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Search took 0.10 seconds; generated 58 minute(s) ago. Search: Posts Made By: hutchibk
Forum: her2group 08-09-2012, 08:16 AM
Replies: 41
Views: 10,275
Posted By hutchibk
Re: Anxiously Waiting

If I understand and am not wrong, a clin trial coordinator I know says that a look at data would be potentially in Nov/Dec at the earliest for TDM1... they have to file a BLA first, and that usually...
Forum: her2group 08-08-2012, 08:43 AM
Replies: 20
Views: 5,742
Posted By hutchibk
Re: Denied compassionate use of TDM1

Just FYI... I don't know that Theresa is in compassionate use. Is that what you mean?

I do know that just TDM1 is in compassionate use, but yes you would have to be in the city where it is...
Forum: her2group 08-06-2012, 10:35 AM
Replies: 7
Views: 3,236
Posted By hutchibk
Re: Curious...

So far, I agree with both of y'all. It boils down to targeted and complimentary/integrative. In my humble opinion.
Forum: her2group 08-06-2012, 01:49 AM
Replies: 27
Views: 5,343
Posted By hutchibk
Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti

Thanks Lani! I still haven't (and won't) do WBR, we chose 'wack-a-mole' after we did 18 months on Tykerb/Xeloda, with an excellent response to both avenues.

I currently don't show any brain mets,...
Forum: her2group 08-05-2012, 10:04 PM
Replies: 7
Views: 3,236
Posted By hutchibk
Curious...

http://ca.news.yahoo.com/chemotherapy-backfire-boost-cancer-growth-study-164516832.html

Chemotherapy can backfire and boost cancer growth: study

Cancer-busting chemotherapy can cause damage to...
Forum: her2group 08-05-2012, 10:04 AM
Replies: 235
Views: 303,976
Posted By hutchibk
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Apparently my post disappeared, but if I am not wrong (and often can be), IT is available anywhere that you have an Onc who does it and insurance covers it. You don't have to find a clinical trial. I...
Forum: her2group 08-04-2012, 10:05 AM
Replies: 41
Views: 10,275
Posted By hutchibk
Re: Anxiously Waiting

Wonderful Mike... glad Sonali was able to help you!
Forum: her2group 08-02-2012, 07:18 PM
Replies: 67
Views: 51,515
Posted By hutchibk
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

If I am not misreading this (which I could be...), I believe that intrathecal Herceptin is available at every clinic as an approved treatment, as long as your Onc is doing it and insurance covers it.
Forum: her2group 08-01-2012, 07:30 PM
Replies: 18
Views: 4,316
Posted By hutchibk
Re: Brain MRI

Yes, Rolepaul is right. Good luck Trisha. Eric Winer is a Gold Standard Onc when it comes to brain mets. Possibly also you'll find something from Dr. Neil Love in Florida and Reseach to Practice. He...
Forum: her2group 08-01-2012, 07:18 PM
Replies: 41
Views: 10,275
Posted By hutchibk
Re: Anxiously Waiting

See if Sonali at Genentech has any info for you... she is a patient advocate and extremely helpful.

Sonali Padhi, MBA, MPH
Associate Director, Advocacy Relations
Genentech, Inc.
Office:...
Forum: her2group 07-29-2012, 11:24 PM
Replies: 235
Views: 303,976
Posted By hutchibk
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

http://www.brainmetsbc.org/index.php?q=node/44
Forum: her2group 07-29-2012, 11:16 PM
Replies: 7
Views: 3,715
Posted By hutchibk
Re: Herceptin and Perjeta

If you are confused about Pertuzamab, call or email Sonali (patient advocate) and ask what the FDA requirements are for different stages...

