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Showing results 1 to 25 of 105
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Posts Made By:
marvass
Forum:
her2group
12-13-2017, 01:28 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Thanks paul. You and Nina were always a great inspiration for us. I will always remain in this thread to help if i can. And Paul is the best in here on this.
Regards
Mario
Forum:
her2group
12-13-2017, 08:14 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Thanks everyone for your very kind posts.
I do not know what advances there was on this kind of cancer except that ONT-380 now called tucatinib is moving quickly in trials, and is very promising. ...
Forum:
her2group
02-04-2017, 04:25 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Carol passed away yesterday at 2pm gmt+1. Blood pressure fell till spo2 dropped and heart failed. She had an aspiration pneumonia that she could not cope with, mainly because of the taxol, causing...
Forum:
her2group
01-23-2017, 08:30 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
MRI of 2 weeks ago show that the three tumors have shrunk to half, showing that taxol and lapatinib is working. However she is having complications with blood parameters and is in hospital to be...
Forum:
her2group
12-31-2016, 01:08 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
intrathecal herceptin had no side effects even at a dose of 250mg. we did this over 100 times in the past 4.5 years
Forum:
her2group
11-17-2016, 01:34 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
They are deep brain, but she cannot do a gamma knife
Forum:
her2group
11-17-2016, 06:28 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Carol is still with mets
7 months ago she was locally irradiated for 3 mets measuring 12,12, and 7 mm. She continued doing IT herceptin at 250mg every 10 or 11 days till today.
In the first 3...
Forum:
her2group
03-11-2016, 10:50 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Yesterday we did the first IT herceptin at 200mg. All went well, no side effects.
Forum:
her2group
03-10-2016, 05:27 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Does anyone know if more than 150mg of IT herceptin per week was ever used, since my doctor wants to know, since carol's brain mets are not gone with 150mg IT per 10/11 days.
Forum:
her2group
09-25-2015, 11:37 AM
Replies:
5
breaking news from ASCO--new drug penetrates BBB , effectively combines w TDM1,is new
Views:
4,060
Posted By
marvass
Re: breaking news from ASCO--new drug penetrates BBB , effectively combines w TDM1,is
Thanks Lani we will hearr a lot on this
Forum:
her2group
09-25-2015, 11:16 AM
Replies:
8
Optimum Treatment After Resection of Brain Met
Views:
3,378
Posted By
marvass
Re: Optimum Treatment After Resection of Brain Met
IT herceptinmight be another option
Forum:
her2group
09-25-2015, 11:04 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Carol is still doing fine. She now gets the IT and IV treatment of herceptin every 3 weeks, 150mg IT with hydrocortisone, and 6mg per kilo IV. No new mets developed and older ones under control. Hope...
Forum:
her2group
06-10-2015, 10:34 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
MRI of yesterday:
All three spots gone and none new seen, thank God.
We have done 10 IT herceptin till now each of 150mg herceptin, and 50mg hydrocortisone, each shot every 10/11 days, i.e. 2...
Forum:
her2group
03-09-2015, 01:41 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
First intrathecal herceptin done last friday 6th March after 21 months without any such treatment.
Dose 150mg herceptin and 50mg hydrocortisone.
No pain or funny feelings. All went well, not...
Forum:
her2group
02-27-2015, 07:40 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Our oncologist seems to favour for IT herceptin at 150mg again as we did before before trying anything else. Now Carol weighs only 65 kg, so it is a very high dose, 2.3 mg/kilo.
Forum:
her2group
02-27-2015, 07:32 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
But has it already been tried intrathecally?
Forum:
her2group
02-26-2015, 10:17 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Thank you Paul, my oncologist in Europe is researching on best way to go, till next week and then we decide from there. Will tell him about the topotecan.
Forum:
her2group
02-26-2015, 09:58 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
MRI and CT of today - shock!
3 new lesions can be seen for the first time in over 2 years, 7mm, and 2 others of 4mm.
We have been on IV herceptin 6mg/kg for past 21 months. Now back to...
Forum:
her2group
09-08-2014, 03:09 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
If you are her2+ and herceptin is working in all your body except your brain, you may decide to get herceptin to your brain by intrathecal ways. But I am no expert in this. Maybe rolepaul can help...
Forum:
her2group
09-05-2014, 01:36 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Carol still doing fine. She started to walk again this summer. She has been off IT herceptin for last 16 months now. Last MRI and CT scan done in May showed she is still NED and stroke clearing...
Forum:
her2group
01-23-2014, 06:29 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
MRI of this week:
Carol is still NED even now that she is no longer doing IT herceptin for last 8 months.
Seems that damage done with the stroke has opened the BBB for IV herceptin to pass through....
Forum:
her2group
11-14-2013, 11:09 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Hi Kaiulani and Paul,
Carol is still doing great, now she can talk very well and she is standing at last, even though she had 3 strokes this summer.
From the experience with the mistakes we did...
Forum:
her2group
08-24-2013, 12:55 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Paul, you did local radiation before starting IT herceptin, we did not. On small tumors it worked but not on the 2cm edema. Otherwise IT herceptin cleared over 10 tumors of 7mm or less.
...
Forum:
her2group
08-19-2013, 01:13 PM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
My wife had a second stroke 5 weeks ago, but now recovery is going fast. She is close to start standing again. Understanding everything and communicating quite well.
Intrathecal herceptin is...
Forum:
her2group
07-12-2013, 01:54 AM
Replies:
235
Sticky:
Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)
Views:
231,707
Posted By
marvass
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase
Carol had a WBRT last month due to the edema she had which could not go away with the herceptin. She is now recovering from the stroke she had, rehab exercises everyday. Intrathecal is on hold but...
Showing results 1 to 25 of 105
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