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Search took 0.01 seconds; generated 39 minute(s) ago. Search: Posts Made By: Emmay
Forum: her2group 04-06-2008, 04:21 PM
Replies: 4
Views: 1,847
Posted By Emmay
NYTimes Article

A recent article in the 3/23 NYTimes Magazine titled "Practicing Patients" analyzes the medical utility, benefits and risks of patients with ALS, MS, Parkinson's Disease, and HIV sharing their...
Forum: her2group 04-05-2008, 07:43 AM
Replies: 2
Views: 1,054
Posted By Emmay
Thanks so much, Christine. You are a beacon of...

Thanks so much, Christine. You are a beacon of hope and encouragement to all who visit this site, as is your dear husband Joe.
Forum: her2group 04-04-2008, 03:17 PM
Replies: 2
Views: 1,054
Posted By Emmay
Brain mets update...

When I last posted in early October '07, my sister had just switched from the Temodar/Sorafenib rx (which had worked well for about 8 months, but was discontinued because of uncontrolled weight loss...
Forum: her2group 12-24-2007, 04:50 PM
Replies: 30
Views: 4,443
Posted By Emmay
Merry Christmas and a blessed, healthy new year...

Merry Christmas and a blessed, healthy new year to you, Joe and Christine - you have both done such an outstanding job setting up this site, always looking for ways to improve it and increase...
Forum: her2group 11-07-2007, 12:47 PM
Replies: 11
Views: 2,544
Posted By Emmay
Dear John, I think you should follow your...

Dear John,

I think you should follow your instincts on this and seek a second opinion- your Plan B sounds more appropriate to me. The largest brain met at 1.5cm is still well within the size range...
Forum: her2group 11-07-2007, 10:47 AM
Replies: 42
Views: 5,908
Posted By Emmay
Hooray, Christine! Fabulous news! More power to...

Hooray, Christine! Fabulous news! More power to you!
Forum: her2group 10-11-2007, 08:40 AM
Replies: 6
Views: 1,856
Posted By Emmay
Thanks BHutch -- I'll tell my sister about the...

Thanks BHutch -- I'll tell my sister about the Folic Acid/Tykerb/Xeloda interaction.

PattyZ- I hope the Tykerb/Xeloda+Temodar works well for you too. My sister was on an early Lapatinib(Tykerb)...
Forum: her2group 10-09-2007, 08:38 PM
Replies: 6
Views: 1,856
Posted By Emmay
change of rx for brain mets

Just wanted to let everyone know that my sister has changed medications; she had been on temodar/sorafenib since Feb. '07, and while it worked well for the 7 months she was on it, the side effects...
Forum: her2group 09-12-2007, 07:56 PM
Replies: 0
Views: 1,035
Posted By Emmay
Good Reference Book for those with Brain Mets

"Living with a Brain Tumor: A Guide to Taking Control of Your Treatment" by Dr. Peter Black, Chief of Neurosurgical Oncology at Dana-Farber Cancer Institute, Prof. of Neurosurgery at Harvard Medical...
Forum: her2group 09-03-2007, 01:45 PM
Replies: 12
Views: 2,408
Posted By Emmay
My sister, who is Her2+ER-PR-, had a lumpectomy...

My sister, who is Her2+ER-PR-, had a lumpectomy in 7/03, a local recurrence required a mastectomy in 2/04, after which she began Herceptin, which does not cross the blood/brain barrier. Since then...
Forum: her2group 07-30-2007, 08:13 AM
Replies: 27
Views: 5,275
Posted By Emmay
Dear Nicola - You didn't say what size the...

Dear Nicola -

You didn't say what size the brain mets are, but if they are discernable enough to measure, you should ask your dr about Gamma Knife or CyberKnife (essentially the same) for the...
Forum: her2group 07-26-2007, 03:31 PM
Replies: 22
Views: 4,323
Posted By Emmay
Some people on this board had no symptoms when...

Some people on this board had no symptoms when brain mets were detected by MRI. Others had headaches, scheduled an MRI, then were diagnosed...and others still, had headaches, worried, got an MRI,...
Forum: her2group 07-26-2007, 06:51 AM
Replies: 13
Views: 2,801
Posted By Emmay
PattyZ- a hopeful note for your partner: Six...

