HER2 Support Group Forums
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
Gallery
FAQ
Members List
Calendar
Today's Posts
Search
Search Forums
Show Threads
Show Posts
Advanced Search
Search Gallery
Advanced Search
Go to Page...
Page 1 of 8
1
2
3
>
Last
»
Showing results 1 to 25 of 185
Search took
0.02
seconds.
Search:
Posts Made By:
waterdreamer
Forum:
her2group
06-09-2017, 09:35 AM
Replies:
37
Good and Bad News
Views:
29,448
Posted By
waterdreamer
Re: Good and Bad News
Lani, thanks for sharing all that good information. Do you have access to recent ASCO articles? There is one that came out recently, which looks interesting;
Whole-Brain Radiation Therapy Versus...
Forum:
her2group
06-08-2017, 10:38 AM
Replies:
13
Did you have surgery w/o doing chemo?
Views:
9,159
Posted By
waterdreamer
Re: Did you have surgery w/o doing chemo?
Hi Vicki,
I did a double mastectomy, and then tried to use natural therapies and diet instead of chemo. I have been in a constant battle since being diagnosed Stage IV. If I was to do it over, I...
Forum:
her2group
06-05-2017, 04:45 PM
Replies:
37
Good and Bad News
Views:
29,448
Posted By
waterdreamer
Re: Good and Bad News
Michka, I was so worried about you. I did WBR with hippocampal sparing in July/ August 2017. The hippocampus is where the brain stem cells reside. Do they have any trials for ONT 380 in France. I...
Forum:
her2group
05-31-2017, 09:17 AM
Replies:
45
Port or No Port?
Views:
21,539
Posted By
waterdreamer
Re: Port or No Port?
I really hope that today went well for you. Navelbine is a push chemo. I have had two bouts with this drug. I pray it works for you.
Best wishes
Fern
Forum:
her2group
05-04-2017, 11:50 PM
Replies:
11
What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
Views:
13,415
Posted By
waterdreamer
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
Sorry for the late reply, I only just saw this. TDM-1 is Kadcyla, and it worked really well for me. I made the mistake of choosing to stop it, as it was drying out my body and I was tired of the...
Forum:
her2group
04-15-2017, 02:39 PM
Replies:
14
Surprise from my biopsy
Views:
6,551
Posted By
waterdreamer
Re: Surprise from my biopsy
I agree with Becky that for the hormonal aspect, Faslodex would be a good option.
Forum:
her2group
04-14-2017, 12:02 PM
Replies:
11
What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
Views:
13,415
Posted By
waterdreamer
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
I am in California. I tried Keytruda and it was very unhelpful. Kadcyla worked well until I added Perjeta.
I think they are about to start Phase III of the trial, but I am not sure where it is...
Forum:
her2group
04-14-2017, 11:20 AM
Replies:
14
Surprise from my biopsy
Views:
6,551
Posted By
waterdreamer
Re: Surprise from my biopsy
Hi Amy,
My original tumor was also slightly PR+. Trials are showing that Kadcyla and Neratinib are a really good combination. Hopefully, Neratinib will be approved by mid 2017. I am getting it on...
Forum:
her2group
04-13-2017, 12:08 PM
Replies:
11
What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
Views:
13,415
Posted By
waterdreamer
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
TDM-1 worked very well for me in 2011, I stopped it in 2013. I was tired of all the scans, which are required on a clinical trial. It did not work the second time I tried it, but I was taking it...
Forum:
her2group
04-11-2017, 04:38 PM
Replies:
11
What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
Views:
13,415
Posted By
waterdreamer
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?
I am on Neratinib. So far, it has been miraculous. Hopefully, it will be approved soon.
Fern
Forum:
her2group
02-18-2017, 10:41 PM
Replies:
9
"significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given after
Views:
9,606
Posted By
waterdreamer
Re: "significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given afte
Neratanib has been a miracle drug for me. I am on it alone and it has changed my life. My doctor was going to put me on hospice prior to taking this drug. I was on O2 24/7 and my CEA was 967. ...
Forum:
her2group
02-08-2017, 10:13 PM
Replies:
9
Any information on these trials would be helpful
Views:
9,023
Posted By
waterdreamer
Re: Any information on these trials would be helpful
I am Her2+ and I tried Keytruda, it resulted in multiple brain lesions. I had to do whole brain radiation. My brain is now clear. I am on Neratinib, under compassionate use. It is proving to be a...
Forum:
her2group
01-24-2017, 10:12 PM
Replies:
45
Port or No Port?
Views:
21,539
Posted By
waterdreamer
Re: Port or No Port?
I knew I had an infection, because I had a fever, a rash and generalized edema. I felt terrible.
Forum:
her2group
01-23-2017, 01:49 PM
Replies:
45
Port or No Port?
