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Search took 0.01 seconds; generated 80 minute(s) ago. Search: Posts Made By: cafe1084
Forum: her2group 11-04-2007, 06:17 PM
Replies: 10
Views: 3,222
Posted By cafe1084
I did the same exact thing you are doing now....I...

I did the same exact thing you are doing now....I panicked, especially when I researched her2. I truly believed I'd been handed a death sentence, but most patients with cancer do. Sheila is right,...
Forum: her2group 10-22-2007, 03:18 PM
Replies: 6
Views: 1,772
Posted By cafe1084
I remember getting my biopsy report back, telling...

I remember getting my biopsy report back, telling me I was er/pr- and her2+ and beside it in capital letter was POOR PROGNOSIS. I thought I would wet my pants right there in the doc's office. You...
Forum: her2group 10-22-2007, 03:05 PM
Replies: 26
Views: 6,275
Posted By cafe1084
Tumor markers are drawn routinely every 3 months...

Tumor markers are drawn routinely every 3 months in the office where I go. For me, it seems to an accurate representation of the cancer in my body. It started out at 44 and have progressively dropped...
Forum: her2group 10-18-2007, 07:13 PM
Replies: 26
Views: 5,942
Posted By cafe1084
Ceesun, Another thing I wanted to add: if...

Ceesun,

Another thing I wanted to add: if you're going to wear prostheses because you are self-conscious about them being gone, I'd do it as early as you are able. I waited about 7 months to wear...
Forum: her2group 10-18-2007, 07:05 PM
Replies: 36
Views: 5,388
Posted By cafe1084
Sherry, Seding your brother all my prayers...

Sherry,

Seding your brother all my prayers tonight. My dad was in the very same situation as your brother, so I hope that all of our prayers reach him and he can truly enjoy the life he's worked...
Forum: her2group 10-18-2007, 06:57 PM
Replies: 19
Views: 2,981
Posted By cafe1084
I can totally relate!!! I got called "sir" so...

I can totally relate!!! I got called "sir" so many times, it made me sick! If I'd had boobs it may have been different lol. I always had something pink on: a hat, shirt, shoelaces, whatever because...
Forum: her2group 10-14-2007, 01:40 PM
Replies: 26
Views: 5,942
Posted By cafe1084
I also felt relieved, but after my double...

I also felt relieved, but after my double mastectomy, I couldn't bring myself to look at the scars. I was bandaged for about 3 weeks, then it was several more weeks before I could look at them in the...
Forum: Herceptin / Tykerb 10-10-2007, 05:38 PM
Replies: 23
Views: 31,807
Posted By cafe1084
i take an extra 2 fiber capsules with my...

i take an extra 2 fiber capsules with my increased roughage intake. it helps ( some) until you try to stop the capsules, then I'm bloaty again. I've read that others have this problem and doesn't...
Forum: her2group 10-02-2007, 05:03 AM
Replies: 49
Views: 6,597
Posted By cafe1084
All of my positive thoughts and prayers are all...

All of my positive thoughts and prayers are all yours today.
Forum: her2group 09-17-2007, 06:58 PM
Replies: 36
Views: 7,417
Posted By cafe1084
I understand alot of you are in larger cities but...

I understand alot of you are in larger cities but I am shocked at the difference in price from there to here. My AC was $3200 x 4, TH $2600 x 12, then H $ 1400 a week for 40 weeks, not to mention...
Forum: Herceptin / Tykerb 09-13-2007, 03:36 PM
Replies: 19
Views: 17,352
Posted By cafe1084
Yes, it is safe to have taxol and H on the same...

Yes, it is safe to have taxol and H on the same day. I actually had T and H together for 12 weeks and was fine as long as they ran each one separately and slowly. Otherwise, I had horrible heartburn,...
Forum: her2group 09-07-2007, 09:53 PM
Replies: 15
Views: 2,956
Posted By cafe1084
core biopsy was unguided, very palpable and close...

core biopsy was unguided, very palpable and close to the surface....it showed DCIS. Luckily surgeon did biopsy after showing IDC....CNB then felt like a waste of time we could have spent on a biopsy
Forum: her2group 09-07-2007, 09:44 PM
Replies: 13
Views: 5,339
Posted By cafe1084
I also had tailbone and sciatic pain on those...

