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Search took 0.02 seconds; generated 55 minute(s) ago. Search: Posts Made By: Rupali
Forum: her2group 08-29-2007, 08:17 PM
Replies: 1
Views: 1,513
Posted By Rupali
Aromatise Inhibitors

Hi all,
I have been on tamoxifen for 2 years and now my onc is moving me t Aroomasin. I read Aromasin is a steroidal AI where as the others like Femara are non steroidal....DO u know what is the...
Forum: her2group 08-27-2007, 07:29 PM
Replies: 8
Views: 3,529
Posted By Rupali
Hi Michele, How have u been doing on Tykerb ...

Hi Michele,
How have u been doing on Tykerb
Cheers
Rupali
Forum: Herceptin / Tykerb 08-16-2007, 06:16 AM
Replies: 17
Views: 5,356
Posted By Rupali
You need to go for regular walks, deepbreating,...

You need to go for regular walks, deepbreating, eat fish oil capusles, Have at least 200 mg COQ10 daily and get in touch with an alternative medicine practioner.
Talk to a cardiologist and he will...
Forum: Herceptin / Tykerb 08-13-2007, 05:27 AM
Replies: 5
Views: 3,250
Posted By Rupali
Read ALTTO trial. Just google ALTTO Breast cancer...

Read ALTTO trial. Just google ALTTO Breast cancer trial.I think there is some pre clinical evidence that suggest synergistic effect of Herceptin + Lapatininb. But you should also have a cardiologist...
Forum: Herceptin / Tykerb 08-07-2007, 12:59 PM
Replies: 11
Views: 3,470
Posted By Rupali
Hi Michelle, I wanted to check back to see how...

Hi Michelle,
I wanted to check back to see how you were doing with tykerb and managing the diarreah.
I still havent started Tykerb monotherapy as my LVEF came down to 45%, so I am still waiting for...
Forum: Herceptin / Tykerb 08-07-2007, 09:01 AM
Replies: 6
Views: 3,094
Posted By Rupali
There is a big clinical trial called ALTTO which...

There is a big clinical trial called ALTTO which is starting in which they wil give both Tykerb and Herceptin together.
Forum: Herceptin / Tykerb 08-07-2007, 06:45 AM
Replies: 6
Views: 3,094
Posted By Rupali
I think a good approach might be to have a dose...

I think a good approach might be to have a dose of herceptin once every 3 months and have Tykerb regularly. As Herceptin stays in the system for at least 18 weeks so this would help to make use of...
Forum: her2group 08-02-2007, 09:54 AM
Replies: 3
Views: 1,439
Posted By Rupali
I am taking Herceptin and Tamoxifen

I am taking Herceptin and Tamoxifen
Forum: her2group 08-01-2007, 08:50 AM
Replies: 4
Views: 1,455
Posted By Rupali
All I can say is that the oncologist speak what...

All I can say is that the oncologist speak what they have been trained on. Plus they have the fear of insurance malpractice.
The onc wil never suggest you any supplements til the time the pharma...
Forum: her2group 07-27-2007, 06:07 AM
Replies: 1
Views: 1,445
Posted By Rupali
Anyone else had tongue tingling

HI all,
In last 2-3 days I have a tingling feeling on my tongue...RIght now I am on 3 monthly Herceptin and daily Tamoxifen..
Did anyone else have tongue tingling and what could be the reasons for...
Forum: Herceptin / Tykerb 07-26-2007, 05:52 AM
Replies: 6
Views: 3,226
Posted By Rupali
Hi Chrisy, How did u guess that I was having...

Hi Chrisy,
How did u guess that I was having LVEF issues. My LVEF is at 45 and that means I am not able to start Tykerb, even though my husband is ready to pay out of pocket.
I do regular yoga,...
Forum: Herceptin / Tykerb 07-25-2007, 12:39 PM
Replies: 6
Views: 3,226
Posted By Rupali
Thanks Joe. I found the trial caled ALTTO...

Thanks Joe.
I found the trial caled ALTTO which corresponds to my situation
Forum: Herceptin / Tykerb 07-25-2007, 07:19 AM
Replies: 6
Views: 3,226
Posted By Rupali
Any new Tykerb Clinical trial

Hi all,
As you might recollect from my last posts that my insurance company declined Tykerb. Also what happened is that my LVEF came to be 45% so I am now in the waiting stages for the LVEF to go...
Forum: Herceptin / Tykerb 07-17-2007, 06:20 AM
Replies: 4
Views: 2,424
Posted By Rupali
This might be the reason that from a commercial...

