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Posts Made By:
koolmom
Forum:
Keeping Your Mind Off of BC
05-15-2009, 12:29 AM
Replies:
2,096
SCRABBLE anyone?
Views:
293,384
Posted By
koolmom
flow ----- flew
flow ----- flew
Forum:
her2group
04-10-2009, 11:41 AM
Replies:
6
Disability
Views:
1,619
Posted By
koolmom
Oh yeah...found my log-in!
Found log in
Forum:
her2group
04-10-2009, 11:41 AM
Replies:
6
Disability
Views:
1,619
Posted By
koolmom
Thank you for the info
I see a lot of you have also had lung mets. I'm getting really stressed about this. Sometimes I feel like I am short of breath, but in all reality, I think it is anxiety. I don't think the two...
Forum:
her2group
01-13-2009, 11:43 AM
Replies:
17
I could use a few good thoughts
Views:
1,729
Posted By
koolmom
Good Thoughts and Prayers
Just remember, most aches and pains are not cancer related. Of course, our mind tells us it is. So anytime those scary thoughts come in to your mind, just replace it with a positive one....it's...
Forum:
her2group
01-09-2009, 07:07 AM
Replies:
29
10 year anniversary
Views:
3,228
Posted By
koolmom
Inspiration
You are an inspiration to us all. We all will continue to put one foot in front of the other. Just like the "footprints" poem, if you get weaek and you only see one set of footprints, it will be us...
Forum:
her2group
01-09-2009, 06:57 AM
Replies:
21
? Lung Mets
Views:
2,395
Posted By
koolmom
Update
Okay - Saw the doctor yesterday. She still did not say 100% these were lung mets (however, the report did say suspicious for metastatic disease). They are too tiny to even be seen on a PET. She...
Forum:
her2group
01-09-2009, 06:51 AM
Replies:
21
? Lung Mets
Views:
2,395
Posted By
koolmom
Mary Anne Where do I get CO-Q 10?
Mary Anne
Where do I get CO-Q 10?
Forum:
her2group
01-06-2009, 09:53 PM
Replies:
21
? Lung Mets
Views:
2,395
Posted By
koolmom
Keep the good news coming
Couldn't wait to get home to see if I had had any encouraging messages and of course I did. Thanks you guys.
'
I have an appointment Thursday to go over results. I'll know more then. Currently...
Forum:
her2group
01-06-2009, 02:14 PM
Replies:
21
? Lung Mets
Views:
2,395
Posted By
koolmom
? Lung Mets
I could really use some encouragment from you girls. Just found out that I may have 2 lung mets. 1 6 mm and 1 7 mm. Want to know what you girls have been through, what you have tried and what...
Forum:
Herceptin / Tykerb
11-11-2008, 02:26 PM
Replies:
9
Herceptin/Navelbine
Views:
2,400
Posted By
koolmom
I only have one daughter - she is turning 18...
I only have one daughter - she is turning 18 tomorrow. My prayer was to get her through highschool (which I have almost done). My next prayer is to get her through college.
What area do you...
Forum:
Herceptin / Tykerb
11-11-2008, 09:42 AM
Replies:
9
Herceptin/Navelbine
Views:
2,400
Posted By
koolmom
Posting profile
D.W. I clicked on User CP, but I don't see box to post my history. I must have a dumb streak going on today!
Forum:
Herceptin / Tykerb
11-11-2008, 09:39 AM
Replies:
9
Herceptin/Navelbine
Views:
2,400
Posted By
koolmom
Thanks
D.W. Thanks for the info. I was dx in March 2004 w/7 nodes positive. Did the AC/Taxol/Cytoxin. (Before Herceptin was released). 32 rad treatments. Next year had cervical nodes positive/took out...
Forum:
Herceptin / Tykerb
11-11-2008, 07:29 AM
Replies:
9
Herceptin/Navelbine
Views:
2,400
Posted By
koolmom
D.W. I'm glad to have someone to talk to about...
D.W.
I'm glad to have someone to talk to about this. I was so bummed about having to go off Tykerb/Xeloda. It was so easy! I also seem to get nauseated after my Herceptin/Navelbine. By Sunday...