I also had tailbone and sciatic pain on those drugs, still do at times. I got so sore, there were days when I didn't want to sit, didn't want to stand, didn't know what to do. If it worries you, ask...
Forum: her2group 09-07-2007, 09:37 PM
Replies: 5
Views: 2,221
Posted By cafe1084
I found a lump about 2 months back, the surgeon...

I found a lump about 2 months back, the surgeon and the onc both felt it warranted a biopsy after a CT showed nothing. My onc was sure prior to CT that if it were something, it wouldn't show with...
Forum: her2group 09-05-2007, 01:19 PM
Replies: 8
Views: 2,317
Posted By cafe1084
peripheral neuropathy is numbness, tingling, and...

peripheral neuropathy is numbness, tingling, and pricking sensations, sensitivity to touch, muscle weakness or burning pain. It's either a temporary or permanent damage to the nervous system. I have...
Forum: her2group 09-05-2007, 09:22 AM
Replies: 42
Views: 10,968
Posted By cafe1084
LoL...after reading these posts, I sat back and...

LoL...after reading these posts, I sat back and thought about what you had all said. Then I happened to be watching the today show this morning about ovarian cancer, that 23,000 are diagnosed every...
Forum: her2group 09-05-2007, 07:29 AM
Replies: 8
Views: 2,317
Posted By cafe1084
Yes, the bags are really neat. My onc office had...

Yes, the bags are really neat. My onc office had them and gave them away to their patients on herceptin. I threw my first aid kit, epi-pen and some other things in it and leave it in the car for...
Forum: her2group 08-24-2007, 09:08 PM
Replies: 17
Views: 2,842
Posted By cafe1084
Leslie, I just wanted to add that I just finished...

Leslie, I just wanted to add that I just finished therapy for a really tight chest and arm. The PT said the pec muscle gets "mad" and balls up after a mastectomy. She also said the fascia gets...
Forum: her2group 08-23-2007, 06:55 PM
Replies: 8
Views: 2,449
Posted By cafe1084
When I was having chemo, my LFT's sky-rocketed...

When I was having chemo, my LFT's sky-rocketed and the onc sent me for a bone scan to look for changes there. He said sometimes they will go up with increase or decrease in bone mets. In your case,...
Forum: Keeping Your Mind Off of BC 08-21-2007, 06:46 PM
Replies: 419
Views: 74,886
Posted By cafe1084
There is a patient at work who has, since I first...

There is a patient at work who has, since I first lost my hair, believed me to be "Stevie", her stepson LOL. She even introduced me at her birthday party as "...Stevie, the most wonderful son a woman...
Forum: Keeping Your Mind Off of BC 08-20-2007, 07:56 PM
Replies: 419
Views: 74,886
Posted By cafe1084
My nine year old was given a guitar last week and...

My nine year old was given a guitar last week and he's been "practicing" really hard. So, today I said something to my mom about medical bills. He enthusiastically piped up and said "Mommy, don't...
Forum: her2group 08-13-2007, 05:36 PM
Replies: 5
Views: 1,338
Posted By cafe1084
Pink girl, My 1 year out from date of...

Pink girl,

My 1 year out from date of diagnosis is tomorrow, August 14th and it brings back alot of feelings I'd rather not relive. I like to look at my surgery date as the date when I first took...
Forum: her2group 08-12-2007, 06:12 PM
Replies: 21
Views: 5,099
Posted By cafe1084
Wes, Like linda, I spend alot of time on this...

Wes,
Like linda, I spend alot of time on this site when I need to research bad news or a new development. The worst days are the ones when I log in to find one of us has passed away. It physically...
Forum: her2group 08-12-2007, 05:34 PM
Replies: 27
Views: 5,774
Posted By cafe1084
also right handed and er/pr-, her2+

also right handed and er/pr-, her2+
Forum: her2group 08-09-2007, 09:01 PM
Replies: 2
Views: 1,943
Posted By cafe1084
Lu Ann, That is certainly no coincidence!...

Lu Ann,

That is certainly no coincidence! It reminds me of a show I watched where childhood cancers were 500x the US rate along power lines somewhere down in Texas. It is frightening to...
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