good luck with Monday's chemo!
Forum: her2group 05-16-2015, 07:51 AM
Replies: 38
Views: 12,347
Posted By forher
Re: So Very Upset

Dear Ceesun, I never feel like I have as much wisdom as others on the site, but I try to chime in to offer some support. I'm so sorry to hear that that darn cancer is back. Well, now that you caught...
Forum: her2group 05-09-2015, 06:09 PM
Replies: 24
Views: 7,757
Posted By forher
Re: When work really hits home

I wanted to chime in and thank you for your dedication, Julie. I'm one that has enjoyed your posts. Hope you will come back when you feel up to it. My best to you.
Forum: Herceptin / Tykerb 04-22-2015, 10:13 PM
Replies: 3
Views: 13,342
Posted By forher
Re: Very, very confused

That does sound very confusing! I am learning about Her2+ cancer myself and don't have answers for you, but I will say that cancers can change. I am surprised she did not get radiation. I had 1 lymph...
Forum: her2group 04-22-2015, 04:25 PM
Replies: 12
Views: 4,621
Posted By forher
Re: Brain mets but no systemic disease

Hi Lani,
I have no systemic disease (I hope I am using the term correctly) according to all my PET/CT. I just wonder if there is anyone else out there like me. I am still stage IV and it might not...
Forum: her2group 04-21-2015, 09:59 PM
Replies: 12
Views: 4,621
Posted By forher
Brain mets but no systemic disease

Hi everyone,
I have a question about metastasis. Does anyone have brain mets without systemic disease? This is my case and I find it unusual and hard to understand why I have mets in my brain but...
Forum: her2group 04-21-2015, 09:31 PM
Replies: 13
Views: 8,163
Posted By forher
Re: important-- turning her2+ Stage IV into chronic treatable disease

Two things from this article stuck out to me:
1. "Highly lethal form of breast cancer"
2. "Resistance to treatment (herceptin) within a year" - do any of you find this to be true? I asked my...
Forum: her2group 04-19-2015, 10:21 AM
Replies: 60
Views: 28,844
Posted By forher
Re: Cancer in Spinal Fluid - given 6 months

Dear Saygoon,
I also don't know what to say but hoping that someone with experience checks in. Has your onc talked about the omaya or lumbar reservoir? Hoping you have a lot of support and love...
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