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Showing results 1 to 23 of 23
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Posts Made By:
rondo
Forum:
her2group
12-01-2014, 03:01 PM
Replies:
5
Vision / off balance when looking up
Views:
2,587
Posted By
rondo
Re: Vision / off balance when looking up
Sorry I just found this post. sounds like a vestibular problem. The nausea and visual problems are part of it, but it affectcs balance as well. I developed similar symptoms during chemo and they...
Forum:
Profiles In Courage
06-17-2014, 01:59 PM
Replies:
64
How many years NED? Give others hope
Views:
85,284
Posted By
rondo
Re: How many years NED? Give others hope
6 years. I intend to live forever. So far, so good!,:-)
Forum:
Breast Cancer Meeting Highlights
08-22-2013, 02:21 PM
Replies:
3
Efficacy of scalp cryotherapy in preventing alopecia among patients with breast cance
Views:
8,468
Posted By
rondo
Re: Efficacy of scalp cryotherapy in preventing alopecia among patients with breast c
It worked for me!!!!
Forum:
her2group
03-18-2013, 02:26 PM
Replies:
17
Need advice - warning - not pretty
Views:
3,450
Posted By
rondo
Re: Need advice - warning - not pretty
Are you sure its cramps and not acid reflux? I had a huge problem with this on taxotere. My onc put me on proton pump inhibitors for 10 days of each cycle. Worked wonders. Also Emend, if you are on...
Forum:
Herceptin / Tykerb
03-10-2013, 03:17 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
308,431
Posted By
rondo
Re: Please post your two cents on Herceptin "side effects" real or perceived!
I'm sorry you are having such severe symptoms but glad to hear about your NED status. I
Definitely experienced increasing fatigue from the Herceptin during the year I was on it as well as some other...
Forum:
her2group
09-06-2011, 01:15 PM
Replies:
9
Vaginal Estriol Cream
Views:
6,801
Posted By
rondo
Re: Vaginal Estriol Cream
ESTRIOL vaginal cream is not the same as ESTRADIOL cream. Estriol can be obtained with your doctor's Rx from a compounding pharmacy. The standard warnings are attached to all estrogen products...
Forum:
her2group
02-15-2011, 03:17 PM
Replies:
5
for those newly diagnosed--STANDARD of care about to change-old dogma being discarded
Views:
2,345
Posted By
rondo
Re: for those newly diagnosed--STANDARD of care about to change-old dogma being disca
I was so encouraged by this study as I agonized over my decision not to have ALND after they found micromets in the sentinel node. My surgeon has been very supportive throughout the whole thing. My...
Forum:
her2group
02-15-2011, 03:04 PM
Replies:
1
Possible start of lymphodema ??
Views:
1,132
Posted By
rondo
Re: Possible start of lymphodema ??
Kristen,
GET THEE TO A PHYSICAL THERAPIST pronto who specializes in lymphedema treatment. Ask your oncologist for a referral. Don't delay because the earlier treatment is started the better the...
Forum:
her2group
02-15-2011, 02:54 PM
Replies:
19
Taxotere Carboplatin Herceptin Side Effects
Views:
15,506
Posted By
rondo
Re: Taxotere Carboplatin Herceptin Side Effects
Yogi,
Get a port! Also, you can wear specially made gel-filled frozen gloves and socks just during the taxotere portion of your infusions to prevent peeling, painful hands, feet and nails called...
Forum:
her2group
08-13-2010, 01:50 PM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,628
Posted By
rondo
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Look into radiofrequency ablation for solitary liver mets-it is relatively non-invasive and quite effective
Forum:
her2group
02-15-2010, 02:59 PM
Replies:
7
Magnesium...loose stools?
Views:
2,238
Posted By
rondo
Re: Magnesium...loose stools?
Typically recommended ratio of calcium to magnesium is 2:1; but everyone is different as far as their tolerance. Magnesium oxide (cheapest and easiest to find ) definitely causes the runs. Try...
Forum:
her2group
02-15-2010, 02:45 PM
Replies:
10
HER2 Serum Test
Views:
1,416
Posted By
rondo
Re: HER2 Serum Test
Sorry-dumb question-there's a Her-2 serum test????