This might be the reason that from a commercial angle GSK says dont take Grapefruit with Tykerb as that would mean less money for them.
Forum: her2group 07-13-2007, 08:03 AM
Replies: 9
Views: 2,848
Posted By Rupali
Bringing this back to the top. Ladies, please...

Bringing this back to the top.
Ladies, please advice what is the best route to take for liver mets.
Forum: Herceptin / Tykerb 07-11-2007, 12:04 PM
Replies: 11
Views: 3,470
Posted By Rupali
Hi Michelle, Read some of the home remedies for...

Hi Michelle,
Read some of the home remedies for diarreah.
http://www.otan.us/webfarm/emailproject/miscdiarr.htm

Did you try bentonite clay?

Regards,
Rupali
Forum: Herceptin / Tykerb 07-11-2007, 11:03 AM
Replies: 15
Views: 3,553
Posted By Rupali
Hi Carolyn, Are you stage 3 or stage 4. I am...

Hi Carolyn,
Are you stage 3 or stage 4. I am just curious because you are on both Herceptin and Tykerb.
What is the frequency of Herceptin you are taking? Is it once every 3 weeks?
Regards,
Rupali
Forum: Herceptin / Tykerb 07-11-2007, 10:55 AM
Replies: 11
Views: 3,470
Posted By Rupali
Hi Michelle, Are you getting any other side...

Hi Michelle,
Are you getting any other side effects apart from diarreah. Do u take tykerb at bed time.
Regards,
Rupali
Forum: Herceptin / Tykerb 07-10-2007, 02:37 PM
Replies: 3
Views: 2,154
Posted By Rupali
Side effects of Tykerb alone

Hi all,
I will be starting with Tykerb monotherapy from Friday or Saturday. Apart from diarreah what are the other side effects you all are facing with tykerb alone. Please share and also if you are...
Forum: Herceptin / Tykerb 07-10-2007, 02:08 PM
Replies: 10
Views: 3,747
Posted By Rupali
Hi Connie, Tykerb cares called me today that...

Hi Connie,
Tykerb cares called me today that the maximum price of one month supply of Tykerb cannot be more than USD 3625 and lowst USD 2900
SO you need to check why your onc said 9000
Regards,...
Forum: her2group 07-09-2007, 12:41 PM
Replies: 5
Views: 2,168
Posted By Rupali
Hi Hopeful, I wanted to know a little bit more...

Hi Hopeful,
I wanted to know a little bit more about Dr. Hudis. Was he opposed to Herceptin or what...please explain...
anyone else has any experiences with Dr. Hudis.
I was thinking of taking a...
Forum: Herceptin / Tykerb 07-09-2007, 08:56 AM
Replies: 10
Views: 3,747
Posted By Rupali
Hi Connie, I just got a call from Tykerb cares...

Hi Connie,
I just got a call from Tykerb cares and they confirmed the price is USD 3100 per month and no Patient Assistance Programme is availble for STage 3's and most insurances will deny it.
So...
Forum: Herceptin / Tykerb 07-06-2007, 02:40 PM
Replies: 10
Views: 3,747
Posted By Rupali
Hi Connie, I have still not started Tykerb. I...

Hi Connie,
I have still not started Tykerb. I got the 3100 price tag when I had caled GSK around 2 months back. ALso on this site some ladies had quoted similar prices.
9000 is too high and there...
Forum: Herceptin / Tykerb 07-06-2007, 06:53 AM
Replies: 10
Views: 3,747
Posted By Rupali
Hi Connie, I am stage 3 and I have been...

Hi Connie,
I am stage 3 and I have been pursuing with my onc for Tykerb. FInally I got a prescription from the onc. The insurance denied it and the cost os going to run at 3100 USD per month.
My...
Forum: her2group 06-07-2007, 06:32 PM
Replies: 15
Views: 3,082
Posted By Rupali
Hi Michele, Thanks for your reply. If I may...

Hi Michele,

Thanks for your reply. If I may ask is it possible that I can have a phone consult with your oncologist and maybe that way I could maybe be able to get my community oncologist to talk...
Showing results 26 to 50 of 148
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