Views:
21,539
Posted By
waterdreamer
Re: Port or No Port?
I got a port when I first went on Navelbine, back in 2103. The port stayed until it got infected and I ended up in hospital to treat the infection and have it removed. I have not replaced it. ...
Forum:
Clinical Trials
01-21-2017, 05:50 PM
Replies:
6
Has anyone been on Neratinib?
Views:
18,515
Posted By
waterdreamer
Re: Has anyone been on Neratinib?
In a miraculous way. Over a 17 day period my CEA dropped from 859 to 518. Highest CEA was 978 and I was not doing too well.
Forum:
Clinical Trials
01-20-2017, 07:52 PM
Replies:
6
Has anyone been on Neratinib?
Views:
18,515
Posted By
waterdreamer
Has anyone been on Neratinib?
I am currently taking this TKI and it has been life changing. Has anyone else been on it?
Forum:
Clinical Trials
12-12-2016, 07:03 PM
Replies:
5
Update to Tucatinib/ONT380 phase 2 trial
Views:
15,568
Posted By
waterdreamer
Re: Update to Tucatinib/ONT380 phase 2 trial
Looks great, something to add to our options. Thanks for the update.
Forum:
her2group
12-05-2016, 07:31 PM
Replies:
11
immunotherapy- dangerous side effects
Views:
5,518
Posted By
waterdreamer
Re: immunotherapy- dangerous side effects
I tried Keytruda and Kadcyla and I ended up with over 40 brain mets. I had to do WBR with hippocampal sparing. I really feel like the Keytruda messed up my body, and now I am battling lung and...
Forum:
her2group
10-28-2016, 01:08 PM
Replies:
28
Local treatment in lungs?
Views:
15,037
Posted By
waterdreamer
Re: Local treatment in lungs?
Thank you to all my wonderful Her2 sisters. I completed the 15 rounds of WBR and my latest MRI is clear (happy dance). My liver mets are stable. My right lung and now left too, just can't seem to...
Forum:
her2group
07-30-2016, 06:21 PM
Replies:
28
Local treatment in lungs?
Views:
15,037
Posted By
waterdreamer
Re: Local treatment in lungs?
Hi Amy,
I too have mets in my right lung and am considering SBRT. I am currently doing WBRT as I discovered that I have around 40 brain mets, none bigger than 1cm. I just finished 5 days of...
Forum:
her2group
07-07-2016, 01:51 PM
Replies:
3
Headaches
Views:
4,961
Posted By
waterdreamer
Re: Headaches
Hi Colleen,
Headaches make it so hard to function, I am sorry that you are experiencing this on a daily basis. Please make sure that you get a brain MRI as soon as possible, to rule out any brain...
Forum:
her2group
06-29-2016, 12:56 PM
Replies:
8
Kadcyla and Keytruda Information and side effects
Views:
9,401
Posted By
waterdreamer
Re: Kadcyla and Keytruda Information and side effects
Here is my update on Kadcyla and Keytruda combined. After 4 cycles, there is progression in my lungs, as well as numerous brain mets, not visualized 3 months prior. So it seems this combo was not a...
Forum:
her2group
06-17-2016, 07:01 PM
Replies:
22
Happy News!
Views:
8,948
Posted By
waterdreamer
Re: Happy News!
Congratulations!! Wonderful news. Wishing you a very relaxing, happy weekend.
Forum:
her2group
06-12-2016, 06:52 PM
Replies:
10
Our sister yanyan is no longer on this earth
Views:
8,305
Posted By
waterdreamer
Re: Our sister yanyan is no longer on this earth
At the end Yanyan did an infusion of Opdivo (which she and her husband had to pay for). Her oncologist also put her on Doxirubican, she died during her first cycle. She left her young daughter...
Forum:
her2group
06-05-2016, 06:07 PM
Replies:
4
ASCO: breakthrough finding in her2+ breast cancer--preventing resistance to antibody
Views:
4,857
Posted By
waterdreamer
Re: ASCO: breakthrough finding in her2+ breast cancer--preventing resistance to anti
Very exciting news!! We are learning more and more about Her2+ cancer all the time. For those of us who are metastatic - the closer we get to a cure, the better. Thank you for sharing this.
Showing results 1 to 25 of 185
Page 1 of 8
1
2
3
>
Last
»
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
her2group
Herceptin / Tykerb
Caregivers Corner
Diet and Nutrition
Inflammatory Breast Cancer
Keeping Your Mind Off of BC
Profiles In Courage
My Healthcare Team
Clinical Trials
Articles of Interest
Events and Social Calendar
Breast Cancer Meeting Highlights
General Cancer News
Breast Cancer News
Breast Cancer Newsfeed
All times are GMT -7. The time now is
09:21 PM
.