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Search took 0.03 seconds; generated 52 minute(s) ago. Search: Posts Made By: Sandra in GA
Forum: her2group 04-09-2010, 12:03 PM
Replies: 23
Views: 3,328
Posted By Sandra in GA
Re: I Just Hit My 5 Year Mark !!

WONDERFUL news Vickie! I echo Amelia, "Thanks for offering us HOPE."

Sandra
Forum: her2group 04-01-2010, 09:01 AM
Replies: 22
Views: 4,183
Posted By Sandra in GA
Re: 4 Years Ago Today!!

Way to go! I am very happy for you!

Sandra
Forum: her2group 04-01-2010, 08:53 AM
Replies: 38
Views: 7,198
Posted By Sandra in GA
Re: Not the news i had hoped for

Shelia,

You have been such an inspiration for me and I am sure hundreds more. My thoughts and prayers are with you. I lost my dad after a year long battle with lung cancer. I don't think this...
Forum: her2group 03-30-2010, 07:36 PM
Replies: 55
Views: 11,152
Posted By Sandra in GA
Re: Chelee????

Chelee,
It is wonderful to hear from you! I am so happy that you are feeling better. You have been through a lot. Keep up that spunky spirit. It serves you well.
Sandra
Forum: her2group 03-28-2010, 06:18 PM
Replies: 32
Views: 8,141
Posted By Sandra in GA
Re: Walter Reed Vaccine trial

Elizabeth,
I went up to Winston-Salem last weekend and am now in the trial! I will be going back the week of April12th for the week long first visit with scratch tests and the injection. They had...
Forum: Herceptin / Tykerb 03-13-2010, 04:54 PM
Replies: 15
Views: 6,801
Posted By Sandra in GA
Re: Hair Issues

Hi Neveah,
I think most everybody loses most if not all of their about 10-14 days after the first AC. That's what the treatment nurses told me down at Mayo. I still had mine on day fourteen. That...
Forum: Herceptin / Tykerb 03-11-2010, 05:13 PM
Replies: 3
Views: 2,983
Posted By Sandra in GA
Re: Question

David,
The trial that Chris directed you to is a phase III study involving both trastubzumab (Herceptin) and lapatinib (Tykerb) that is world wide. Dr. Edith Perez at Mayo Clinic in Jacksonville FL...
Forum: her2group 03-10-2010, 04:19 PM
Replies: 15
Views: 2,875
Posted By Sandra in GA
Re: Compression Sleeve/Lymphedema/Radiation

Vicky,
Almost all of my doctors; oncologist, surgeon, and radiation oncologist wanted me to have the radiation. Only my plastic surgeon did not endorse it. My concern was that I may end up with...
Forum: her2group 03-10-2010, 03:02 PM
Replies: 15
Views: 2,875
Posted By Sandra in GA
Re: Compression Sleeve/Lymphedema/Radiation

Vicky,
That rubbery pad is a bolus and like you said, it is supposed to bring the radiation to the skin. They began using one on my chest and under my arm when those two sites were radiated about...
Forum: her2group 03-10-2010, 02:44 PM
Replies: 5
Views: 3,029
Posted By Sandra in GA
Re: MED ALERT: Fosamax MAY promote bone breaks!

Thanks, Becky. I will up my dose of 2000 to 5000!
Forum: her2group 03-10-2010, 02:40 PM
Replies: 19
Views: 2,902
Posted By Sandra in GA
Re: Improvement in MUGA via Drugs!!!

So happy about your good news. You can't keep a good woman down!
Sandra
Forum: her2group 03-10-2010, 02:37 PM
Replies: 21
Views: 4,073
Posted By Sandra in GA
Re: Hope: Stage IV 6 years....gone skiing

Congratulations! You are truly an inspiration. With your attitude, you should be NED for many years to come!

Sandra
Forum: her2group 03-03-2010, 07:11 PM
Replies: 7
Views: 1,346
Posted By Sandra in GA
Re: Are there any HLA neg. folks in vaccine trials out there?

