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Showing results 26 to 50 of 325
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Posts Made By:
IrvineFriend
Forum:
her2group
12-18-2015, 11:49 PM
Replies:
20
Progression, starting TDM1
Views:
10,955
Posted By
IrvineFriend
Re: Progression, starting TDM1
I have no experience with Kacyla but wanted you to know you're in my thoughts and prayers for any easy recovery and YAY about the hair (although I loved not dealing with it during treatment :)
Forum:
Profiles In Courage
12-18-2015, 11:44 PM
Replies:
7
Bilateral Mastectomy 7 yrs. ago..pulled pectoral muscle..indented badly and painful!
Views:
32,657
Posted By
IrvineFriend
Re: Bilateral Mastectomy 7 yrs. ago..pulled pectoral muscle..indented badly and painf
Please keep us updated as it may not be unique to you. I had implants and honestly, it's taken a couple years to feel comfortable with them. It's not minor surgery. Have you thought about going back...
Forum:
her2group
12-18-2015, 11:20 PM
Replies:
22
Approaching 5 yr cancerversary but running out of options
Views:
14,460
Posted By
IrvineFriend
Re: Approaching 5 yr cancerversary but running out of options
I'm so sorry for your recent news and progression. Like many others, I can't offer any advice because I think it's so personal. I know I told myself after my treatment that I could not/ would not do...
Forum:
her2group
12-18-2015, 11:02 PM
Replies:
42
Karen has moved on
Views:
36,711
Posted By
IrvineFriend
Re: Karen has moved on
Karen was a real fighter, but also was there for others who were fighting. This is such a loss and I'm saddened for all of us and her friends/ family.
-Julie
Forum:
her2group
09-03-2015, 08:56 PM
Replies:
12
Do you ever feel like enough it enough
Views:
5,091
Posted By
IrvineFriend
Do you ever feel like enough it enough
Hi,
everyone on this site is so positive and searching for new treatments. Anyone just want to let things takes its course? I don't have a death wish, but sometimes I must want to stop all...
Forum:
Keeping Your Mind Off of BC
07-22-2015, 10:44 PM
Replies:
7
Exercise
Views:
11,718
Posted By
IrvineFriend
Re: Exercise
Yep, exercise is a big one. I could never do that extensive of a program as I work 60-70+ hours/ week, but if it wasn't for work, I would be playing more. I know it helped my outcome. I was SO sick...
Forum:
her2group
07-22-2015, 10:26 PM
Replies:
39
All clear Mammo and ten years out!
Views:
10,509
Posted By
IrvineFriend
Re: All clear Mammo and ten years out!
Yay!!!! I hope we all get to do this every year :)
Forum:
her2group
05-07-2015, 08:19 PM
Replies:
24
When work really hits home
Views:
7,369
Posted By
IrvineFriend
Re: When work really hits home
Thanks Bonnie but have decided to leave the HER group as of now. I live and work in horrible diseases and actually broke down at work because of frustrations. It's almost impossible for me to hear of...
Forum:
her2group
05-07-2015, 07:05 PM
Replies:
24
When work really hits home
Views:
7,369
Posted By
IrvineFriend
Re: When work really hits home
Sorry to offend anyone. It's frustrating for us in the field of wanting to save lives (I've been doing this for 25+ years before my diagnosis). Language is dictated by FDA and associated...
Forum:
her2group
05-06-2015, 07:44 PM
Replies:
24
When work really hits home
Views:
7,369
Posted By
IrvineFriend
Re: When work really hits home
Dr. Google did a good job. As we all know, Trastuzumab and Pertuzumab can stop working for HER2+ cancer. So this is a completely different mechanism that will be another choice for patients who have...
Forum:
her2group
05-05-2015, 11:11 PM
Replies:
13
chemo port
Views:
4,823
Posted By
IrvineFriend
Re: chemo port
Too busy and lazy to have it removed. Doesn't hurt anything. When I catch a breath, I'll have it removed. I just turned 50 and now I have all kinds of other things to do like a uterine biopsy and...
Forum:
her2group
05-05-2015, 10:33 PM
Replies:
24
When work really hits home
Views:
7,369
Posted By
IrvineFriend
When work really hits home
I visit this site to provide support to those reaching out and to remember how hard my battle was so I don't sweat the small stuff. I work in pharmaceuticals, specifically oncology drugs. Our company...
Forum:
her2group
05-05-2015, 09:54 PM
Replies:
11
Not the end of the world
Views:
3,337
Posted By
IrvineFriend
Re: Not the end of the world
Have a great trip! Just relax and enjoy the scenery!!!!!