Sonali Padhi, MBA, MPH
Associate Director, Advocacy...
Forum: her2group 07-29-2012, 11:13 PM
Replies: 18
Views: 4,316
Posted By hutchibk
Re: Brain MRI

I have NEVER had symptoms or pain. Never. Brain MRIs have helped me diagnose them early and more treatable. I have had more choices re: treatments. Just one girls opinion.
Forum: her2group 07-29-2012, 10:05 AM
Replies: 18
Views: 4,316
Posted By hutchibk
Re: Brain MRI

Always ask for a brain MRI. And if doctor hms and haws, then demand one. Don't wait for the doc to decide you need one, it's often really late in the game. Be your own best advocate!
Forum: her2group 07-27-2012, 07:44 PM
Replies: 81
Views: 24,040
Posted By hutchibk
Re: Brain Mets &%$#$!! :(

(if you end up being radiated twice in any given exact area over time (2 years for me), don't be surprised if radiation necrosis grows, not tumor. At least it is necrosis, thank goodness, but just so...
Forum: her2group 07-25-2012, 05:56 PM
Replies: 81
Views: 24,040
Posted By hutchibk
Re: Brain Mets &%$#$!! :(

Denise... I feel for you. I remember how I felt the moment I first found out.

Don't rush into WBR... with two lesions, it would be too soon. You can take Tykerb/Xeloda and be very closely...
Forum: her2group 07-25-2012, 05:42 PM
Replies: 2
Views: 1,800
Posted By hutchibk
Re: Diastolic Dysfunction, EF

Be sure you talk to your Onc and also a cardiologist. ECHO's are now thought to be superior to Muga's. Everyone is different, so even though you don't think the 'causes' apply to you, they might....
Forum: her2group 07-21-2012, 07:06 PM
Replies: 42
Views: 11,664
Posted By hutchibk
Re: Pertuzumab not avaliable to stage 4 contrary to what you have heard

7 - sorry you had to wait for it so long! (you would have perhaps had a 2 week washout period also, so maybe that's the silver lining). So glad you are finally getting it! (did you apply for it three...
Forum: her2group 07-21-2012, 08:49 AM
Replies: 10
Views: 2,959
Posted By hutchibk
Re: Same vaccine as Lani posted? If not, is anyone getting this?

Thank you!! I guess I don't meet protocol if I ever needed it because my platelets hover around 65,000. And I can't afford travel to Seattle, I don't think... but who knows.

Also, even though...
Forum: her2group 07-21-2012, 08:38 AM
Replies: 24
Views: 5,782
Posted By hutchibk
Re: Does your chemo nurse let you see the bag before she/he hangs it?

Never had to ask... they have ALWAYS checked w/ 1. the pharmacy, 2. each other and 3. w/ me to verify name and birthdate.
Forum: her2group 07-20-2012, 04:09 PM
Replies: 10
Views: 2,959
Posted By hutchibk
Re: Same vaccine as Lani posted? If not, is anyone getting this?

I guess a call to BAMC is in order... because the original article states "NeuVax is being tested in a late-stage study under a special protocol assessment agreement with the U.S. Food and Drug...
Forum: her2group 07-20-2012, 07:06 AM
Replies: 41
Views: 10,275
Posted By hutchibk
Re: Anxiously Waiting

If she is on Tykerb, like your signature shows, then there would be a washout period anyway from the Tykerb? Ask your Onc about this while you are waiting for your location to be set up. There may be...
Forum: her2group 07-19-2012, 09:08 PM
Replies: 34
Views: 6,312
Posted By hutchibk
Re: Discharged as a Breast Cancer Patient!!

Congrats to you!
Forum: her2group 07-19-2012, 09:06 PM
Replies: 10
Views: 2,959
Posted By hutchibk
Re: Same vaccine as Lani posted? If not, is anyone getting this?

1. Are these trials for stage IV?
2. Does it cross the BBB?
3. If you have had Herceptin, do you qualify?
Forum: her2group 07-18-2012, 07:35 PM
Replies: 10
Views: 2,959
Posted By hutchibk
Same vaccine as Lani posted? If not, is anyone getting this?

(Reuters) - Galena Biopharma said its breast cancer vaccine received a patent granting it exclusivity until 2028.

The vaccine, NeuVax, gives immunity against the relapse of breast cancer in...
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