Forum:
Herceptin / Tykerb
11-10-2008, 10:33 AM
Replies:
9
Herceptin/Navelbine
Views:
2,400
Posted By
koolmom
Herceptin/Navelbine
Wanted to pick your guys brains. I have been on this combination about 2 1/2 years ago and did fine. I was then on Tykerb/Xeloda, but have recently been taken off and put back on...
Forum:
her2group
10-13-2008, 08:34 AM
Replies:
2
Hilum Lymph Nodes
Views:
1,381
Posted By
koolmom
Hilum Lymph Nodes
Just wondering...My recent PET showed increased activity on the hilum lymph node and a vascular lymph node. I had 7 positive lymph nodes initially (axillary), then 5 nodes positive cervical region. ...
Forum:
Herceptin / Tykerb
10-13-2008, 08:20 AM
Replies:
2
is it odd for tykerb se's to increase?
Views:
1,550
Posted By
koolmom
I have been on Tykerb/Xeloda for 18 months. I...
I have been on Tykerb/Xeloda for 18 months. I always had worse diarreha when not on the Xeloda for the week. Symtpoms came and went. Some days were not bad and then some days I had pretty bad...
Forum:
Herceptin / Tykerb
03-03-2008, 05:44 PM
Replies:
6
Interesting info about Xeloda
Views:
2,330
Posted By
koolmom
My oncologist said if you lacked the enzyme the...
My oncologist said if you lacked the enzyme the diarrhea would be so bad you could end up in the hospital. She said you would know within a week of taking the drug. So side effects, even if think...
Forum:
Herceptin / Tykerb
01-15-2008, 02:32 PM
Replies:
15
tykerb results
Views:
2,405
Posted By
koolmom
Yeah! Great news! Horray to Tykerb/Xeloda!
Yeah! Great news! Horray to Tykerb/Xeloda!
Forum:
Herceptin / Tykerb
01-15-2008, 02:29 PM
Replies:
4
Joanna S - Tykerb success story
Views:
2,019
Posted By
koolmom
Congrats to her. Hope it works as well for me!
Congrats to her. Hope it works as well for me!
Forum:
her2group
06-27-2007, 07:36 PM
Replies:
6
Xeloda/Tykerb and Hairloss?
Views:
1,459
Posted By
koolmom
Xeloda/Tykerb and Hairloss?
I posted a couple of weeks ago and thanks for the great responses regarding my scalp being very sore. Now my hair is starting to comeout. It is not as severe as with the first chemo, but it is more...
Forum:
Herceptin / Tykerb
06-13-2007, 05:39 AM
Replies:
9
Xeloda/Tykerb Scalp Sore
Views:
2,832
Posted By
koolmom
Thank you for response
Thanks for your responses! Glad to know I'm not the only one. I did call my oncologist and asked them regarding this. Symptoms of scalp soreness along with weird headaches, they wanted me to get...
Forum:
Herceptin / Tykerb
06-11-2007, 06:33 AM
Replies:
9
Xeloda/Tykerb Scalp Sore
Views:
2,832
Posted By
koolmom
Xeloda/Tykerb Scalp Sore
Okay this is weird, may not be related to these drugs at all, but I thought i would see if anyone else was having this problem. My scalp is really really sore. It seems to be more on the top of...
Forum:
Herceptin / Tykerb
05-06-2007, 07:04 PM
Replies:
27
Tykerb Cares Program
Views:
5,362
Posted By
koolmom
Esther, I just posted on another board but...
Esther,
I just posted on another board but I have having the same rash on my face. Have you found anything that worked yet? My cheeks are all splotchy and I have little blisters that I thought...
Forum:
Herceptin / Tykerb
05-06-2007, 06:57 PM
Replies:
9
Tykerb Update
Views:
3,057
Posted By
koolmom
I'm new to the board, but wanted to say...
I'm new to the board, but wanted to say CONGRATTTTSSSS!!!! I feel like I have a new family.
Forum:
Herceptin / Tykerb
05-06-2007, 06:53 PM
Replies:
30
Best time to take tykerb
Views:
6,210
Posted By
koolmom
Okay, something else weird is happening. Of...
Okay, something else weird is happening. Of course, I attribute everything to the meds. I look like a 37 year old teenager. My face has started breaking out all over my cheeks. Just in the past 2...
Showing results 1 to 25 of 30
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