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Search: Posts Made By: DianneS
Forum: her2group 12-23-2010, 07:18 PM
Replies: 7
Views: 4,878
Posted By DianneS
Re: Skin mets? Symptoms?

Tricia,

Thank you for your input as well. I definitely am having it checked out. The doc says because it appears and disappears it is most likely NOT cancer. Cancer, he says, tends to stay and...
Forum: her2group 12-23-2010, 07:12 PM
Replies: 7
Views: 4,878
Posted By DianneS
Re: Skin mets? Symptoms?

Hi Carolyn,

Thanks for your reply. I just went to my walk in clinic and saw a doc who said it is most likely not mets but some type of rash. They will do a biopsy on Dec. 30 when my regular doc is...
Forum: her2group 12-23-2010, 01:12 PM
Replies: 7
Views: 4,878
Posted By DianneS
Skin mets? Symptoms?

I have had raised, itchy welts on my scalp and along my lower spine off & on for months. They appear then disappear. I am on a lot of supplements and wonder if it could be that. Or could it be skin...
Forum: her2group 12-21-2010, 06:39 PM
Replies: 35
Views: 56,055
Posted By DianneS
Re: ER-/PR- HER2 staging poll

Ursula,

I cut and pasted this from another thread here:

A copy from another post of mine applies here too as a positive note:

These are quotes from the esteemed E. Perez, MD:

''Unlike...
Forum: Herceptin / Tykerb 11-29-2010, 10:22 PM
Replies: 15
Views: 6,435
Posted By DianneS
Re: Hair Issues

I just did a google search on nioxin shampoo. Yikes. Some of the ingredients can cause breast cancer. Here is the link
...
Forum: her2group 11-29-2010, 10:15 PM
Replies: 19
Views: 4,353
Posted By DianneS
Re: Do you get scans with your quarterly checks?

Catherine,

I see you are also a double mastectomy person like me. I have not decided whether I will do implants or not. I have prosthetics which are a pain. I am not comfortable going outside...
Forum: Herceptin / Tykerb 11-29-2010, 09:59 PM
Replies: 14
Views: 7,764
Posted By DianneS
Re: Herceptin weekly VS. Every three weeks

I did Herceptin every 3 weeks. I seemed to do ok on it, just felt tired. Heart function was fine. Sometimes I would feel puffy and feel a little spacey.

I didn't need benadryl with the herceptin...
Forum: Herceptin / Tykerb 11-29-2010, 09:47 PM
Replies: 15
Views: 6,435
Posted By DianneS
Re: Hair Issues

I did Carboplatin, Taxotere and Herceptin. Five and a half rounds of the T/C and a year of Herceptin. It is now a little over two years since my dx and my eyebrows which were nice and thick are...
Forum: her2group 11-29-2010, 09:17 PM
Replies: 19
Views: 4,353
Posted By DianneS
Re: Do you get scans with your quarterly checks?

Catherine,

I just get bloodwork every 6 months. I have not had a scan yet, except for an ultrasound and mammo at time of dx. I guess I could have one if I asked too....but isn't there risk of...
Forum: her2group 11-29-2010, 09:07 PM
Replies: 37
Views: 7,151
Posted By DianneS
Re: Bad MRI.Liver Met

Michka,

I live in Canada and everything is in French as well as English.

Milk thistle translated is:

'extrait de graines de chardon-Marie (80% de silymarine) 20:1 E.P. 250 mg = 5000 mg. ...
Forum: her2group 11-29-2010, 12:46 PM
Replies: 37
Views: 7,151
Posted By DianneS
Re: Bad MRI.Liver Met

Hi Michka,

I don't write on this board very much but I saw your post and wanted to respond.

I'm so sorry you are having to deal with all of this, but take heart in the posts from women who...
Forum: her2group 11-22-2010, 08:08 PM
Replies: 11
Views: 3,393
Posted By DianneS
Re: PH Environment

I detest doing research on the computer. I have satellite and it's horribly slow. So I don't know if there is a way to find out if you have a defective p53 gene or not. All I know from my onc is...
Forum: her2group 11-21-2010, 10:09 PM
Replies: 35
Views: 56,055
Posted By DianneS
Re: ER-/PR- HER2 staging poll

Aw, this silly computer! I am the 'unregistered guest'. I typed in my name and thought i was registered...sorry Debbie.