Forum:
Diet and Nutrition
05-05-2015, 09:29 PM
Replies:
7
Avoid salad
Views:
13,901
Posted By
IrvineFriend
Re: Avoid salad
You can still eat salad if you wash it at home. I stupidly ate at a salad bar during chemo and that night was in the hospital for four days. Personally, I avoided eating out all together after that...
Forum:
her2group
04-19-2015, 08:02 PM
Replies:
9
Breast itchiness
Views:
3,564
Posted By
IrvineFriend
Re: Breast itchiness
I had serious itching before sensation returned. And then it did return. I still get terrible itching on both side and under my arm.
Good luck with your appointment, but I would not worry at all....
Forum:
her2group
04-19-2015, 07:58 PM
Replies:
60
Cancer in Spinal Fluid - given 6 months
Views:
26,499
Posted By
IrvineFriend
Re: Cancer in Spinal Fluid - given 6 months
Saygoon,
Like everyone else, I'm thinking of you and hopeful you receive some other options very soon. There are a lot of trials going on; if you have the insurance and resources, please push...
Forum:
her2group
04-12-2015, 09:09 PM
Replies:
33
Scan this morning
Views:
7,655
Posted By
IrvineFriend
Re: Scan this morning
That's so great that you got to meet each other! Keep up the good work ... we're all here rooting for you and keeping you in our prayers :))))
-Julie
Forum:
her2group
04-06-2015, 11:15 PM
Replies:
3
Remember Adriana Friday, 4/3 your time.
Views:
2,024
Posted By
IrvineFriend
Re: Remember Adriana Friday, 4/3 your time.
Wish I had seen this when it was posted. I adore Adriana - she was an amazing woman and I miss her.
Forum:
her2group
04-06-2015, 10:51 PM
Replies:
32
HER-2 Positive & Triple Negative = Cannabis Intervention
Views:
21,064
Posted By
IrvineFriend
Re: HER-2 Positive & Triple Negative = Cannabis Intervention
By the way, unless someone finds a way to patent a combination of THC and something else, it will never get approved because there wouldn't be any incentive to spend the millions of dollars to fund...
Forum:
her2group
04-06-2015, 10:45 PM
Replies:
32
HER-2 Positive & Triple Negative = Cannabis Intervention
Views:
21,064
Posted By
IrvineFriend
Re: HER-2 Positive & Triple Negative = Cannabis Intervention
Linn,
Not all types of pot have the same affect. I also hate the paranoid feeling but the variety I took during chemo did not do this at all. I bought about 4 kinds and then stuck with the one...
Forum:
Herceptin / Tykerb
04-01-2015, 10:42 PM
Replies:
11
Still severe afternoon fatigue daily after 4monthsTCH, 6months Herceptin only.
Views:
16,007
Posted By
IrvineFriend
Re: Still severe afternoon fatigue daily after 4monthsTCH, 6months Herceptin only.
I was an extremely healthy 1/2 marathon runner and since chemo in 2013 can't seem to get back to any level of fitness. I'm wondering if there is a successful treatment for the mental side that we'd...
Forum:
her2group
04-01-2015, 10:14 PM
Replies:
33
Scan this morning
Views:
7,655
Posted By
IrvineFriend
Re: Scan this morning
I'm sorry your scans showed cancer. It's a beast, but there are new therapies coming out constantly. Herceptin was that magic bullet and there are many in clinical trials. As someone else said, it's...
Forum:
her2group
03-04-2015, 09:18 AM
Replies:
36
Adriana Mangus has her wings
Views:
8,939
Posted By
IrvineFriend
Re: Adriana Mangus has her wings
Such sad news! I had the pleasure to meet Adriana and she was such beautiful person. I truly thought she would/ did beat this thing.
Forum:
her2group
02-10-2015, 05:23 PM
Replies:
32
HER-2 Positive & Triple Negative = Cannabis Intervention
Views:
21,064
Posted By
IrvineFriend
Re: HER-2 Positive & Triple Negative = Cannabis Intervention
Too bad its the THC that is the active ingredient. Only because I did use pot during my last round of chemo and it was truly a godsend. I live in CA where its legal for medicinal purposes but also...
Forum:
her2group
02-10-2015, 05:09 PM
Replies:
26
Cyberknife Success and Ceesun
Views:
7,345
Posted By
IrvineFriend
Re: Cyberknife Success and Ceesun
Truly THRILLING news. Have a wonderful 2015 with your NED!!!
Showing results 26 to 50 of 325
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