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Search took 0.08 seconds; generated 89 minute(s) ago. Search: Posts Made By: Rolepaul
Forum: her2group 08-12-2012, 07:16 AM
Replies: 9
Views: 3,881
Posted By Rolepaul
Re: Pertuzumab, Trastuzumab, vinorelbine,

The drugs will not make you lose your hair. My wife is on IV Herceptin and Navelbine (trade name of your drug) but had no cancer any where other than the brain. I am surprised at stating it will...
Forum: her2group 08-12-2012, 07:10 AM
Replies: 28
Views: 4,414
Posted By Rolepaul
Re: headaches

One of the few times where having a cold or sinus infection makes you feel relieved. Keep out of the brain mets club.
Forum: her2group 08-08-2012, 06:06 AM
Replies: 50
Views: 9,335
Posted By Rolepaul
Re: Good News...Bad News...Okay News

Denise,
Nina has had this done three times and said the prep is worse than the procedure. I will say to take the anti-nausea and steroids as she has needed them each time. Let's stay in touch...
Forum: her2group 08-07-2012, 12:21 PM
Replies: 28
Views: 4,414
Posted By Rolepaul
Re: headaches

May you not join the Brain Mets club, but if you do, please email me. It is not as bad as it was five years ago and your doctor may not know that.

I will tell you that Sunday night everyone on...
Forum: General Cancer News 08-07-2012, 12:17 PM
Replies: 2
Views: 1,383
Posted By Rolepaul
Re: Clinical trial targets breast cancer cells by injecting trastuzumab directly into

This trial was used as the basis for treatment for my wife. We felt the dosage was a little lower than was effective in other literature so we went to his highest dose of 40 mg for four weeks and...
Forum: her2group 08-07-2012, 06:34 AM
Replies: 27
Views: 5,291
Posted By Rolepaul
Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti

Courtney I think also had it spread to other areas besides the brain. Nina is having those treateed with IV Herceptin and Navlebine. We saw abnormal cells in blood pulls, tumor markers were above...
Forum: her2group 08-06-2012, 06:03 PM
Replies: 27
Views: 5,291
Posted By Rolepaul
Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti

Courtney had a lower dosage amount. I have two back pockets and both have plans.
Forum: her2group 08-06-2012, 02:24 PM
Replies: 6
Views: 2,546
Posted By Rolepaul
Re: Taste Buds

Taste buds grow fast, so chemo attacks them. Once your chemo stops, you get them back.
Forum: her2group 08-06-2012, 01:08 PM
Replies: 2
Views: 1,576
Posted By Rolepaul
Re: Leg Pain

Nina is doing massage and stretching. We are going to go to lower back steroid injection in the next two weeks. Celebrex helped, but did not relieve the symptoms.
Forum: her2group 08-06-2012, 01:05 PM
Replies: 27
Views: 5,291
Posted By Rolepaul
Re: after reading post by Rolepaul on brain mets--repostr 4 those running out of opti

Excellent work. I hope that we get news on more patients. I know that there may be more than one way to attack HER+ brain mets, but the Herceptin intothe CNS with either IT or lumbar puncture have...
Forum: her2group 08-03-2012, 07:07 AM
Replies: 67
Views: 49,706
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

The is a likelihood that she will have nausea and vomiting with the first treatment. That would be the best indicator it is working as it means the cancer cells have been destroyed. First MRI from...
Forum: her2group 08-02-2012, 06:54 AM
Replies: 18
Views: 4,250
Posted By Rolepaul
Re: Brain MRI

Nina is seeing Dr. Amal Melhem-Bertrandt at Breast Center, MD Anderson. Dr. Brusky at Pitt would be another source. Dr. Razier at Northwestern has a clinical trial going and has the stats. Those...
Forum: her2group 08-02-2012, 06:45 AM
Replies: 50
Views: 9,335
Posted By Rolepaul
Re: Good News...Bad News...Okay News

Dr. Brusky at Pitt is looking for Brain mets patients from this board. I let Denise know. If it is Leptomeningeal, he will do IT Herceptin. Still working on the ones deeper in the brain like...
Forum: her2group 07-31-2012, 06:28 PM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Eileen,
I am hearing that there might be some movement in that area. I just need to help push it just a little more. I think I need to get some info from MD Anderson to the doc.

I will do what...
Forum: her2group 07-31-2012, 06:22 PM
Replies: 18
Views: 4,250
Posted By Rolepaul
Re: Brain MRI

I think Dr. Eric Wiener from Dana Farber authored that paper. Try a google search and see. Nobody denies it. I found it out in November 2009. I almost did a very stupid thing when Nina's...
Forum: her2group 07-31-2012, 12:28 PM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Mario,
Drink a toast of champagne for me with Carol. Happy Anniversary! The next ones will be even sweeter. Here's to good MRI scans for Carol next week.

I will do any magic I can to help,...
Forum: her2group 07-31-2012, 11:20 AM
Replies: 4
Views: 2,079
Posted By Rolepaul
Re: Is the markers test standardized?

Being around smokers can kick it up. The test is not that expensive. Have them run a few in the same lab over three weeks. Long time ago I helped bring the test for one company to market and we...
Forum: her2group 07-31-2012, 07:35 AM
Replies: 20
Views: 6,330
Posted By Rolepaul
Re: Emelie

There are a lot of people fighting this disease. It is hard to admit that not all can be saved. Even more frustrating is knowing many have fought a good fight, but did not have the tools to win at...
Forum: her2group 07-31-2012, 07:01 AM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

I am trying to help Eileen, Denise, and Ashley. This is getting frustrating. Is it time to get some push in the media? I made a first inquiry, now I need to move it up to the next level. How...
Forum: her2group 07-30-2012, 08:02 PM
Replies: 235
Views: 296,702
Posted By Rolepaul
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

That website is not very comforting. I read it a few hours after we found out about the disease going from the brain to the spinal nerves. All it did was inspire me. Based on that work, both Carol...
Forum: her2group 07-30-2012, 07:55 PM
Replies: 18
Views: 4,250
Posted By Rolepaul
Re: Brain MRI

Current stats from Dana Farber and a couple of other studies say 30%. That is pretty good reason for gong forward with brain mets every two years initially. It seems pretty clear that if you get...
Forum: Articles of Interest 07-30-2012, 07:45 PM
Replies: 1
Views: 3,763
Posted By Rolepaul
Re: Brain Mets in Breast Cancer: Breaking Through the Barrier

Brain mets with HER+ patients cannot be handled by IV Herceptin. There are cases of putting the Herceptin on the other side of the blood brain barrier, including via Lumbar Push and Ommaya...
Forum: her2group 07-30-2012, 07:38 PM
Replies: 27
Views: 6,000
Posted By Rolepaul
Re: Scans...all day!!

Been there done that. The T-shirt was not that great. Tell the furry guy to give you all the support he can. There are lots of ways to get better. All it takes is attitude of anger to the disease...
Forum: her2group 07-29-2012, 03:35 PM
Replies: 18
Views: 4,250
Posted By Rolepaul
Re: Brain MRI

Tricia,

I firmly believe that you are entitled to your opinion. I think there is a good arguement for more frequent MRIs of the brain based on my wife's situation, but my bias is that this might...
Forum: Herceptin / Tykerb 07-29-2012, 12:55 PM
Replies: 6
Views: 6,341
Posted By Rolepaul
Re: Ca27.29#s and NED at stage IV

44 now 26.
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