Dianne
Forum: her2group 11-21-2010, 06:43 PM
Replies: 35
Views: 56,055
Posted By DianneS
Re: ER-/PR- HER2 staging poll

I wonder what the prognosis is for us weakly ER+ women?

Have there been any studies?

Also, what constitutes weakly? Less than 10%?

I live in Canada and they don't do % here, at least in...
Forum: her2group 11-21-2010, 01:56 PM
Replies: 6
Views: 2,982
Posted By DianneS
Re: DES Daughters?

For additional information on the link between breast cancer and diethylstilbestrol (DES) exposure please visit:

Palmer, Prenatal Diethylstilbestrol Exposure and Risk of Breast Cancer Epidemiology...
Forum: her2group 11-21-2010, 01:21 PM
Replies: 11
Views: 3,393
Posted By DianneS
Re: PH Environment

Thanks Karen. I think mine and Debbie's (speaking for you, Debbie!) question was a few of the websites you quote are definitely pushing their own brand of supplements.

To quote Debbie: The other...
Forum: her2group 11-21-2010, 12:58 PM
Replies: 6
Views: 2,982
Posted By DianneS
Re: DES Daughters?

That's good to know. I do know that it depends upon when the mother took the DES - which trimester and for how long and how many mg's.
D
Forum: her2group 11-21-2010, 12:35 PM
Replies: 6
Views: 2,982
Posted By DianneS
Re: DES Daughters?

Bonnie, thanks for responding. DES daughters do have a 2 1/2 x more chance of developing breast cancer. This was verified by more than two oncs I talked to and I have seen it online as well as in...
Forum: her2group 11-21-2010, 12:27 PM
Replies: 35
Views: 56,055
Posted By DianneS
Re: ER-/PR- HER2 staging poll

KDR and kiwigirl,

did you get herceptin from the beginning of dx?

are you taking any hormone therapy such as tamoxifen or ai's?

I am not. But I am taking stuff from my naturopath such as...
Forum: her2group 11-19-2010, 08:09 PM
Replies: 6
Views: 2,982
Posted By DianneS
DES Daughters?

Did any of your mom's take DES while pregnant with you in the 1940's or 1950's? There is some evidence emerging now that daughters of DES have a 2 1/2 times greater chance of developing breast...
Forum: her2group 11-19-2010, 08:02 PM
Replies: 11
Views: 3,393
Posted By DianneS
Re: PH Environment

There are a lot of other factors besides pH that affect cancer growth. If it was that easy everyone who has cancer would be cured. In a normal body the pH will go from acid to alkaline every day -...
Forum: her2group 11-19-2010, 07:47 PM
Replies: 35
Views: 56,055
Posted By DianneS
Re: ER-/PR- HER2 staging poll

What about those who are weakly ER positive? Which I am....

Dianne
Forum: Articles of Interest 11-19-2010, 07:41 PM
Replies: 0
Views: 2,383
Posted By DianneS
P53 gene

P53 gene:
I typed this title in the search area but nothing came up. This gene is supposedly the master gene. My onc said that grade 3 tumours usually indicate there is a defect in the p53 gene and...
Forum: her2group 03-07-2010, 04:08 PM
Replies: 10
Views: 2,140
Posted By DianneS
Re: For Laurel and others who have been

Thanks, Jean, for the article. What does this mean for those of us who are either weakly ER+ or ER-? Is the article basically saying that reducing estrogen is not a good thing, necessarily?
...
Forum: her2group 12-27-2009, 06:44 PM
Replies: 37
Views: 23,715
Posted By DianneS
Re: Bilateral mastectomy support group

Hi Stephanie,

My sister in law's sister had implants done 8 years after her mastectomy, but she was in her early 40's. I guess I feel a bit of a crunch because I am 56. Surgery is hard on the old...
Showing results 26 to 50 of 293

 
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