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Search took 0.07 seconds; generated 87 minute(s) ago. Search: Posts Made By: Rolepaul
Forum: her2group 05-16-2012, 07:06 AM
Replies: 67
Views: 49,706
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Potra,

Have them contact the main center in Houston Texas. Dr. Loghin is the neurooncologist and Dr. Melhem-Bertrandt is the breast oncologist. This was a compassionate care treatment, but I...
Forum: her2group 05-15-2012, 12:34 PM
Replies: 67
Views: 49,706
Posted By Rolepaul
Smile Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Nina gets down at times, but is now looking to go back to giving therapeutic massages or being a clinic RN. The IT Herceptin with Methotrexate was a good first thought, but the darn stuff irritated...
Forum: her2group 05-15-2012, 06:05 AM
Replies: 4
Views: 1,877
Posted By Rolepaul
Re: Lani, Rich or others opportunity for advocates

Birthday celebration for Nina that week. We thought that she would not see the end of March based on her December 2011 diagnosis. Work would not let me go any way due to all the PTO being used up. ...
Forum: her2group 05-14-2012, 12:56 PM
Replies: 67
Views: 49,706
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Darita,

YOur progression is very similar to Nina's! She is being treated at MD Anderson in Houston Texas. I heard UCLA might also be treating patients with IT Herceptin. She is using an ommaya...
Forum: her2group 05-13-2012, 01:31 PM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Mario,

I sent some contacts at Genentech and NCI to you. I will follow up with MD Anderson people on Thursdya or Friday of this week.

Paul
Forum: her2group 05-13-2012, 11:42 AM
Replies: 67
Views: 49,706
Posted By Rolepaul
Post Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

My wife, Nina, was found to have Leptomeningeal Disease in the spine with too many spots to count and three active leasions in the brain Dec 15, 2011. With hard work by many people, she had ten rads...
Forum: her2group 05-13-2012, 11:23 AM
Replies: 17
Views: 3,674
Posted By Rolepaul
Re: Scan results weren't good

My wife's doctor has her on Navelbine and Herceptin for whole body preventative. This might be the next choice if Abraxane does not knock out the liver mets.
Forum: her2group 05-13-2012, 11:02 AM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Mario,

This is very frustrating for me as well! Did Carol end up getting treated in France? I am going to MD Anderson on 5/16 and can see if Carol would be able to get treated there.
Paul
Forum: her2group 04-15-2012, 09:16 AM
Replies: 389
Views: 223,482
Posted By Rolepaul
Smile Re: Calling all stage iv sisters

My wife had brain mets found 11/09. Surgery, gamma knife radiation, Xeloda/Tykerb. Then various radiation hot shots for two years. PET found cancer in the Leptomeningeal area of the spine 20-30 hot...
Forum: her2group 04-15-2012, 08:40 AM
Replies: 6
Views: 4,270
Posted By Rolepaul
Re: complete response of leptomeningeal her2+ bc to intrathecal herceptin (case repor

I posted as a guest about a month ago. My wife is still having the IT Herceptin and topotecan. She also is receiving IV Herceptin and Navelbine. She needs neupogen to get her White blood count up...
Forum: her2group 04-15-2012, 08:23 AM
Replies: 25
Views: 12,798
Posted By Rolepaul
Re: OH what to do???

The results from last week were even more promising. They show no more active sites in the spine, the sites in the brain are indistinct, no tumor cells in the spinal tap or blood, and overall it...
Forum: Herceptin / Tykerb 04-15-2012, 08:11 AM
Replies: 5
Views: 4,812
Posted By Rolepaul
Re: How are you Courtney?

Delaney,

Just wanted to know if you have had intrathecal Hereptin? My wife had this start in January 2012 with addition of topotecan and higher dosage Herceptin (80 mg perweekly dose) and the...
Forum: her2group 03-18-2012, 10:00 AM
Replies: 25
Views: 12,798
Posted By Rolepaul
Re: OH what to do???

My wife had the same problem. The intrathecal Herceptin is scary, but should work. 80 mg once per week for a 60 kg woman was necessary for results. Add 2X wk topotecan. Get IV herceptin and...
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