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Search took 0.01 seconds; generated 82 minute(s) ago. Search: Posts Made By: Carol.hope
Forum: her2group 08-14-2010, 03:32 PM
Replies: 139
Views: 40,005
Posted By Carol.hope
Re: Joe passed on this evening

Dear Christine, Danielle and Debra,
I add my tears and appreciation to those already expressed. We will miss Joe terribly, as of course you will. He was a wonderful, giving person, who made a huge...
Forum: Diet and Nutrition 08-01-2010, 05:36 PM
Replies: 24
Views: 7,085
Posted By Carol.hope
Re: Vitamin D Test Results

R.B.! Good to see you back. Did you finish your book?

I think it was you who posted those articles from UC San Diego Moores Cancer Center, a year or so ago. They say for combatting cancer, Vit D...
Forum: Diet and Nutrition 08-01-2010, 05:23 PM
Replies: 3
Views: 2,431
Posted By Carol.hope
Re: Effect of calcium supplements on risk of myocardial infarction and cardiovascular

Could it be important that with the calcium there was no Vitamin D? Don't we need both Vit D and magnesium in order to metabolise calcium?
Forum: her2group 07-14-2010, 12:28 PM
Replies: 19
Views: 4,487
Posted By Carol.hope
Re: Had to stop Tamoxifen

Dianne and others,
Yes, we are the customers, and we know our bodies. We get to choose whether or not to take a drug that has a 4-6% chance of helping us! Read Dr. Susan's Love's Breast Book. (I was...
Forum: her2group 07-14-2010, 12:14 PM
Replies: 44
Views: 8,595
Posted By Carol.hope
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

Good idea, A.A.!
I am just reading a book called "The Myth of Alzheimer's" in which the MD did decide to take the meds he prescribed, and gave them up because of the side effects! They made very...
Forum: her2group 07-13-2010, 12:48 PM
Replies: 31
Views: 7,682
Posted By Carol.hope
Re: Chemo brain

A.A. - Hmm. It's good to think about possible benefits, but I can't think of any reason that not being able to make enough energy would keep cancer away. Also, people with ApoE4 have a harder time...
Forum: her2group 07-13-2010, 12:38 PM
Replies: 31
Views: 7,682
Posted By Carol.hope
Re: Chemo brain

Wow, Karen, you sound like you really are on the road to complete recovery. In some ways, cancer gives us the opportunity to redo things in our lives we probably need to. You started that even before...
Forum: her2group 07-13-2010, 11:16 AM
Replies: 31
Views: 7,682
Posted By Carol.hope
Re: Chemo brain

A.A., it's probably the chemo brain, but I'm not following you (and I would like to!). Can you explain what you mean? Thanks. - Carol
Forum: her2group 07-13-2010, 11:08 AM
Replies: 9
Views: 4,446
Posted By Carol.hope
Re: Peach and Plum extracts may kill breast cancer cells in future

This is exciting news! To be able to kill the cancer cells and not the healthy cells - what a great idea! Thanks for the info!
Forum: her2group 07-13-2010, 10:59 AM
Replies: 7
Views: 2,377
Posted By Carol.hope
Re: Chi Machine....not the hair straightener

Maureen,
I have not heard of the chi machine, but am looking forward to hearing about it. I wanted to tell you that I love your blog! Great photos, too. Thanks for representing us on the research...
Forum: her2group 07-13-2010, 10:48 AM
Replies: 31
Views: 7,682
Posted By Carol.hope
Re: Chemo brain

Karen,
What I learned about chemo brain is related also to why many of us seem to have so little energy for a year or more (ten or more for some of us!). Because of all the chemo drugs, our cells...
Forum: her2group 07-12-2010, 06:31 PM
Replies: 31
Views: 7,682
Posted By Carol.hope
Re: Chemo brain

Bonnie,
I am sorry you were treated dismissively, and glad that more people are learning more about chemo brain now. Thanks in part to Idelle!

