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Forum: her2group 08-25-2006, 07:12 AM
Replies: 19
Views: 1,734
Posted By sfernando
Tykerb not released for compassionate use - approval projected for early 2007

According to my oncologist and her conversation with the drug company, Tykerb has not been relased anywhere for compasionate use. It has been released for expanded use, sort of like a less strict...
Forum: her2group 08-24-2006, 08:32 AM
Replies: 19
Views: 1,734
Posted By sfernando
Thank you Joe

for your amazingly quick reply. I will be taking this info with me to the doctor this morning.

Sharon :)
Forum: her2group 08-24-2006, 08:17 AM
Replies: 15
Views: 2,665
Posted By sfernando
lu ann

I've had several ct scans after having my port acccessed by a chemo nurse, with the contrast solution pushed through my port by the ct techs with no problems. I do have to remind the techs to use an...
Forum: her2group 08-24-2006, 08:11 AM
Replies: 15
Views: 2,665
Posted By sfernando
port on mastectomy lymph node removal side

My port was put in on my mastectomy and lymph node removal side because my mets appeared on the other side and would obstruct the surgeon around the neck and collarbone area.

I have a continual...
Forum: her2group 08-24-2006, 07:31 AM
Replies: 19
Views: 1,734
Posted By sfernando
Hi Sandy and all,

Sandy, at least the paperwork has been set in motion and you have a date to look forward to. I hope there are no delays, and I hope it works miracles on you.

I've been trying to get lapatinib,...
Forum: her2group 01-20-2006, 05:56 PM
Replies: 15
Views: 1,766
Posted By sfernando
I've had my port since May 05, used weekly or...

I've had my port since May 05, used weekly or more with no problems. I use the lidocaine cream and found that the recommended 45 minutes should be doubled. One and a half hours works well for me....
Forum: her2group 01-20-2006, 05:41 PM
Replies: 9
Views: 1,478
Posted By sfernando
I get pain under my arm when those tumors get...

I get pain under my arm when those tumors get larger and press on nerves. I feel my collarbone tumors when they are growing fast as vibrations, but no pain.
Forum: her2group 11-22-2005, 06:22 PM
Replies: 6
Views: 1,491
Posted By sfernando
Thanks everyone for your replies. My counts were...

Thanks everyone for your replies. My counts were good enough to start Navelbine today. I asked Research about the trials, and they are looking into them for me. Seems like I don't qualify for the...
Forum: her2group 11-22-2005, 10:38 AM
Replies: 6
Views: 1,491
Posted By sfernando
My original dx was a blooper. I had a mastectomy...

My original dx was a blooper. I had a mastectomy in December 04 for what was thought to be early stage 1, er/pr negative, her2 positive. I had no further tests, no scans, no treatment. I had the...
Forum: her2group 11-21-2005, 07:02 PM
Replies: 6
Views: 1,491
Posted By sfernando
When Herceptin stops working, then what?

I'm HER2++, ER & PR negative. I had 5 of 6 every three week carboplatin/taxol and herceptin weekly before my cancer started to progress.

Then we tried Gemzar with Herceptin. My cancer grew twice...
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