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Posts Made By:
rinaina
Forum:
her2group
04-05-2017, 09:49 PM
Replies:
36
Add me to the 10 Years Out Club!
Views:
21,037
Posted By
rinaina
Re: Add me to the 10 Years Out Club!
Mazel Tov Caya. I also hit 10yrs last April 2017. So thankful for this support group, for joe and Christine, for herceptin and for my Drs. My oncologist just said that while I'm always welcome to see...
Forum:
her2group
08-20-2016, 05:42 PM
Replies:
3
Thank you
Views:
4,456
Posted By
rinaina
Thank you
I want to thank all who remembered my birthday it's a special one for many reasons. A few are I'm now a 10 yr survivor. I'm also now 65 and have joined the Medicare club! Yippee, saving a lot on...
Forum:
her2group
04-06-2016, 12:06 AM
Replies:
3
Been a while, been very busy medically
Views:
4,739
Posted By
rinaina
Been a while, been very busy medically
Not even sure where to begin but I will try and bring you up to date as to why I've been absent for quite a while other then a few peeks here and there.
My history is rich with medical issues ever...
Forum:
her2group
04-05-2016, 11:44 PM
Replies:
10
Remembering Our Sister Sheila on her 64th birthday
Views:
5,351
Posted By
rinaina
Re: Remembering Our Sister Sheila on her 64th birthday
Most definitely witll do in your mom, Sheila's memory. I had the pleasure of meeting her for lunch and enjoyed our friendship. She was a wonderful woman.
Forum:
her2group
01-19-2016, 06:45 PM
Replies:
12
Radiation repercussions almost 10 years later
Views:
5,892
Posted By
rinaina
Re: Radiation repercussions almost 10 years later
Agness,
What is craniosacrral therapy and why would I need it and also DO?
Forum:
her2group
01-19-2016, 04:18 PM
Replies:
12
Radiation repercussions almost 10 years later
Views:
5,892
Posted By
rinaina
Re: Radiation repercussions almost 10 years later
Thanks Sarah for your reply. Sorry to hear that you have dealt also with the serious ramifications of radiation. It's so frustrating that we do what we are suppose to and yet years later we have...
Forum:
her2group
01-18-2016, 07:57 PM
Replies:
12
Radiation repercussions almost 10 years later
Views:
5,892
Posted By
rinaina
Radiation repercussions almost 10 years later
September 17 I was hospitalized following an ER visit due to heart symptoms. I have good blood pressure and no previous heart history. I do have Sjogrens Syndrome, an auto-immune disease.
My...
Forum:
her2group
02-15-2015, 11:31 AM
Replies:
12
8yrs later I am gearing up for double Mastectomy
Views:
4,312
Posted By
rinaina
Re: 8yrs later I am gearing up for double Mastectomy
Thank you for all the replies and support. It feels so good to have so many caring sisters during this most difficult and unfortunate times in my life. I haven't been coping well and with each set...
Forum:
her2group
02-13-2015, 11:37 PM
Replies:
12
8yrs later I am gearing up for double Mastectomy
Views:
4,312
Posted By
rinaina
Re: 8yrs later I am gearing up for double Mastectomy
Thanks Bonnie for sharing your experience with me. I am glad you have found a comfortable place for yourself. At this point I feel I must try to fix this but not until I am completely healed. One...
Forum:
her2group
01-11-2015, 11:11 PM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
Re: failed reconstruction following prophylactic mastectomy
Well I had radiation to the right breast but the mastectomy removed the radiated tissue as did the debridement of the necrotic tissue after reconstruction, so now that breast still has some wound...
Forum:
her2group
01-11-2015, 05:03 PM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
Re: failed reconstruction following prophylactic mastectomy
Thank you everyone for the replies. I too am so afraid for the future surgeries I will face to give me breasts. The left needs a lift and a reduction following an unsuccessful diep flap that left me...
Forum:
her2group
01-02-2015, 02:07 PM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
Re: failed reconstruction following prophylactic mastectomy
Even if you've had a double mastectomy?
