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Search took 0.11 seconds; generated 100 minute(s) ago. Search: Posts Made By: Carolyns
Forum: her2group 02-15-2010, 04:07 PM
Replies: 11
Views: 3,176
Posted By Carolyns
Re: Long term survivors

I felt the same way 4 years ago when I found out that I had liver mets. Things have changed just like you mentioned. I am a single mom with an 11 year old boy. I still work full time and raise my...
Forum: her2group 02-09-2010, 12:12 PM
Replies: 26
Views: 4,149
Posted By Carolyns
Re: 2 year gamma-versary today

Hi Flori, This is GREAT news! Thanks for sharing. Carolyn
Forum: her2group 02-08-2010, 07:59 AM
Replies: 18
Views: 1,998
Posted By Carolyns
Re: More good news

Tonya,

Good news! I am hoping that you get a chemo break.

Take care, Carolyn
Forum: her2group 02-01-2010, 08:26 PM
Replies: 20
Views: 3,224
Posted By Carolyns
Re: The update I posted on Treatment

Hi Sheila,

Thank you for keeping us posted. You are always in my prayers.

Love, Hope, Peace, Carolyn
Forum: her2group 02-01-2010, 08:23 PM
Replies: 24
Views: 3,195
Posted By Carolyns
Re: Scanxiety denied...license to breathe renewed

Breathing is good I hear. I think it was the trip to Vegas that helped the TDM1 work even better.

You go girl... I am so thrilled to hear your news!

Love, Hope, Peace, Carolyn
Forum: her2group 01-29-2010, 05:32 PM
Replies: 47
Views: 8,392
Posted By Carolyns
Re: Scanxiety Confirmed, Progression Shown

Dear Sheila,

I am sorry to hear your news. I know that it is so tough to hang on during the down portions of this roller coaster ride... but when the news is new ... that it when I usually feel...
Forum: her2group 01-28-2010, 06:42 PM
Replies: 7
Views: 2,470
Posted By Carolyns
Re: How long on Adriamycin?

Hi Sally,

I am not sure about that drug as I too had it in combination with other drugs. Doxil is a drug like Adriamycin that many doctors are using to treat Stage IV breast cancer for long...
Forum: her2group 01-28-2010, 06:36 PM
Replies: 13
Views: 2,846
Posted By Carolyns
Re: Overheard at the airport...

hmmmm.... I agree that we need to keep pushing our doctors and then standing by them and pushing right along side when they need us. I know that you are very active and brave representing us and the...
Forum: her2group 01-20-2010, 04:50 PM
Replies: 102
Views: 25,862
Posted By Carolyns
Re: Irene From Tampa

So sad to hear. Why does this have to go on? When will it end? Irene is such an inspiration and she deserves so many more birthdays...

You are in my thoughts and prayers. Praying for a...
Forum: her2group 01-20-2010, 02:07 PM
Replies: 12
Views: 2,510
Posted By Carolyns
Update on Me

Hi All,

Thank you so much for your support during my travels to Detroit getting the TDM1 trial and treatment. For those of you who have wondered I am doing well. I get treatment in my home town...
Forum: her2group 01-10-2010, 03:02 PM
Replies: 19
Views: 6,685
Posted By Carolyns
Re: what to do about nosebleeds?

Some times the gel is there on the shelf and sometimes it is not. The Walgreens where I go is near to my cancer center and my cancer center has samples of the gel on hand. My guess is that many go to...
Forum: her2group 01-10-2010, 02:59 PM
Replies: 15
Views: 3,390
Posted By Carolyns
Re: What worked for you?

Hi Adrien, I forgot to add that I was also on Navelbine.

Ellie F. - TDM1 has gotten much easier for me and we added Pertuzumab. Scans have been good and the liver has improved. I still work...
Forum: her2group 01-10-2010, 01:02 PM
Replies: 15
Views: 3,390
Posted By Carolyns
Re: What worked for you?

Hi Adrien,

I have had liver mets for going on 4 years now. I am ER positive and Her2 positive. The liver mets have responded to (in this order) - Gemzar w/ Herceptin, Herceptin w/ Tykerb,...
Forum: her2group 01-10-2010, 12:54 PM
Replies: 19
Views: 6,685
Posted By Carolyns
Re: what to do about nosebleeds?

