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Search took 0.01 seconds; generated 56 minute(s) ago. Search: Posts Made By: annettchen
Forum: her2group 05-19-2015, 11:11 AM
Replies: 103
Views: 45,474
Posted By annettchen
Re: Please, Lord

Penny, I'm so sorry. Praying for you. Miracles happen.
Forum: her2group 05-17-2015, 08:27 PM
Replies: 4
Views: 2,547
Posted By annettchen
Re: How soon to know if Kadcyla/TDM-1 is working?

I have a limited number of bone mets. My markers (CA15-3 and CEA) and all bloodwork except LDH and Calcium are normal. LDH and Calcium was slightly elevated in the first 3 months of treatment, normal...
Forum: her2group 05-14-2015, 08:50 AM
Replies: 103
Views: 45,474
Posted By annettchen
Re: Please, Lord

Praying for you. You can do this. Wish you wouldn't have to, though...
Forum: her2group 05-06-2015, 11:39 AM
Replies: 24
Views: 7,484
Posted By annettchen
Re: When work really hits home

This intrigued me, so I turned to Mr. Google (not the best source, I know, but when in a pinch...). Wikipedia tells me I was at least somewhat right with my guess regarding what "salvage" means in...
Forum: her2group 05-06-2015, 08:56 AM
Replies: 24
Views: 7,484
Posted By annettchen
Re: When work really hits home

Hi Julie,

how do you mean "salvage"? As in: when HER targeted stops working?

Thanks,

Annette
Forum: her2group 04-28-2015, 08:22 PM
Replies: 6
Views: 2,993
Posted By annettchen
Re: a cure for her2+ BCs--by making sure the puppy never gets born!

Intriguing! Thanks for Posting this, Lani!
Forum: her2group 04-11-2015, 06:18 PM
Replies: 15
Views: 16,713
Posted By annettchen
Re: Just Herceptin and Perjeta - side effects

Interesting! I get those cramps too, in my lower legs and sometimes even in my thighs! I thought it's lack of Magnesium, so started taking that but so far no change... Maybe I should try high heels...
Forum: her2group 04-10-2015, 07:46 PM
Replies: 7
Views: 3,320
Posted By annettchen
Re: Mastectomy & Radiation with Stage 4 Diagnosis

I have had surgery because at the time of the surgery, it was not known yet that I had mets. Since mine was a smaller tumor (2.3 cm) I had a lumpectomy. They tried to take out the sentinel nodes,...
Forum: her2group 03-29-2015, 06:15 PM
Replies: 45
Views: 32,662
Posted By annettchen
Re: In Praise of Perjeta

Hi Amy,

I also heard about the very positive outcome from the Cleopatra trial - in particular, my chemo nurse (I'm currently on Herceptin / Perjeta maintenance every 3 weeks) told me that they had...
Forum: her2group 01-28-2015, 10:23 AM
Replies: 389
Views: 228,685
Posted By annettchen
Re: Calling all stage iv sisters

Don't have much, but sometimes every little thing counts! Got results from my 3 months scan today - all stable on Herceptin/Perjeta/Xgeva! Oncologist says given fast initial response and current...
Forum: her2group 01-23-2015, 09:05 AM
Replies: 60
Views: 32,499
Posted By annettchen
Re: The Breast Cancer Diet (with checklist)

Not sure how much there is to it, but I have read that you should not have grapefruit while on Herceptin:

- "Grapefruit should be avoided during Herceptin and chemotherapy treatment because of...
Forum: her2group 01-19-2015, 06:37 PM
Replies: 3
Views: 2,313
Posted By annettchen
Re: How Far We've Come

Thanks for posting, Debbie! I had not seen this and it is very encouraging!
Forum: her2group 01-14-2015, 01:56 PM
Replies: 12
Views: 4,680
Posted By annettchen
Re: Recommended: regular brain MRIs for all HER2+ patients

I'm stage IV bone only at this point, and in Canada. My Onc told me in a somehwat "veiled" way that "as per protocol" she would not send me in for brain MRIs. However, if I felt any possible...
Forum: her2group 12-24-2014, 08:36 PM
Replies: 11
Views: 3,048
Posted By annettchen
Re: Happy Her2+ Christmas!

