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Search took 0.08 seconds; generated 76 minute(s) ago. Search: Posts Made By: 'lizbeth
Forum: her2group 12-01-2014, 10:37 AM
Replies: 49
Views: 15,173
Posted By 'lizbeth
Re: Prayers for Kristin Schwick

It is very sad the number of mothers that are lost to breast cancer. Kristen was more than a fellow breast cancer patient - she was a wonderful source of information on the board.

It is times...
Forum: her2group 12-01-2014, 10:13 AM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

Look, I spoke with an employee of Illumina yesterday. It had nothing to do with our current conversation, they called me about an unrelated topic.

Of course, they are quite familiar with 23andme....
Forum: Clinical Trials 12-01-2014, 09:43 AM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

LMAO, I think there is a reason that you are living now.

When you are dealt cards can you pick 4 Aces every time? Nor can you pick which genes are hetero- or homozygous.

Perhaps the "corsets...
Forum: Articles of Interest 12-01-2014, 09:34 AM
Replies: 1
Views: 23,781
Posted By 'lizbeth
Re: Overlooking Evolution: A Systematic Analysis of Cancer Relapse and Therapeutic Re

Hello Hopeful,

Thank you for sharing. The medical industry got so entrenched in the treat and followup model of cancer care. I think by default and science has just progressed enough to...
Forum: her2group 11-30-2014, 08:00 PM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

This is directly from Dr. Weidhaas. I emailed and asked her questions when Rhondalea and I had a spirited discussion about the KRAS study.
Forum: Clinical Trials 11-30-2014, 07:58 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

My husband is homozygous for C282Y and H63D. Very familiar with the phlebotomy treatment of this. I wouldn't exactly call that "dodging a bullet" - but it was nice that she found it early.
...
Forum: her2group 11-30-2014, 12:24 PM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

There are over 30 publications, from all over the world, supporting the importance of this mutation. KRAS is not only real, but important for patients.
Forum: her2group 11-30-2014, 12:23 PM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Post Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

$295 is literally what it costs to run it. The market cost is more around $2000, although we have kept that down as well to $595. However, we do have financial assistance, and haven't said no to a...
Forum: her2group 11-30-2014, 12:22 PM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Re: The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

23 and me is a GWAS platform, which is known to have about 10-15% error. That is just a fact. You can find out your BRCA results there as well, but is 10-15% error ok? Obviously not. We have a test...
Forum: her2group 11-30-2014, 12:21 PM
Replies: 9
Views: 5,460
Posted By 'lizbeth
Post The Army of Women cancelled webinar response from Dr. Joanne Weidhaas

With the Susan Love Foundation, from the start we discussed with her offering results to women, through the study. She said, no, but it would be great if you could offer them outside of the study...
Forum: Clinical Trials 11-30-2014, 12:11 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Oh I clicked on the blog and it seems to have some nice stories about folks connecting to lost loved ones. Anything else I have to get onto other things and don't have time to dig.
Forum: her2group 11-30-2014, 10:17 AM
Replies: 6
Views: 2,759
Posted By 'lizbeth
Re: Taxol

Rupali,

I see another post that your hair has already been affected by radiation therapy. Jackie had some good advice.

Sorry about the hair, mine did not grow back well after the taxane -...
Forum: Clinical Trials 11-30-2014, 09:29 AM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

I'm still mulling over this - all those impressive backgrounds and they still got stomped by the FDA?

Well perhaps 23andme tests for things - but are they doing specific research to the treatment...
Forum: her2group 11-30-2014, 09:02 AM
Replies: 6
Views: 2,759
Posted By 'lizbeth
Re: Taxol

Rupali,

You can read NCCN guidelines for more information on the US standard of care treatments.

My understanding is that you already have brain mets? Tykerb has been mentioned before and is...
Forum: Clinical Trials 11-29-2014, 05:29 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Actually I had an email about family tree research is why 23andme is familiar.

Oh, I see, you have a personal interest in the company. Do you have any kind of professional background in genetics?...
Forum: Clinical Trials 11-28-2014, 04:53 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Oh . . . so this is why the 23andme sounded so familiar - that's right they were the ones on the news that the FDA sent this letter to. I remember now. And wasn't there something else that was...
Forum: her2group 11-27-2014, 11:36 AM
Replies: 4
Views: 2,458
Posted By 'lizbeth
Re: Recurrence rates - Canadian study released

Debbie,

I received an error message. Could you post us another link?

The newest information is 6-10 years old. I supposed for 2008 and on for Primary with Herceptin, and the addition of...
Forum: her2group 11-26-2014, 11:03 PM
Replies: 25
Views: 8,914
Posted By 'lizbeth
Re: Is it okay to cuss on here?? Cuz this is a Bitch

I know, I know, she is NOT stage IV. Only Stage IIIC.

This time it seems like the tumors ARE responding to treatment, unlike your initial.

Fascinating. What if you get a pCR? Lifetime...
Forum: her2group 11-26-2014, 03:02 PM
Replies: 25
Views: 8,914
Posted By 'lizbeth
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Anyway, you Passive Aggressive friend here is really happy that you've started posting again.

We missed you, honest, lol!
Forum: Clinical Trials 11-26-2014, 02:19 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

I have a friend with a rare cancer that did a genome study. She is almost the only one out there being treated for a bile duct cancer at her age. Now I am more curious as she and her doctors gave...
Forum: her2group 11-26-2014, 02:05 PM
Replies: 25
Views: 8,914
Posted By 'lizbeth
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Well it is about time you came clean and tell us about the scans. The last information was about regional recurrence.

Where else is your cancer besides the 1 supraclavicular node? Is is still...
Forum: Clinical Trials 11-26-2014, 12:15 PM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Oh . . . maybe the genome study would be perfect for Linn65?

Can you post under clinical trials more information for others please.
Forum: Clinical Trials 11-26-2014, 11:53 AM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Gosh, and how do you really feel Rhodalea?

So I am curious after the genotyping, did you get the results too? What did you learn?

To be honest, if we could dig into the backgrounds of our...
Forum: Clinical Trials 11-26-2014, 11:24 AM
Replies: 7
Views: 25,879
Posted By 'lizbeth
Re: 5 years of GP2 trial completed!

My nurse said she has a few participants that mentioned "that lady from San Diego".

I feel the same, very excited about the shift that vaccines will bring. No more treat and wait for recurrence. ...
Forum: Clinical Trials 11-26-2014, 11:16 AM
Replies: 20
Views: 43,522
Posted By 'lizbeth
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Yes, I received the same information from Dr. Love's Army of Women.

I was not offended. I welcome all and any new information on my specific cancer.

I do grit my teeth over the numerous...
Showing results 26 to 50 of 500
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