PattyZ- a hopeful note for your partner:

Six or 7 yrs ago, in the early days of Herceptin trials, one of my children's teachers, in her 50s, was diagnosed with Stage 3b Her2+ bc. Her tumor was...
Forum: her2group 07-22-2007, 01:49 PM
Replies: 13
Views: 2,801
Posted By Emmay
Hi Ragini, My sister has had two...

Hi Ragini,

My sister has had two craniotomies, WBR (Whole Brain Radiation), and multiple CyberKnife and stereotactic radiation treatments for brain mets (Herceptin seems to be working well for her...
Forum: her2group 06-08-2007, 10:54 PM
Replies: 61
Views: 10,377
Posted By Emmay
Dear Andi, Your strong and graceful spirit...

Dear Andi,
Your strong and graceful spirit lights up and reaches so many people through this board, and we are all sending positive prayers to you, from so many directions... this one from Boston....
Forum: her2group 06-05-2007, 02:59 PM
Replies: 10
Views: 2,144
Posted By Emmay
I heartily second that - continuing Thanks to Joe...

I heartily second that - continuing Thanks to Joe and Christine!
Forum: her2group 05-13-2007, 04:15 PM
Replies: 2
Views: 1,479
Posted By Emmay
Shayan, Many people respond well to Tykerb, and...

Shayan,
Many people respond well to Tykerb, and I hope your mother is one who does. If she doesn't, my sister has been taking the oral chemotherapy combination of Temodar(sm.molecule crosses BBB)...
Forum: her2group 05-08-2007, 10:29 AM
Replies: 4
Views: 1,787
Posted By Emmay
I forgot to mention that my sister participated...

I forgot to mention that my sister participated in an early Lapatinib (aka Tykerb) trial Feb-April '05, and while it did not work for her then, it was making a difference for some other patients. I...
Forum: her2group 05-08-2007, 07:56 AM
Replies: 4
Views: 1,787
Posted By Emmay
brain mets - Temodar+Sorafenib update

My sister just yesterday had her third monthly MRI since starting the Temodar (a.k.a Temozolomide, an oral chemo that crosses the blood-brain barrier) plus oral antiangiogenesis drug Sorafenib(a.k.a...
Forum: her2group 03-07-2007, 03:58 PM
Replies: 4
Views: 1,484
Posted By Emmay
Pattyz- Great to hear you were on vacation! ...

Pattyz-
Great to hear you were on vacation!
Emmay
Forum: her2group 03-02-2007, 10:17 AM
Replies: 12
Views: 2,979
Posted By Emmay
Thanks for the heads up, Joe. My sister's...

Thanks for the heads up, Joe.

My sister's last MRI (one month post-cyberknife) looked quite good, but it's still early to tell whether the Sorafenib/Temodar combo is having a positive effect in...
Forum: her2group 02-20-2007, 06:01 PM
Replies: 70
Views: 13,688
Posted By Emmay
Dear Tom, I am sure your mother felt your deep...

Dear Tom,
I am sure your mother felt your deep love for her every day -- she must have been so very proud to have such a caring, open hearted son. You are a very exceptional man, and we are all so...
Forum: her2group 01-24-2007, 11:43 AM
Replies: 80
Views: 15,867
Posted By Emmay
Love and prayers to Joe, Christine, and your...

Love and prayers to Joe, Christine, and your family, and more power to you!
Forum: her2group 12-25-2006, 08:37 PM
Replies: 33
Views: 5,839
Posted By Emmay
Dear Christine and Joe, Thank you for your...

Dear Christine and Joe,

Thank you for your eloquent Christmas/Anniversary letter to the Her2support community and all you do to stay on the forefront of medical advances and keep us all connected....
Forum: her2group 12-21-2006, 03:17 PM
Replies: 14
Views: 2,345
Posted By Emmay
Smile Congratulations Barbara and StephN!!! What...

Congratulations Barbara and StephN!!! What wonderful news for the holidays. I'm sorry you had to go through the surgery, but what a relief to learn it was only necrosis. May your healing be swift,...
Showing results 26 to 50 of 66
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