HER2 Support Group Forums
>
Search Forums
Search Results
User Name
Remember Me?
Password
Register
Gallery
FAQ
Members List
Calendar
Today's Posts
Search
Search Forums
Show Threads
Show Posts
Advanced Search
Search Gallery
Advanced Search
Go to Page...
Page 1 of 3
1
2
3
>
Showing results 1 to 25 of 66
Search took
0.01
seconds.
Search:
Posts Made By:
Karen t
Forum:
Herceptin / Tykerb
12-12-2009, 01:18 PM
Replies:
39
herceptin + tykerb (no xeloda)
Views:
16,758
Posted By
Karen t
Re: herceptin + tykerb (no xeloda)
Hi Darlene - are you still on the Herceptin/Tykerb combo, and how are you doing? I looked online at Suki products and didn't realize there are so many although none is called "oil." What is the...
Forum:
Herceptin / Tykerb
12-06-2009, 01:16 PM
Replies:
11
What Targeted Therapy after Herceptin and Tykerb fail?
Views:
6,495
Posted By
Karen t
Re: What Targeted Therapy after Herceptin and Tykerb fail?
I have been on Herceptin since July 2004 so, yes, it is safe to combine. My period of stable disease occurred after taking Artemisinin for three months - it was a big deal since it was the first time...
Forum:
Herceptin / Tykerb
12-05-2009, 05:07 PM
Replies:
11
What Targeted Therapy after Herceptin and Tykerb fail?
Views:
6,495
Posted By
Karen t
Re: What Targeted Therapy after Herceptin and Tykerb fail?
Have you considered Artemisinin? I did the protocol for three months and experienced stable disease for the first time in over four years; after nine months, I am experiencing progression and am...
Forum:
her2group
07-09-2007, 06:36 PM
Replies:
40
Oncs trivialize side effects: the 2 big ones
Views:
7,646
Posted By
Karen t
Estring
Not sure if this could work for you since you are hormone positive, but a friend of mine who is also HRPR+ (and also either BRCA 1 or 2) was given a prescription for Estring and has been using it for...
Forum:
Herceptin / Tykerb
04-17-2007, 05:54 PM
Replies:
182
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
29,124
Posted By
Karen t
Hello Skye, I have been on Herceptin for...
Hello Skye,
I have been on Herceptin for nearly three years and have lots of annoying symptoms but perhaps not the ones you mentioned. More things like runny and crusty nose, splitting nails, some...
Forum:
Herceptin / Tykerb
04-17-2007, 05:54 PM
Replies:
689
Please post your two cents on Herceptin "side effects" real or perceived!
Views:
308,446
Posted By
Karen t
Hello Skye, I have been on Herceptin for...
Hello Skye,
I have been on Herceptin for nearly three years and have lots of annoying symptoms but perhaps not the ones you mentioned. More things like runny and crusty nose, splitting nails, some...
Forum:
her2group
04-02-2007, 09:05 PM
Replies:
6
Tykerb/Xeloda - Diarrhea
Views:
1,286
Posted By
Karen t
Xeloda, Herceptin & Diarrhea!
Several comments here! First of all, I am on Herceptin and 2500mg Xeloda (down from 3000 which was too hard for my system). Also:
1. Herceptin causes diarrhea for me right after the infusion. I...
Forum:
her2group
03-29-2007, 10:09 PM
Replies:
32
Not so good news for me.....
Views:
3,449
Posted By
Karen t
Esther, you are in my prayers. Karen
Esther, you are in my prayers. Karen
Forum:
her2group
02-18-2007, 09:48 AM
Replies:
70
My Sweet Angel is Gone
Views:
8,251
Posted By
Karen t
Dear Tom, I am so sorry for your loss. And,...
Dear Tom,
I am so sorry for your loss. And, even in the midst of your sorrow, you thought about others – reassuring us that the "Beast' was not the cause of your loss. I look forward to hearing...
Forum:
her2group
12-21-2006, 11:59 PM
Replies:
6
Anyone on Xeloda+Herceptin?
Views:
1,628
Posted By
Karen t
I am on Herceptin and Xeloda - started one month...
I am on Herceptin and Xeloda - started one month ago: weekly H and two weeks on, one week off for the X. In Spring of 2002 had four rounds of AC. After the metastasis in July 2004, started on...
Forum:
her2group
12-19-2006, 09:09 PM
Replies:
18
My Opinion of the Biggest Highlights of SABCS
Views:
3,279
Posted By
Karen t
Avastin
Thank you Becky. Am looking forward to learning more about Avastin possibilities.
Forum:
her2group
12-18-2006, 05:57 PM
Replies:
14
***8PM EST Prayer for Lisa and Mel***
Views:
1,397
Posted By
Karen t
Prayer
It's three minutes to eight (five in California). Will do!
Forum:
her2group
12-11-2006, 09:30 PM
Replies:
30
Prayers for PattyH
Views:
2,875
Posted By
Karen t
Bud, I went back and read all of Patty's posts....
