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Posts Made By:
SunDiego
Forum:
her2group
01-19-2012, 09:18 AM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
It's been a while since I've last posted an update... but not for any other reason than life has returned to a level of normalcy.
My wife's last 13 months of scans, including a PET/CT, bone scan...
Forum:
her2group
04-01-2011, 10:40 AM
Replies:
13
Cea increase??
Views:
3,589
Posted By
SunDiego
Re: Cea increase??
"I will be fine."
Forum:
her2group
02-09-2011, 12:08 PM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Hi everyone, sorry for no recent updates, but returned to the office today after being out for the last few days doing updated scans... GREAT NEWS!
First PET/CT Aug 5
SUV 10.8
Size 3.7 x 3.2...
Forum:
her2group
11-30-2010, 04:05 PM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
No radiation current in the plans. Thinking we may want to avoid Xeloda/Tykerb since it seems the only recruiting TDM-1 trial excludes those who have previously used Xel/Tyk. Would be a shame to...
Forum:
her2group
11-30-2010, 11:37 AM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Just a quick update on my wife's tumor marker improvements (CA 15-3)
1003 as of 8/3/2010 (first reading pre-first chemo)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/29
25.3...
Forum:
her2group
11-04-2010, 11:26 AM
Replies:
8
Constant all over body pain (m)...
Views:
1,940
Posted By
SunDiego
Re: Constant all over body pain (m)...
Didn't see it listed anywhere, so perhaps talk with your Onc about whether a biophosphonate (Zometa) might be good for you. I'd also demand a bone scan to check for mets. Even another PET/CT. It...
Forum:
her2group
11-04-2010, 11:15 AM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Just a quick update...
CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/2
It's amazing to see this tumor marker go from over 1000 to under...
Forum:
her2group
10-29-2010, 01:40 PM
Replies:
18
I could really use some input
Views:
2,439
Posted By
SunDiego
Re: I could really use some input
Be sure to get the PET/CT if you haven't already done it. CT alone isn't sufficient. You need a PET to see if there is any metabolic activity. Wouldn't hurt to also get a bone scan and brain MRI just...
Forum:
her2group
10-29-2010, 10:17 AM
Replies:
18
I could really use some input
Views:
2,439
Posted By
SunDiego
Re: I could really use some input
DeenaH, I wish I could tell you that a score of 0 on the CTC means NED, however I do not believe this to be true. My wife has had two CTC tests done, both of which have come back at 0, however she...
Forum:
her2group
10-28-2010, 01:48 PM
Replies:
18
I could really use some input
Views:
2,439
Posted By
SunDiego
Re: I could really use some input
My wife had the good fortune of being seen by Dr. Slamon this week. For those interested in seeing him, he does not take new oncology patients, but is willing to see patients for consultative...
Forum:
her2group
10-20-2010, 03:16 PM
Replies:
10
HER2 Serum Test
Views:
2,398
Posted By
SunDiego
Re: HER2 Serum Test
Thanks for sharing.
Forum:
her2group
10-15-2010, 12:50 PM
Replies:
10
HER2 Serum Test
Views:
2,398
Posted By
SunDiego
Re: HER2 Serum Test
wanted to bring this topic up again for discussion. My wife (Stage IV, single liver met), had this test done 10/11 and the result came back with 5.9 (which seems to fall at the very low end of...
Forum:
her2group
10-14-2010, 12:37 PM
Replies:
3
keep on trying...different regimens even beyond third line for Stage IV have effect!
Views:
1,704
Posted By
SunDiego
Re: keep on trying...different regimens even beyond third line for Stage IV have effe
Prolonging First-Line Chemotherapy Improves Outcomes for Patients With Metastatic Breast Cancer, Meta-Analysis Shows
http://www.sciencedaily.com/releases/2010/10/101012101845.htm
Forum:
her2group
10-14-2010, 12:33 PM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Wife just completed 4th of 6 TCH treatment. Ran tumor marker tests on the day of treatment and it dropped nearly 70% in the last month.
CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30...
Forum:
her2group
09-16-2010, 11:18 AM
Replies:
7
Best imaging method for dx mets?
Views:
9,437
Posted By
SunDiego
Re: Best imaging method for dx mets?
MRI with contrast and PET/CT as Rich said.
Forum:
her2group
09-16-2010, 11:09 AM
Replies:
9
Circulating Cell Recurrance test
Views:
1,778
Posted By
SunDiego
Re: Circulating Cell Recurrance test
Wife had initial dx at Stage IV with a single liver met. Did the CTC before first chemo treatment last month and score was a 0. Unsure how to interpret that given the metastasis.
Forum:
her2group
09-16-2010, 11:03 AM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Just wanted to give a quick update. My wife did a follow up PET/CT yesterday. First TCH was done on Aug 9, a second on Aug 30, and third will be on Monday. The numbers related to the isolated liver...
Forum:
her2group
09-01-2010, 12:27 PM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Wife's second TCH was Monday... Tumor Marker CA 15-3 was redone and dropped from 1003 to ~550 (still seems awefully high, but Onc was thrilled). Full healthy thick head of hair still (those on TCH,...
Forum:
her2group
08-27-2010, 10:37 AM
Replies:
32
Genentech receives FDA Refuse to File Letter for T-DM1
Views:
3,847
Posted By
SunDiego
Re: Genentech receives FDA Refuse to File Letter for T-DM1
This makes me sick.
http://www.google.com/hostednews/ap/article/ALeqM5gMPe52K71ikVsV_T-WR5Ef0fBFFwD9HRUKQG0
Here is the key sentence in the release: "In its review of the BLA, the FDA stated...
Forum:
her2group
08-23-2010, 08:18 AM
Replies:
41
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Views:
24,184
Posted By
SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???
Question all... my wife just started TCH two weeks ago (1 of 6 completed). Been reading a lot about Tykerb as well and think it could be a good addition to the treatment. Is that possible?
Can one...
Forum:
her2group
08-21-2010, 10:22 PM
Replies:
8
brain mri
Views:
1,496
Posted By
SunDiego
Re: brain mri
delete message
Forum:
her2group
08-20-2010, 12:44 PM
Replies:
53
Pet Scan for Stage 1?
Views:
7,847
Posted By
SunDiego
Re: Pet Scan for Stage 1?
initial Her2+++ was 7.4 on FISH
Liver path just came in:
Metastatic adenocarcinoma c/w breast primary
ER is positive in 80% of tumor cells.
PR is negative.
Her2/neu is positive (3+,...
Forum:
her2group
08-20-2010, 10:48 AM
Replies:
53
Pet Scan for Stage 1?
Views:
7,847
Posted By
SunDiego
Re: Pet Scan for Stage 1?
Rich, here is the full initial path & background (excluding all the liver stuff which changes it).
http://her2support.org/vbulletin/showthread.php?p=232164#post232164
Thanks for those...
Forum:
her2group
08-20-2010, 10:24 AM
Replies:
53
Pet Scan for Stage 1?
Views:
7,847
Posted By
SunDiego
Re: Pet Scan for Stage 1?
No PET scan before surgery - but MRI w/ Mammograms. Ironically the initial MRI showed the liver mass in passing, which led to two additional MRIs with contrast. Despite that they did not request the...
Forum:
her2group
08-20-2010, 09:59 AM
Replies:
53
Pet Scan for Stage 1?
Views:
7,847
Posted By
SunDiego
Re: Pet Scan for Stage 1?
My wife had a lumpectomy (7mm IDC with 0/13). Doctors locally staged her at 1b. We didn't like the direction the care was going locally, so we went to another med onc who requested full restaging....
Showing results 1 to 25 of 31
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