Is it used to monitor for recurrence or only for more advanced cases? Sorry to ask this question here- I am having trouble with this site since its...
Forum:
her2group
11-16-2009, 03:21 PM
Replies:
8
testosterone - CAN IT HELP?
Views:
3,115
Posted By
rondo
Re: testosterone - CAN IT HELP?
I have found that testosterone cream is the ONLY thing that helped with libido. It is still working for me after several years. It works a lot better if you don't use it daily. I use it 5 days on ...
Forum:
her2group
10-23-2009, 01:34 PM
Replies:
24
Who else has a Power Port?
Views:
3,323
Posted By
rondo
Re: Who else has a Power Port?
I had a brain MRI with my right sided power port in place. They made a big deal about it at the imaging center because it is metallic but eventually decided it was OK, which I already knew since I...
Forum:
Articles of Interest
10-23-2009, 01:10 PM
Replies:
6
Cardiovascular Risk Greater Than Breast Cancer Recurrence Risk in Some Patients
Views:
2,255
Posted By
rondo
Re: Cardiovascular Risk Greater Than Breast Cancer Recurrence Risk in Some Patients
Thanks for posting. Another reason to be glad I refused those drugs. I thought the Herceptin and left breast radiation effects were enough to worry about.
Forum:
her2group
09-14-2009, 01:50 PM
Replies:
2
Herceptin and wound issues ??
Views:
1,182
Posted By
rondo
Re: Herceptin and wound issues ??
Jamieh,
I did have some problems with recurrent wounds on my fingers in areas of repeated trauma; they recurred after every herceptin treatment. The one surgery I had during herceptin healed, but...
Forum:
Herceptin / Tykerb
05-12-2009, 12:32 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
308,431
Posted By
rondo
See signature for history; currently on q 3 wk...
See signature for history; currently on q 3 wk herceptin only. 3 treatments to go, I think. Have night lower leg/foot cramps, getting worse, although calcium/magnesium supplements do help a lot....
Forum:
her2group
03-06-2009, 02:50 PM
Replies:
22
Sugar and cancer....
Views:
4,161
Posted By
rondo
Even if reducing sugar intake doesn't help with...
Even if reducing sugar intake doesn't help with the cancer, I sure feel a LOT better and I lost 25 lbs. since cutting way back on the refined sugar.That alone makes it worth it!
Forum:
her2group
03-02-2009, 03:26 PM
Replies:
12
for those considering using or using estrogen containing vaginal creams or pills
Views:
2,875
Posted By
rondo
Jackie, Premarin cream contains horse estrogens...
Jackie,
Premarin cream contains horse estrogens which include estrone (E1), one of the estrogens that stimulate breast tissue. Estrace and some others contain estradiol (E2), which can also...
Forum:
her2group
03-02-2009, 03:08 PM
Replies:
14
Chemo Brain
Views:
2,761
Posted By
rondo
Janice, You have my sympathy regarding the...
Janice,
You have my sympathy regarding the chemobrain. If you are interested in a nutritional-supplement approach to this problem, here is what I did and continue to do: fish oil 1200 mg caps, 5...
Forum:
her2group
03-02-2009, 02:39 PM
Replies:
11
Tests
Views:
2,350
Posted By
rondo
Sorry, Joe, What the heck is MUGA? Couldn't...
Sorry, Joe,
What the heck is MUGA? Couldn't find it in the abbreviations list.
Forum:
her2group
02-06-2009, 03:00 PM
Replies:
8
Zofran & constipation :(
Views:
2,401
Posted By
rondo
Magnesium worked great for me too. it also helps...
Magnesium worked great for me too. it also helps with the leg cramps.
Forum:
her2group
02-06-2009, 02:46 PM
Replies:
37
Herceptin & Hair Loss
Views:
4,634
Posted By
rondo
Laurel, Revitalash contains parabens. It's...
Laurel,
Revitalash contains parabens. It's probably a relatively small exposure due to the tiny amount of mascara applied compared to, for example, a skin lotion. Still, some people recommend...
Showing results 1 to 23 of 23
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