Yes, 'lizabeth, if everything goes as it should, I will be joining you. I am so excited! I thank you so much for sharing this with me. I did receive an email from the coordinator this morning and she...
Forum: her2group 03-03-2010, 07:39 AM
Replies: 7
Views: 1,346
Posted By Sandra in GA
Re: Are there any HLA neg. folks in vaccine trials out there?

Thank you Amelia. I did talk with my oncologist yesterday afternoon and he felt it was "reasonable" (to quote him.) I have to go back down to Mayo today for my plastic surgeon to check on this...
Forum: her2group 03-02-2010, 08:59 AM
Replies: 7
Views: 1,346
Posted By Sandra in GA
Re: Are there any HLA neg. folks in vaccine trials out there?

A VERY special "thank you" goes out to 'lizabeth! From your posting of the Walter Reed trial. I was able to get in touch with the nurse at Wake Forrest, the nearest site to me. After she checked with...
Forum: her2group 03-02-2010, 07:13 AM
Replies: 7
Views: 1,346
Posted By Sandra in GA
Re: Are there any HLA neg. folks in vaccine trials out there?

Yes, Stephanie, my oncologist had told me that 45% of the population is positive. After all, right now I an NED, and there are advances being made almost daily. Thank you for your response.
Sandra
Forum: her2group 03-01-2010, 05:03 PM
Replies: 7
Views: 1,346
Posted By Sandra in GA
Are there any HLA neg. folks in vaccine trials out there?

Well, I learned today that I do not qualify for the Mayo vaccine trial. You have to be positive to the HLA-A2 factor. I was very disappointed when they called. For some reason, I am having a hard...
Forum: her2group 02-23-2010, 09:45 AM
Replies: 29
Views: 4,720
Posted By Sandra in GA
Re: Jackie07 has a BIRTHDAY! :)

Happy, happy birthday, Jackie!
Forum: Herceptin / Tykerb 02-21-2010, 07:59 AM
Replies: 15
Views: 6,801
Posted By Sandra in GA
Re: Hair Issues

I also used the Nioxin, both the shampoo and conditioner. I began when I finished the Taxol last Frb. and didn't have much regrowth until this Dec. I completed the Herceptin and Tykerb Nov. 17th....
Forum: her2group 02-20-2010, 01:37 PM
Replies: 12
Views: 2,775
Posted By Sandra in GA
Re: Reconstruction

Hello,
Well, I finially got tube #3 removed this past Thursday. That was 4 weeks and 2 days after surgery. I am feeling SO much better. The area on my side where they had all three tubes coming out...
Forum: her2group 02-08-2010, 05:35 PM
Replies: 12
Views: 2,775
Posted By Sandra in GA
Re: Reconstruction

Thanks so much for the well wishes! I spoke with the nurse today and they are planning to remove one more tube tomorrow, but it will probably be a few more days before the last one comes out. I am...
Forum: her2group 02-07-2010, 12:20 PM
Replies: 12
Views: 2,775
Posted By Sandra in GA
Re: Reconstruction

I am hoping to have these last two drains removed this coming Tuesday. Thank you Curryalso for the encouragement. I am planning to be "lazy" for a while. As much as I am looking forward to rejoining...
Forum: Herceptin / Tykerb 02-02-2010, 08:38 AM
Replies: 4
Views: 3,723
Posted By Sandra in GA
Re: Side effects of Tykerb

The bland diet did help me. I also had a lot of diarrhea. I understand how you feel about trading whole wheat bread for white bread and canned fruits for fresh. As soon as I came off the Tykerb,...
Forum: her2group 02-02-2010, 08:30 AM
Replies: 12
Views: 2,775
Posted By Sandra in GA
Re: Reconstruction

Thanks to everyone for the encouragement. I did see my plastic surgeon and they removed one of the three drains. I also got an explanation for the strange sensations. On the way down, I had even...
Forum: her2group 01-31-2010, 05:42 PM
Replies: 12
Views: 2,775
Posted By Sandra in GA
Reconstruction

Hi Everyone,
After completing my Herceptin and lapatinib in Nov., I have been involved with what I am calling"repair work." Dec. 8th and 29th I had cataracts that grew because of the Decadron during...
Showing results 251 to 275 of 390
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