Merry Christmas all, and a Happy New Year!
Thank you for all your help and support!
Forum: her2group 12-17-2014, 07:05 PM
Replies: 389
Views: 228,685
Posted By annettchen
Re: Calling all stage iv sisters

Great News! Thanks KsGal and all the other ladies that post here every now and then to let us newbies know that there is a future! I log on here every time I feel discouraged or scared - it helps me...
Forum: her2group 12-08-2014, 07:58 AM
Replies: 19
Views: 4,387
Posted By annettchen
Re: I hope I did the right thing...this is long!

I agree, well done.

The most memorable experience I had along those lines was a prep-nurse for my first ever CT after I was diagnosed with bone mets. I lay on that prep-strecher thingy and was...
Forum: Articles of Interest 12-08-2014, 07:35 AM
Replies: 7
Views: 31,711
Posted By annettchen
Re: Methadone as a new cancer treatment drug

Thanks Rhondalea, I agree they have gotten pretty good with the online translators - I am absolutely willing to help out if stuff comes out garbled, though...
Forum: Articles of Interest 12-07-2014, 08:59 PM
Replies: 7
Views: 31,711
Posted By annettchen
Methadone as supporting drug to conventional cancer therapy

I have to share this with you.

Some women I got to know via a German breast cancer forum have over the last month or so started being treated with Methadone. They were all in very bad shape, not...
Forum: Articles of Interest 12-02-2014, 11:38 AM
Replies: 7
Views: 31,711
Posted By annettchen
Re: Methadone as a new cancer treatment drug

Hi all,

one of the ladies that's using Methadone has created a website (sorry, German only at this point), where she documents her personal experience, as well as collects research / publications...
Forum: Articles of Interest 12-01-2014, 08:38 PM
Replies: 7
Views: 31,711
Posted By annettchen
Re: Methadone as a new cancer treatment drug

Hi Catia,

it's http://www.krebs-kompass.de/index.php.
There's a separate thread on methadone, as well as a general advanced stage / stage 4 thread that has the posts of the ladies that have been...
Forum: Articles of Interest 11-30-2014, 08:31 PM
Replies: 7
Views: 31,711
Posted By annettchen
Re: Methadone as a new cancer treatment drug

Bumping this up - has anyone heard / seen anything about this in North America?

I am on a German forum, where some ladies contacted the researcher directly, who in turn helped them to get access...
Forum: her2group 11-30-2014, 08:14 PM
Replies: 49
Views: 15,545
Posted By annettchen
Re: Prayers for Kristin Schwick

This is too sad to put into words. I can't even begin thinking about her son, who will have to grow up without his mom, and her husband and family.

Tomorrow, though, we'll all stand back up, dry...
Forum: her2group 11-28-2014, 09:15 AM
Replies: 9
Views: 4,038
Posted By annettchen
Re: Herceptin plus tykerb after kadcyla

Thanks so much Phil, I'll take a look.
Forum: her2group 11-26-2014, 07:26 PM
Replies: 9
Views: 2,577
Posted By annettchen
Re: Gratitude - share one or two...

It was a tough year, no doubt. But I am grateful that currently it looks like the cancer is stable. I think I will have at least another year with my daughter. I am currently planning her 6th...
Forum: her2group 11-26-2014, 07:18 PM
Replies: 9
Views: 4,038
Posted By annettchen
Re: Herceptin plus tykerb after kadcyla

Hi Phil,

I would also be interested in finding out more about the vaccine trial you mention. Internet search has not given me anything usable so far. This link looks promising, bu I can't open it...
Showing results 26 to 50 of 85
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