Hi - Great question. I have found Ocean Gel to be very helpful for me. It is not a spray but a gel and that is what I need something that stays put.

I buy mine at Walgreens in the area where...
Forum: her2group 01-08-2010, 07:49 AM
Replies: 13
Views: 2,505
Posted By Carolyns
Re: The day they filmed my petscan...sky dive is amazing

Hi Flori,

Thanks for sharing. It made me cry. I mean the part where the woman said I have breast cancer but I am not alone.

You look beautiful as always. Thank you for doing this!
...
Forum: her2group 01-02-2010, 07:08 PM
Replies: 24
Views: 7,754
Posted By Carolyns
Re: Changes to my Navelbine & now side affects...

Hi Chelee,

I am sorry to hear the Navelbine is giving you such a hard time. It was difficult for me too. I had to drink smooth moves tea nightly and I still had problems. I was on Zofran and...
Forum: her2group 12-15-2009, 11:07 AM
Replies: 14
Views: 3,390
Posted By Carolyns
Re: When retail therapy failed, cocktail therapy ruled

Yeah, thank you so much for posting. You brought a big fat smile to my face. You are such brilliant and beautiful women. I am glad that you got to spend some time together having fun!

Love,...
Forum: her2group 12-09-2009, 07:43 AM
Replies: 21
Views: 3,774
Posted By Carolyns
Re: Had my 1st infusion...

Hi Chelee,

Well, I am going to say it sounds like so far so good. I hope that you keep a box of prunes near by that constipation can really be bad.

I hope that Navy Bean really does the...
Forum: her2group 12-07-2009, 07:43 PM
Replies: 11
Views: 2,345
Posted By Carolyns
Re: (Not so) special delivery

Hi Rich,

I took Xeloda in the morning w/ Tykerb and at night alone - twice per day. Two weeks on and one week of. We were going to move to one week on and one week off but I progressed before we...
Forum: her2group 12-07-2009, 02:16 PM
Replies: 72
Views: 18,307
Posted By Carolyns
Re: New Proposed Changes to Mammogram Guidelines

If getting political will keep me alive then I am up for grabs. Fighting Stage IV is no game show and with all of the talk about the cost of end of life care I am hoping that we could get the Right...
Forum: her2group 12-07-2009, 01:36 PM
Replies: 11
Views: 2,345
Posted By Carolyns
Re: (Not so) special delivery

Hi Rich,

I hope that you are doing well. I can say the Xeloda worked well for me for the longest period of time and that was pill form. But I haven't discussed these topcis with my doctor.
...
Forum: her2group 12-04-2009, 10:10 AM
Replies: 13
Views: 2,491
Posted By Carolyns
Re: Recent path report shows Her2 & Er changes...

Chelee,

I don't know what to say about the hormonal status. I found Becky's comments to be very informative. And Lani's statement of :

"Maybe you should ask Dr. Slamon if you should ask the...
Forum: her2group 12-03-2009, 06:20 PM
Replies: 72
Views: 18,307
Posted By Carolyns
Re: New Proposed Changes to Mammogram Guidelines

Hi Steph,

It is changing as we speak and not due to the government, right now but insurance companies. We already saw Sheila get denied Tykerb unless she took it with Xeloda (which she didn't...
Forum: her2group 12-03-2009, 12:43 PM
Replies: 72
Views: 18,307
Posted By Carolyns
Re: New Proposed Changes to Mammogram Guidelines

gdpawel,

I pointed out the fact that 75% of the drugs used have not been approved for breast cancer but they are approved for other cancers. So, I guess as a relatively new population "Chronic...
Forum: her2group 12-02-2009, 04:25 PM
Replies: 72
Views: 18,307
Posted By Carolyns
Re: New Proposed Changes to Mammogram Guidelines

Hi Gdpawel (and others... luv you all),
I am speaking to you because I have always followed you posts and find you to be extremely thoughtful and knowledgeable. I am a Stage IV breast cancer...
Showing results 26 to 50 of 477
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