Bud, I went back and read all of Patty's posts. What a journey for her - and for you. Both of you will be in my continuous prayers. Karen
Forum:
her2group
10-16-2006, 08:59 PM
Replies:
3
Resistance to Navelbine
Views:
1,415
Posted By
Karen t
Resistance to Navelbine
Have there been some previous posts about stopping a particular chemo, e.g. Navelbine, when it loses effectiveness and then resuming it successfully after a certain time has elapsed? If so, please...
Forum:
her2group
10-16-2006, 08:51 PM
Replies:
18
Need some advice, input
Views:
2,657
Posted By
Karen t
Dear Kelly, Based on nearly five years of...
Dear Kelly,
Based on nearly five years of experience, it seems to me that staying positive - especially when one doesn't feel well - is just too great an expectation. This is not to say that it's...
Forum:
her2group
10-16-2006, 08:22 PM
Replies:
45
I'm leaving on a jet plane...
Views:
4,582
Posted By
Karen t
Dear Maryann, Dogs kids ceiling fans and...
Dear Maryann,
Dogs kids ceiling fans and your online friends all await your good news and safe return home. Love and prayers to you.
Karen t
Forum:
her2group
10-01-2006, 04:51 PM
Replies:
27
Bone mets to only one site and no other signs of mets?
Views:
3,654
Posted By
Karen t
CT vs MRI
I had mets to the lungs and on the sternum. Followed up with Navelbine and radiation. Am on wkly Herceptin.
My question is, when should the diagnostic tool be a CT vs an MRI? I told my onc I...
Forum:
her2group
10-01-2006, 04:28 PM
Replies:
15
ASCO - Report of Activities
Views:
2,552
Posted By
Karen t
To Joe & Christine
Although it may seem that we sometimes take for granted everything that you do, nothing could be further from the truth. Some days I feel like my survival is tied to this site so a big THANK YOU for...
Forum:
her2group
10-01-2006, 04:19 PM
Replies:
7
lymphedema
Views:
1,440
Posted By
Karen t
I wear a sleeve (Jobst brand available in stores...
I wear a sleeve (Jobst brand available in stores or online) whenever I travel by air, go to higher altitudes (mountains), while exercising or doing repetitive types of housework or yardwork. I also...
Forum:
her2group
09-18-2006, 09:56 PM
Replies:
11
for those whose cancers have become resistant to chemotherapies...
Views:
2,228
Posted By
Karen t
I ordered the Super Curcumin from LifeExtension...
I ordered the Super Curcumin from LifeExtension and when I received it the warning on the bottle says: Do not take with anticancer drugs. Since I'm on Herceptin and Navelbine, I didn't know what to...
Forum:
her2group
09-02-2006, 11:34 PM
Replies:
29
wanting opinions
Views:
3,379
Posted By
Karen t
Dear Michele, A happy belated 20th...
Dear Michele,
A happy belated 20th anniversary to you. You are not alone - we care about you.
Not sure if this is an option but I asked the oncology social worker at the hospital to help me...
Forum:
her2group
08-14-2006, 04:34 PM
Replies:
2
Virxcan or Essiac
Views:
3,073
Posted By
Karen t
Virxcan or Essiac
Does anyone have information on these alternative-type treatments for tumors? I was told that virxcan tablets will dissolve tumors and can be used in conjunction with chemo. When I googled virxcan,...
Forum:
her2group
08-05-2006, 10:10 PM
Replies:
5
What's Next?
Views:
1,288
Posted By
Karen t
Hi Kathy A, I was on weekly Herceptin and...
Hi Kathy A,
I was on weekly Herceptin and Navelbine for 6 mos, took a break, and have been back on weekly H & N now continuously for a year. The only time I notice any pain, e.g. in the area of...
Forum:
her2group
07-31-2006, 01:14 PM
Replies:
13
Alcohol consumption
Views:
2,738
Posted By
Karen t
Alcohol consumption
My understanding is that alcohol is not recommended for those of us with metastases - not sure why. Does anyone have more definitive information? Meanwhile, I am including an article in today's LA...
Forum:
her2group
07-28-2006, 05:21 PM
Replies:
53
Poll:
Age at Diagnosis
Views:
8,867
Posted By
Karen t
I was 55 when diagnosed in 2002. During weekly...
I was 55 when diagnosed in 2002. During weekly infusion a couple weeks ago, I met a woman who is her2+ (don't see very many of us) who said she felt a lump two months after a clear mammogram. Turns...
Showing results 1 to 25 of 66
Page 1 of 3
1
2
3
>
Forum Jump
User Control Panel
Private Messages
Subscriptions
Who's Online
Search Forums
Forums Home
her2group
Herceptin / Tykerb
Caregivers Corner
Diet and Nutrition
Inflammatory Breast Cancer
Keeping Your Mind Off of BC
Profiles In Courage
My Healthcare Team
Clinical Trials
Articles of Interest
Events and Social Calendar
Breast Cancer Meeting Highlights
General Cancer News
Breast Cancer News
Breast Cancer Newsfeed
All times are GMT -7. The time now is
10:48 PM
.