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Posts Made By:
annettchen
Forum:
her2group
09-16-2021, 09:11 AM
Replies:
4
Tucatinib Is Active Against Brain Metastases in HER2+ Breast Cancer
Views:
5,922
Posted By
annettchen
Re: Tucatinib Is Active Against Brain Metastases in HER2+ Breast Cancer
Not sure this is the right thread - please feel free to reposition as needed. Just wanted to cross-post / share from social media, because there's not much positive around for us younger (relatively)...
Forum:
her2group
06-07-2016, 06:10 PM
Replies:
36
12 years Stage 4 - Still A-OK
Views:
17,955
Posted By
annettchen
Re: 12 years Stage 4 - Still A-OK
Hi Mamacze / Kim,
happy, happy birthday! You inspire me - as you did when I was first diagnosed a bit over 2 years ago and completely off my rocker with fear.
I hope I can do what you're doing -...
Forum:
her2group
04-09-2016, 01:06 PM
Replies:
6
Stage 4, need more options
Views:
4,562
Posted By
annettchen
Re: Stage 4, need more options
I believe that by the book, TDM-1 is in order in such a case - it's second line when Herceptin / Perjeta fail you in the body (based on what my oncologist says - mind you, I'm in Canada, I believe...
Forum:
her2group
01-12-2016, 04:00 PM
Replies:
20
Yan Yan is in heaven
Views:
7,836
Posted By
annettchen
Re: Yan Yan is in heaven
I am so sorry. And so tired of this sickness. It's not fair.
I feel for her family.
Forum:
her2group
01-07-2016, 09:04 PM
Replies:
35
Working thread - what do you think the HER2+ standard of care should be really?
Views:
24,013
Posted By
annettchen
Re: Working thread - what do you think the HER2+ standard of care should be really?
Just a quick one re brain scans and lymph node involvement... I did not have cnfirmed lymph node involvement (the tisseu thatvwas taken out as sentinel turned out to not be a lymph node at all). It...
Forum:
her2group
01-06-2016, 02:30 PM
Replies:
14
PSA: Get your brain scanned
Views:
7,252
Posted By
annettchen
Re: PSA: Get your brain scanned
@agness
I may be able to affort treatment outside Canada, but within limitations. We're definitely not millionaires. And:
1. Given they seem to multiply every time we take a look, my...
Forum:
her2group
01-06-2016, 10:03 AM
Replies:
14
PSA: Get your brain scanned
Views:
7,252
Posted By
annettchen
Re: PSA: Get your brain scanned
I live in Canada - Toronto.
They transferred me to Sunnybrook (Dr. Sahgal) who is said to be a capacity in the field. He said he was going to do SRS up to 10 lesions. I was at 9 with the initial...
Forum:
her2group
01-05-2016, 06:09 PM
Replies:
14
PSA: Get your brain scanned
Views:
7,252
Posted By
annettchen
Re: PSA: Get your brain scanned
Agreed. I asked, begged and threatened - my onc did not give me a brain scan. So I went to my family doc, who is the gold star of doctors - and he did. They have found 15 brain mets (albeit small...
Forum:
her2group
12-15-2015, 02:36 PM
Replies:
15
The metastatic breast cancer alliance
Views:
8,302
Posted By
annettchen
Re: The metastatic breast cancer alliance
I'm in there as well - not sure they intended to have people from "north of the border", but I did fill in the form, and I'm "de novo"... It seems to make so much sense - to finally at least collect...
Forum:
her2group
12-14-2015, 09:41 PM
Replies:
12
Suspicion of many scattered brain mets
Views:
5,709
Posted By
annettchen
Re: Suspicion of many scattered brain mets
Hi Agness,
thank you. I live in Canada (GTA). A little bird told me that apparently 2 other women managed to get IT Herceptin in Toronto. That is what I will request from my onc on Wednesday, and...
Forum:
her2group
12-14-2015, 09:10 PM
Replies:
12
Suspicion of many scattered brain mets
Views:
5,709
Posted By
annettchen
Re: Suspicion of many scattered brain mets
Unfortunately no good news here. Brain mets confirmed. Two 5 mm ones in the cerebellum (still horseback riding, though, which I find kind of amazing), and apparently a scattering of "points that...
Forum:
her2group
12-13-2015, 10:21 PM
Replies:
42
Karen has moved on
Views:
29,635
Posted By
annettchen
Re: Karen has moved on
This is too sad. RIP Karen. I feel so bad for her family and friends. It is painful.
