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Posts Made By:
Joan M
Forum:
her2group
03-26-2024, 11:37 AM
Replies:
0
HER2+ Survey
Views:
3,034
Posted By
Joan M
HER2+ Survey
Hello, Everyone!
Checking in to post this HER2+ survey being conducted through the University of Chicago. Please participate if you have MBC.
https://redcap.link/TREAT_HER2
I have been...
Forum:
her2group
10-17-2021, 07:06 AM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
My lung collapsed during the RFA but there was a 40% chance of that happening. I think each of us decides on the risk we are willing to take.
Forum:
her2group
10-01-2021, 03:09 PM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
Ugh! I’m hoping your insurance responds soon. Not any of us like waiting that long.
Forum:
her2group
09-23-2021, 05:07 PM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
Very glad to hear that you have this option, and keeping my fingers crossed that the procedure will be covered by your insurance.
Joan
Forum:
her2group
09-13-2021, 06:59 AM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
Best of luck with your appointment. In the least we have potential options. Joan
Forum:
her2group
09-06-2021, 06:51 AM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
Check out this 6-minute video, which mentions the delivery of radioactive beads directly to a tumor. The video about guided techniques such as radio-embolization appears at the bottom of the page.
...
Forum:
her2group
09-06-2021, 06:38 AM
Replies:
14
radio-embolization
Views:
6,393
Posted By
Joan M
Re: radio-embolization
Check out this 6-minute video. It mentions radio-embolization, when radioactive particles are delivered directly to a tumor. The video also explains other potential procedures.
The video about...
Forum:
her2group
06-20-2018, 05:35 AM
Replies:
17
hope for those with brain mets
Views:
6,295
Posted By
Joan M
Re: hope for those with brain mets
Thanks for this post. Excellent information. I had a brain met in 2008 and have never had another. Not sure why.
Forum:
her2group
06-20-2018, 05:22 AM
Replies:
389
Calling all stage iv sisters
Views:
167,466
Posted By
Joan M
Re: Calling all stage iv sisters
Glad to hear that you you've had a good result! I used local procedures as well, but in the lung.
Forum:
her2group
06-20-2018, 05:16 AM
Replies:
3
It's Back - I'm Back
Views:
4,942
Posted By
Joan M
Re: It's Back - I'm Back
Donna,
I'm sorry to hear about this after almost 12 years. We never know with this disease. It can be persistent. But I know that you will be persistent as well. Best of luck with your treatment....
Forum:
her2group
05-08-2018, 07:58 AM
Replies:
33
Cyberknife or Whole Brain?
Views:
13,972
Posted By
Joan M
Re: Cyberknife or Whole Brain?
You may want to check out Breast Cancer Trials (bctrials.org), which also has a a separate trial search engine. Perhaps a trial will work for you at some point.
I had only one brain met that was...
Forum:
her2group
05-08-2018, 07:55 AM
Replies:
14
ANDI'S STORY 1995 - 2017 and still going strong
Views:
12,535
Posted By
Joan M
Re: ANDI'S STORY 1995 - 2017 and still going strong
You always inspire me, Andi!
Forum:
her2group
05-08-2018, 07:53 AM
Replies:
16
Anyone Stage IV De Novo With 10+ Years NED?
Views:
15,626
Posted By
Joan M
Re: Anyone Stage IV De Novo With 10+ Years NED?
Ten years NED this year.
Diagnosed stage 4 in 2007 (diagnosed stage 2 in 2003).
HER2+ used to be such a dreadful diagnosis back then. Now, we have many treatment options to help stabilize and...
Forum:
her2group
01-27-2018, 01:26 AM
Replies:
40
Amy? (Mtngrl)
Views:
23,879
Posted By
Joan M
Re: Amy? (Mtngrl)
Thanks for letting us know, Steph. My prayers go out to Amy and her family during this very difficult time.
Forum:
her2group
01-27-2018, 01:11 AM
Replies:
15
News old or new -- i recently found out
Views:
7,746
Posted By
Joan M
Re: News old or new -- i recently found out
This is very sad news. I met Michka and her husband in Paris for dinner in 2011. It is a nice memory, as we all enjoyed ourselves, and yes J-P couldn't really follow the English all that well. She...
Forum:
her2group
10-28-2017, 09:40 AM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Re: Decisions, decisions
Thanks, Steph, for your reply. It will be interesting to see how well I feel now that I've stopped H.
One of my concerns is about a mutation that was discovered with my Guardant Health 360 liquid...
Forum:
her2group
10-27-2017, 01:03 PM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Re: Decisions, decisions
Hello, again, ladies,
Just an update on my treatment. I've decided to take a 3-month break and try to sort out whether I'm having heart issues.
I often feel out of breath at the least...
Forum:
her2group
10-15-2017, 09:20 AM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Re: Decisions, decisions
Hi Becky,
That I do. In fact, I left my place of birth about 4 years ago and moved just across the river and down the road a piece. But I'm still being treated in NYC and go back and forth all the...
Forum:
her2group
10-14-2017, 12:43 PM
Replies:
42
Phooey--Brain Mets
Views:
21,565
Posted By
Joan M
Re: Phooey--Brain Mets
Always wish you the best, Amy.
Joan
Forum:
her2group
10-14-2017, 12:42 PM
Replies:
27
Our Waterdreamer is Gone
Views:
14,291
Posted By
Joan M
Re: Our Waterdreamer is Gone
I'm so sorry to hear this about Fern. She and Karen were close.
Joan
Forum:
her2group
10-14-2017, 12:40 PM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Re: Decisions, decisions
Hi Jean,
And now I practically have a bum arm. "Happiness" doesn't last forever.
Great to hear that you're doing well!
Best,
Joan
Forum:
her2group
10-10-2017, 01:18 PM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Re: Decisions, decisions
Thanks, Tracy. I know of another women being treated at Fred Hutch in Seattle, where they tried to put a port back in at the same location but it didn't work. She had to have it inserted on the other...
Forum:
her2group
10-08-2017, 08:31 AM
Replies:
13
Decisions, decisions
Views:
7,501
Posted By
Joan M
Decisions, decisions
I'm trying to decide whether to take a break from Herceptin or put in another port.
My port was removed in 2006 after my treatment for stage 2 breast cancer (ER-/PR-/HER2+), and then six months...
Forum:
her2group
09-29-2017, 06:49 AM
Replies:
4
Northwest MBC conference
Views:
5,536
Posted By
Joan M
Re: Northwest MBC conference
Steph, Great spending time with you, as well. I think that videos from the conference are available online for anyone who missed the live-stream. The first day was entirely on complementary medicine,...
Forum:
her2group
08-15-2017, 08:22 PM
Replies:
4
Northwest MBC conference
Views:
5,536
Posted By
Joan M
Re: Northwest MBC conference
Me too, Steph! It's been awhile.
Joan
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