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Search took 0.16 seconds; generated 60 minute(s) ago. Search: Posts Made By: Joe
Forum: her2group 04-30-2010, 10:25 AM
Replies: 34
Views: 5,376
Posted By Joe
Re: FIVE & 1/2 years NED in my head

I had always suspected that there was nothing there.

GREAT NEWS !!


Regards
Joe
Forum: her2group 04-28-2010, 11:01 PM
Replies: 38
Views: 5,993
Posted By Joe
Re: 5 yrs. have past..

Congratulations Jean..Just take it a day at a time and the years will keep rolling by. Someone sent me this interesting article about long term survivors from the NY. Times:

Long Term Survival...
Forum: her2group 04-28-2010, 09:30 PM
Replies: 17
Views: 3,510
Posted By Joe
Re: Important Announcement !!

Joan,

Here is the list from our About Us page on the main website:

About Us (http://her2support.org/about-us)

Regards
Joe
Forum: her2group 04-28-2010, 03:23 PM
Replies: 16
Views: 2,480
Posted By Joe
Re: Need Advice n!!!

I do know that she has over 20 years of experience at a practice that treats all cancers, but I think all she does is work with the bc patients.

She is very experienced,

Regards
Joe
Forum: her2group 04-28-2010, 03:20 PM
Replies: 17
Views: 3,510
Posted By Joe
Important Announcement !!

On behalf of myself and the HER2 Support Group's Board of Directors we wish to welcome Dr. George W. Sledge to a seat on our medical advisory board.

Unlike most groups, we do not just collect...
Forum: her2group 04-28-2010, 12:44 PM
Replies: 16
Views: 2,480
Posted By Joe
Re: Need Advice n!!!

Alaska Angel - YES
Hopeful - We do have an oncologist who covers the major meetings. I posted her San Antonio report several weeks ago.

Regards
Joe
Forum: her2group 04-28-2010, 09:39 AM
Replies: 16
Views: 2,480
Posted By Joe
Need Advice n!!!

I have been approached by a Certified Oncology Nurse who is interested in offering her advice to members.

As this is a delicate issue (liability) we will not disclose her name .

Also as with...
Forum: her2group 04-28-2010, 09:35 AM
Replies: 1
Views: 1,739
Posted By Joe
Re: for those having trouble getting insurance to pay for oncoDx--a new article fresh

Lani,
I hope that this isn't the future of our healthcare system.

Warmest Regards
Joe
Forum: her2group 04-22-2010, 05:20 PM
Replies: 12
Views: 3,460
Posted By Joe
Re: Recurrence vs. Metastatic

You are in very good hands. I am sure she will have some answers for you.

Regards
Joe
Forum: her2group 04-21-2010, 07:57 PM
Replies: 12
Views: 3,460
Posted By Joe
Re: Recurrence vs. Metastatic

Shonda,
I've looked up your profile and it told me 2 things:
1. You still have many options available.
2. You live near Dallas.

There are 2 lady oncologists that practice there that we see...
Forum: her2group 04-16-2010, 05:17 PM
Replies: 20
Views: 4,667
Posted By Joe
Re: HerMiracles - hope all is well

I have her cell number. Perhaps someone from Australia could contact her for us.

Email me

Joe
Forum: her2group 04-16-2010, 04:10 PM
Replies: 0
Views: 968
Posted By Joe
Interesting Tidbit

AVEO Pharmaceuticals Receives Milestone Payment from Biogen Idec under Licensing Agreement for ErbB3 Antibody Program
Milestone Achieved Through Selection of First ErbB3 Antibody Development...
Forum: her2group 04-15-2010, 02:33 PM
Replies: 16
Views: 3,516
Posted By Joe
Re: Hot Off The Press T-DM1

Copied from another BC Board and confirmed with Genentech

I just got off the phone this afternoon with the Genentech advocacy relations person I deal with, and T-DM1 was the #1 topic of...
Forum: her2group 04-15-2010, 02:15 PM
Replies: 16
Views: 3,516
Posted By Joe
Hot Off The Press T-DM1

ImmunoGen, Inc. Announces Favorable Update Provided by Roche Related to Its Trastuzumab-DM1 Regulatory Plans
Press Release Source: ImmunoGen, Inc. On Thursday April 15, 2010, 1:01 am EDT
WALTHAM,...
Forum: her2group 04-15-2010, 10:18 AM
Replies: 40
Views: 12,535
Posted By Joe
Re: BCA fighting to keep tdm1 off market

I do not feel that one letter from one breast cancer organization will sway Genentech from applying for approval of T-DM1 or the FDA from approving the application.

The application will probably...
Forum: her2group 04-14-2010, 01:53 PM
Replies: 40
Views: 12,535
Posted By Joe
Re: BCA fighting to keep tdm1 off market

Expanded access is another name for "Compassionate Use"

Christine and I have been meeting with Genentech since last June's ASCO meeting lobbying this issue.

Unfortunately because of...
Forum: her2group 04-14-2010, 10:32 AM
Replies: 16
Views: 4,650
Posted By Joe
Neuropathy Study

Participate in an NIH funded study for Neuropathic Pain

WHAT IS THE STUDY?

The study is testing Websites about self-managing neuropathic pain.


WHY PARTICIPATE?

ยท You may or...
Forum: her2group 04-14-2010, 10:08 AM
Replies: 40
Views: 12,535
Posted By Joe
Re: BCA fighting to keep tdm1 off market

Great Idea Shelia,

I am sure that we have many prolific writers in our group who can also write to the FDA.
In case you missed it:
Richard Pazdur, M.D., F.A.C.P.
Director
Office of Oncology...
Forum: her2group 04-08-2010, 01:46 PM
Replies: 5
Views: 2,040
Posted By Joe
Do It Yourself Herceptin Treatment

I came across the following information:

Halozyme Announces Roche Doses First Patient In Phase 3 Clinical Trial With Subcutaneous Herceptin.

22 Oct 2009

Halozyme Therapeutics, Inc....
Forum: her2group 04-07-2010, 07:41 AM
Replies: 11
Views: 2,367
Posted By Joe
Re: Ideas For Teleconferences

Any other suggestions?

Joe
Forum: her2group 04-05-2010, 09:16 AM
Replies: 11
Views: 2,367
Posted By Joe
Ideas For Teleconferences

Our organization will soon be soliciting grant money from various sources. We have decided to host a series of teleconferences and need ideas from our members.

We wish to focus on quality of life...
Forum: her2group 04-02-2010, 12:25 PM
Replies: 10
Views: 3,663
Posted By Joe
Re: insurance questions

Juanita,

Several years ago we held a teleconference with Johanna Morales of the Cancer Legal Resoiurce Center.
She spoke on the topic for an hour.

Here is an MP3 recording of Ms. Morales'...
Forum: her2group 04-02-2010, 03:27 AM
Replies: 0
Views: 1,342
Posted By Joe
Legal Rights Seminar

Los Angeles and Chicago

Regards
Joe
Forum: her2group 03-31-2010, 08:52 AM
Replies: 4
Views: 2,208
Posted By Joe
Re: Congressionally Directed Medical Research Panel in need of breast cancer survivor

Yes, We would write a letter to nominate anyone from our group.

Regards
Joe
Forum: her2group 03-29-2010, 06:52 PM
Replies: 35
Views: 4,827
Posted By Joe
Re: Happy sheila

N-JOY !!!

Hugs
Christine and Joe
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