Annette
Forum:
her2group
12-12-2015, 05:54 PM
Replies:
4
SABCS Th3resa: TDM-1 improved overall survival4 heavilypretreated her2+ StageIVs
Views:
4,702
Posted By
annettchen
Re: SABCS Th3resa: TDM-1 improved overall survival4 heavilypretreated her2+ StageIVs
Interesting, thanks a lot Lani.
Forum:
her2group
12-09-2015, 07:47 PM
Replies:
12
Suspicion of many scattered brain mets
Views:
5,709
Posted By
annettchen
Suspicion of many scattered brain mets
Hi there,
Had a CT scan of the brain. They now sugegst a follow up MRI as the CT scan was "suggestive of many, small scattered brain mets". Trying to get the MRI scheduled ASAP to get clarity, but...
Forum:
her2group
12-03-2015, 07:24 PM
Replies:
389
Calling all stage iv sisters
Views:
166,436
Posted By
annettchen
Re: Calling all stage iv sisters
Hi Tracy,
so sorry you're back in this club... no one needs this. Not sure whetehr you heard back on your question elsewhere, but I had 6 cycles of Taxotere, Herceptin and Perjeta (at I believe 80%...
Forum:
Breast Cancer Newsfeed
11-20-2015, 07:05 PM
Replies:
4
Stop the damaging messages about advanced breast cancer and include us in your discus
Views:
3,859
Posted By
annettchen
Re: Stop the damaging messages about advanced breast cancer and include us in your di
Hallelujah!
Forum:
her2group
10-15-2015, 10:23 AM
Replies:
18
Saygoon is a Spirit
Views:
4,544
Posted By
annettchen
Re: Saygoon is a Spirit
So sorry to hear this. My condolences to her family.
I hate this disease.
Forum:
her2group
10-14-2015, 08:03 PM
Replies:
5
a cure for 90% of cancers??????????
Views:
3,751
Posted By
annettchen
Re: a cure for 90% of cancers??????????
Yes, it's yet another venue and sounds promising, thanks for posting, Lani. If you read thru what they're currently seeing with mice, it's not a cure, though. It seems to slow down and partially...
Forum:
her2group
09-29-2015, 09:44 AM
Replies:
5
breaking news from ASCO--new drug penetrates BBB , effectively combines w TDM1,is new
Views:
4,000
Posted By
annettchen
Re: breaking news from ASCO--new drug penetrates BBB , effectively combines w TDM1,is
Thanks Lani, this website and your posts specifically are always a source of hope!
Thank you so much for spending your time researching and sharing!
Forum:
her2group
08-07-2015, 08:09 PM
Replies:
389
Calling all stage iv sisters
Views:
166,436
Posted By
annettchen
Re: Calling all stage iv sisters
I guess I'm not really that long term yet, but here goes: I got scan results back today - there's still inactive scarring in my bones (T10/11), but otherwise, I got a clean scan - nothing in the...
Forum:
her2group
06-25-2015, 07:31 PM
Replies:
39
10 yrs brain mets - still NED ...
Views:
11,329
Posted By
annettchen
Re: 10 yrs brain mets - still NED ...
Thank you so much for sharing! It gives so much hope! Very, very happy for you!
Forum:
her2group
06-23-2015, 07:46 PM
Replies:
12
Feeling Blessed
Views:
4,143
Posted By
annettchen
Re: Feeling Blessed
I am very, very happy for you! Just keep going, day after day after day!
Forum:
her2group
06-14-2015, 03:36 PM
Replies:
3
Phase II MARIANNE trial results--T-DM1 treatment not superior to herceptin+taxane in
Views:
2,624
Posted By
annettchen
Re: Phase II MARIANNE trial results--T-DM1 treatment not superior to herceptin+taxane
But, you do not loose your hair and Taxanes (I had Docetaxel every three weeks) can be quite vicious in terms of side effects. So not sure if I'd had the choice I would not have opted for TDM-1. On...
Forum:
her2group
06-10-2015, 08:35 AM
Replies:
13
RedWolf/Penny Is In Hospice
Views:
4,292
Posted By
annettchen
Re: RedWolf/Penny Is In Hospice
Praying for peace and that her faith will carry her and her family. So sad.
Forum:
her2group
05-20-2015, 10:13 AM
Replies:
3
Anyone in Alberta, Canada?
Views:
2,495
Posted By
annettchen
Re: Anyone in Alberta, Canada?
I'm in Canada, but Toronto, so not close by. But I am member of a FB group especially for Canadians with MBC - he or she might want to join that group? I'm sure there's people from the Alberta area...
Showing results 1 to 25 of 85
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