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Search took 0.01 seconds; generated 72 minute(s) ago. Search: Posts Made By: linzer
Forum: her2group 03-28-2015, 11:24 AM
Replies: 45
Views: 32,521
Posted By linzer
Re: In Praise of Perjeta

Yay! I only had 4 rounds of Perjeta along with Herceptin and Taxol. I had a complete response - yipee! I agree about the diarrhea being challenging. I did find that the L-glutamine I took to prevent...
Forum: Herceptin / Tykerb 03-19-2015, 03:55 PM
Replies: 4
Views: 12,333
Posted By linzer
Re: Last Herceptin treatment!!!!

Great news! I have 6 more after this week. I can't wait to post the same news!!
Forum: her2group 03-19-2015, 03:53 PM
Replies: 8
Views: 2,943
Posted By linzer
Re: HELP! Friend dx'd w/stage 4 pancreatic cancer

I'm so sorry to hear this. My thoughts are with you, your friend, and her family. I don't have any experience with any of the drugs except Taxol. I did relatively well on it. I did have mild...
Forum: her2group 03-10-2015, 05:41 PM
Replies: 36
Views: 9,109
Posted By linzer
Re: Adriana Mangus has her wings

I'm so sad to hear this. My thoughts and prayers are with her loved ones.
Forum: her2group 02-28-2015, 04:48 PM
Replies: 16
Views: 4,487
Posted By linzer
Re: I just wanted to say

That's wonderful! I love hearing from those who are far out from diagnosis. It gives hope and inspiration!
Forum: her2group 02-15-2015, 11:28 AM
Replies: 17
Views: 5,288
Posted By linzer
Re: The Emperor of All Maladies

I'm extremely excited about this film. I read the book this last summer while sitting for tx at Dana Farber. I cannot wait to see what Ken Burns does with the material. Important stuff that we should...
Forum: her2group 01-29-2015, 05:46 PM
Replies: 34
Views: 9,737
Posted By linzer
Re: My News

Ann, Your post brought tears of joy to my eyes! I also benefitted from Perjeta, but at an earlier stage as a first line tx. I am thrilled that it has given those who have mets/higher stage a chance...
Forum: her2group 01-18-2015, 07:36 AM
Replies: 16
Views: 3,943
Posted By linzer
Re: NED for 5 years!

That's awesome news! I'm still in treatment (Herceptin only at this point) until summer, but cannot wait until I can start to count the days once I'm off treatment! Yay you!!
Linda
Forum: her2group 12-24-2014, 12:13 PM
Replies: 11
Views: 3,018
Posted By linzer
Re: Happy Her2+ Christmas!

Thank you, Pamelamary. May each of you have a blessed holiday season. I truly appreciate this site and those of you who have been here with answers and support. I hope that 2015 is a year of good...
Forum: her2group 12-22-2014, 04:42 AM
Replies: 27
Views: 8,155
Posted By linzer
Re: My daughter, Susan.

I am so sorry. My thoughts are with you and your family during this time. Linda
Forum: her2group 12-16-2014, 06:28 PM
Replies: 19
Views: 5,006
Posted By linzer
Re: More Good Results on Perjeta

That's wonderful news! May you continue to trend in a positive direction!

Linda
Forum: her2group 12-04-2014, 01:24 PM
Replies: 49
Views: 15,421
Posted By linzer
Re: Prayers for Kristin Schwick

So sorry to hear this. Sympathies to all of you who had become friends with her and especially to her family. Heartbreaking.
Forum: her2group 12-04-2014, 01:21 PM
Replies: 16
Views: 6,931
Posted By linzer
Re: Surgery over and prayers answered!

Wonderful news!!
Forum: her2group 11-30-2014, 09:49 AM
Replies: 6
Views: 3,159
Posted By linzer
Re: Side effects-THP

I also used Biotene toothpaste and mouthwash. In addition, I did salt/baking soda rinses many times a day and coconut oil pulls once a day. With the coconut oil, you put a teaspoon or so in your...
Forum: her2group 10-04-2014, 07:17 PM
Replies: 10
Views: 5,961
Posted By linzer
Re: New HER-2 iPhone App

I'm sorry Tricia. I don't have history on here. Did I somehow offend? If so, I'm really sorry.
Forum: her2group 10-04-2014, 08:35 AM
Replies: 10
Views: 5,961
Posted By linzer
Re: New HER-2 iPhone App

It's going to be great. I was at the advisory board in Sept. and saw a demo. I cannot say more since I signed a non-disclosure, but since they are handing out cards announcing it, I think it's okay...
Forum: her2group 09-28-2014, 06:47 AM
Replies: 13
Views: 23,101
Posted By linzer
Re: "remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for Sta

Yahoo! I'm living proof it works well for early stage given my pCR. I hope that it continues to work wonders for Stage IV sisters especially!!
Forum: her2group 09-27-2014, 05:05 PM
Replies: 6
Views: 4,477
Posted By linzer
Re: What helps the Taxol Itching?? Drives me nuts!!

I actually just read something an hour ago that suggests that the itching is actually a form of neuropathy. I have one spot on the bottom of my foot near the arch that is itchy. It drives me crazy. I...
Forum: her2group 09-27-2014, 10:07 AM
Replies: 22
Views: 5,977
Posted By linzer
Re: Woot! Celebrate with me :)

Thanks everyone! It has been a few days of happiness for sure! Now I have to hunker down and prepare for AC and radiation. I can do this. I can do this. I can do this...
Forum: her2group 09-25-2014, 07:40 AM
Replies: 22
Views: 5,977
Posted By linzer
Re: Woot! Celebrate with me :)

I have AC next, probably starting in October. How was AC for you?
Forum: her2group 09-24-2014, 03:59 PM
Replies: 22
Views: 7,020
Posted By linzer
Re: Prayers needed... Scared

I will be thinking of you. I hope that it will be nothing, especially given your prior history of cysts etc. but I totally understand how anxiety producing this time must be for you. Try, if you can,...
Forum: her2group 09-24-2014, 03:21 PM
Replies: 22
Views: 5,977
Posted By linzer
Re: Woot! Celebrate with me :)

I actually am in the process of looking at the trials. I'd love to get into one. Thanks for the suggestion!
Forum: her2group 09-24-2014, 01:22 PM
Replies: 20
Views: 6,684
Posted By linzer
Re: End of my strength

I'm so sorry that you are in this spot. I know that it is difficult enough to have to deal with the cancer without having to manage other very stressful things on top of it. A while back we thought...
Forum: her2group 09-24-2014, 01:02 PM
Replies: 22
Views: 5,977
Posted By linzer
Woot! Celebrate with me :)

Just got off the phone with BS's NP... drum roll... pathology shows pathologically complete response. 2 cm tumor, 3 cm lymph node at dx ER/PR- GONE BABY - GONE!!! Woo hoo! Thanks Taxol, Herceptin,...
Forum: her2group 09-18-2014, 02:33 PM
Replies: 4
Views: 3,779
Posted By linzer
Re: A/C was easier than Taxol / Herceptin / Perjeta - :-(

Eva, sorry you are going through a tough time. I think we all could have written this post at some point (and probably have :)

I've not yet done AC. That's coming up in a few weeks after I heal...
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