You can also read about chemo brain from the...
Forum: her2group 07-12-2010, 06:14 PM
Replies: 9
Views: 2,298
Posted By Carol.hope
Re: Boot Camp

Patrice,
Good for you! My new oncologists firmly believes that exercise is important in avoiding recurrence, in addition to making that scale number look better. The first step is the hardest, and...
Forum: her2group 07-06-2010, 06:02 PM
Replies: 2
Views: 1,801
Posted By Carol.hope
Re: It doesn't take a rocket scientist, just an open-minded objectivelistener--chemob

This has been demonstrated in the medical and scientific journals for quite a few years now. The mechanisms by which it occurs have also been demonstrated.

Is that what you mean by your post...
Forum: her2group 07-01-2010, 06:15 PM
Replies: 44
Views: 8,595
Posted By Carol.hope
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

I have been taking natural aromatase inhibitors - first, Indol3 carbinol and then DIM, advised by my naturopath. This is the ingredient in broccoli that is helpful against cancer. You might try that...
Forum: her2group 06-30-2010, 01:42 PM
Replies: 12
Views: 5,351
Posted By Carol.hope
Re: Beyond chemo brain

Thanks, you guys.
It feels good to be acknowledged. Really, if we were going to make something up, why would it be something that makes our lives so hard?! Yes, I decided to write the book I wish...
Forum: her2group 06-26-2010, 04:05 PM
Replies: 12
Views: 5,351
Posted By Carol.hope
Re: Beyond chemo brain

Thanks, Becky and Jackie. I appreciate your encouragement. Sometimes from "inside the trenches" it's hard to see how well things are going. So nice to have HER2 buddies!

-Carol
Forum: her2group 06-23-2010, 02:55 PM
Replies: 2
Views: 1,412
Posted By Carol.hope
Re: treatment of small her2+ tumors discussed in review article

Also, some percentage (at least 15%, maybe more) will have long-term chemo brain injury, which is NOT a subtle change. It can change everything about your life. (ask me, I'm one of them!)

Let's...
Forum: her2group 06-22-2010, 09:41 AM
Replies: 12
Views: 5,351
Posted By Carol.hope
Re: Beyond chemo brain

You're welcome, Sarah. I think more doctors are getting it now, but we've had to endure years of docs thinking we're whiners or just stressed. My hope is that soon no one else has to live with this...
Forum: Inflammatory Breast Cancer 06-20-2010, 06:50 PM
Replies: 27
Views: 26,605
Posted By Carol.hope
Re: just placed on hospice

Charlotte,
You've been through so much, and you're still here! That doctor may have been feeling like a failure himself, but don't take him personally. You have such a strong spirit, so please find...
Forum: Articles of Interest 06-20-2010, 05:11 PM
Replies: 2
Views: 5,999
Posted By Carol.hope
Re: Activism among exceptional patients with cancer.

Thanks, Rich.
This is great! I hope they publish a book. I want to read it!

- Carol
Forum: her2group 06-20-2010, 05:07 PM
Replies: 12
Views: 5,351
Posted By Carol.hope
Smile Beyond chemo brain

Dear friends,

I’d like to tell you about a new book I have just published, about my experiences with long-term chemo brain. It’s called Chemo Brain: Recovering after Surviving.




...
Forum: her2group 06-03-2010, 06:10 PM
Replies: 66
Views: 18,238
Posted By Carol.hope
Re: Five years out???

It's been five years this month for me. I remember how desperate I was to find people who had survived bc. I was so thankful to find Christine! Now there are many of us.

I'm grateful for...
Forum: her2group 05-15-2010, 05:23 PM
Replies: 8
Views: 1,791
Posted By Carol.hope
Re: Thank you!

Tricia,
You are a great inspiration! Thank you for posting. I have a friend who is 82, and she remembers everything, goes to every event, and is wonderful. She has been a square dancer since she was...
Forum: her2group 05-15-2010, 02:18 PM
Replies: 23
Views: 5,028
Posted By Carol.hope
Smile Re: What does this site mean to you?

I just sent my comments to the writer. Thought I'd share them here, too. I am so grateful for HER2 Support!

My surgical oncologist told me about HER2Support.org in June 2005. I was anxious to...
Showing results 26 to 50 of 87
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