Forum:
her2group
01-02-2015, 01:03 PM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
Re: failed reconstruction following prophylactic mastectomy
Do you have to wait that long, until September? I thought my PS said a few months healing then the flap from shoulder blade then healing a few months then try expander which could take a few months...
Forum:
her2group
01-02-2015, 12:59 PM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
Re: failed reconstruction following prophylactic mastectomy
Good luck to you. I hope we both have success with our future surgeries and expanders and implants. It would be nice to look symmetrical.
Forum:
her2group
12-28-2014, 12:48 AM
Replies:
21
failed reconstruction following prophylactic mastectomy
Views:
6,913
Posted By
rinaina
failed reconstruction following prophylactic mastectomy
Anyone else experience failed diep following double mastectomy? Had surgery on 10/17/14 and a little over a week later found myself back in the OR for deriding of necrotic tissue and lost all of the...
Forum:
her2group
12-28-2014, 12:35 AM
Replies:
12
8yrs later I am gearing up for double Mastectomy
Views:
4,312
Posted By
rinaina
Re: 8yrs later I am gearing up for double Mastectomy
On 10/17/14 I underwent a double mastectomy with immediate reconstruction using the diep flap skin and nipple sparing surgery. It failed and about a week later I was back in the OR for debridement...
Forum:
her2group
10-07-2014, 08:18 PM
Replies:
14
CAYA gets to eat chocolate!
Views:
2,928
Posted By
rinaina
Re: CAYA gets to eat chocolate!
Happy belated birthday to Caya. Many more happy, healthy NED years.
Forum:
her2group
10-07-2014, 08:15 PM
Replies:
12
8yrs later I am gearing up for double Mastectomy
Views:
4,312
Posted By
rinaina
8yrs later I am gearing up for double Mastectomy
It has been 8 1/2 years since my Her2 + diagnosis. I always looked back and questioned if I should have had a mastectomy. Due to the damage from radiation to my cancer breast and the fact that for...
Forum:
her2group
07-14-2014, 06:07 PM
Replies:
8
Reflecting and sad
Views:
4,031
Posted By
rinaina
Reflecting and sad
As I celebrate being fortunate enough to be cancer free for an amazing 8 years, I am so sad to think of all the wonderful angels we have lost over that short period of time. For quite a while I had...
Forum:
her2group
07-14-2014, 05:56 PM
Replies:
23
Pre-Melanoma Mole
Views:
5,870
Posted By
rinaina
Re: Pre-Melanoma Mole
A few years ago I had basal cell carcinoma on the side of the bridge of my nose and had to have Mohl surgery. All is fine but I was told most skin cancers can be attributed to the sun exposer from...
Forum:
her2group
02-16-2014, 01:15 PM
Replies:
16
Our Sweet Sheila
Views:
4,654
Posted By
rinaina
Re: Our Sweet Sheila
I think of Sheila so often and am so honored to have been able to meet her, only once, but that was all anyone needed to know what an amazing, strong, caring woman she was. She lived to support so...
Forum:
her2group
09-25-2013, 10:07 PM
Replies:
2
Sheila
Views:
1,630
Posted By
rinaina
Re: Sheila
Shocking, I am so stupid. As sick as Sheila was and for how long of a fight she gave, I just never thought her final day would come. I had the privaledge of having lunch with her and talked to her...
Forum:
her2group
09-22-2013, 02:59 PM
Replies:
98
Sheila has earned her wings
Views:
15,822
Posted By
rinaina
Re: Sheila has earned her wings
Jen, let me first extend my condolences to you and the entire family and say how sorry I am for your loss. I will never forget how kind, thoughtful and caring your mother was. She was one of the...
Forum:
her2group
09-22-2013, 09:04 AM
Replies:
2
Sheila
Views:
1,630
Posted By
rinaina
Sheila
Did I miss something about our beloved her2 sister Sheila? Is she okay?
Forum:
her2group
09-15-2013, 12:53 PM
Replies:
16
Caya's Birthday! Mmm Chocolate!!
Views:
2,428
Posted By
rinaina
Re: Caya's Birthday! Mmm Chocolate!!
Wishing you a wonderful and happy birthday. May all your wishes come true.
Showing results 1 to 25 of 500
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