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Posts Made By:
DeenaH
Forum:
her2group
01-18-2013, 07:54 AM
Replies:
13
C-diff
Views:
3,252
Posted By
DeenaH
Re: C-diff
I know, poop enimas from healthy people! So gross, but I might do it if the antibiotics don't work.
Forum:
her2group
01-18-2013, 06:36 AM
Replies:
13
C-diff
Views:
3,252
Posted By
DeenaH
C-diff
I am in the hospital and diagnosed with CDiff and pneumonia. I am pretty sure I contracted it after lung surgery 1 1/2 years ago, but the tests kept coming back negative back the. I have had issues...
Forum:
her2group
12-27-2012, 09:09 AM
Replies:
23
Starting WBR for brain metz
Views:
2,712
Posted By
DeenaH
Re: Starting WBR for brain metz
I'm praying too! I am also right there in the boat with you. I was dx with brain mets 2 weeks ago. Did gamma knife last week, but what had been 4 tiny tumors turned to be more than 10, so I...
Forum:
her2group
12-06-2012, 05:38 PM
Replies:
18
Scans this Friday - please pray
Views:
1,713
Posted By
DeenaH
Re: Scans this Friday - please pray
Praying for good results!!
Forum:
her2group
11-30-2012, 11:44 PM
Replies:
18
Major regression for the first time in over a year!
Views:
1,940
Posted By
DeenaH
Major regression for the first time in over a year!
It really is a miracle that this happened. I have a team of doctors (3 oncologists, 2 cardiologists, a pulmonologist and an integrative MD), and several of them really thought I was dying about 2...
Forum:
her2group
11-19-2012, 01:38 PM
Replies:
19
Parenthood
Views:
3,239
Posted By
DeenaH
Re: Parenthood
I think they are doing a great job. And some people do get that sick from chemo. I was during A/C and T/H. No anti nausea meds worked for me, so I was incapacitated for the majority of 6 months. ...
Forum:
her2group
11-06-2012, 10:54 PM
Replies:
7
Dramatic increase in survival (7x longer) when combine antiangiogenic 2 two antiher2
Views:
1,750
Posted By
DeenaH
Re: Dramatic increase in survival (7x longer) when combine antiangiogenic 2 two antih
Just g saw my doctor and had treatment today. He said I am getting better and better. He said by thanksgiving I should be feeling like a normal person! I didn't know that was possible after how...
Forum:
her2group
11-04-2012, 10:26 PM
Replies:
15
Abraxane VS Taxotere ?
Views:
3,295
Posted By
DeenaH
Re: Abraxane VS Taxotere ?
Taxotere was very difficult for me. I am on abraxane now, and it is the easiest chemo I have done so far. I did lose my hair again, but aside from that I just have a headache and slight nausea. ...
Forum:
her2group
11-02-2012, 10:00 PM
Replies:
7
Dramatic increase in survival (7x longer) when combine antiangiogenic 2 two antiher2
Views:
1,750
Posted By
DeenaH
Re: Dramatic increase in survival (7x longer) when combine antiangiogenic 2 two antih
This is very interesting. I don't have brain mets, but a month ago I was on the brink of death due to lymphangetic spread and micro tumor emboli along with dehydration. My doctor didn't think I had...
Forum:
her2group
10-24-2012, 12:03 AM
Replies:
26
Pl help:Failed perjetA, now TDM1?
Views:
4,002
Posted By
DeenaH
Re: Pl help:Failed perjetA, now TDM1?
My combo of abraxane, avastin, herceptin and tykerb has taken me from the brink of death to new hope for some more of my future. I was on o2 24/7 just a week ago. Now I am only using it as needed. ...
Forum:
her2group
10-21-2012, 08:12 PM
Replies:
9
This may explain why so many younger women are being dx.
Views:
1,657
Posted By
DeenaH
Re: This may explain why so many younger women are being dx.
I took Clomid to boost my progesterone levels for a total of 4 cycles. I have 2 kids as a result. I have always wondered if Clomid payed a role in my breast cancer. When I was first diagnosed, I...
Forum:
her2group
09-05-2012, 03:13 PM
Replies:
28
Evidence Mounts on Heart Failure After Trastuzumab in Breast Cancer Survivors
Views:
5,287
Posted By
DeenaH
Re: Evidence Mounts on Heart Failure After Trastuzumab in Breast Cancer Survivors
I have been on herceptin for 2 years now, and have had a cardiologist on board for a year. I get MUGAs every 3 months, and check my triponins every 6 weeks. So far my EF has stayed between 64-72%...
Forum:
her2group
08-23-2012, 08:43 PM
Replies:
8
Tumor markers are going down after 2 cycles of perjeta/herceptin/tykerb!
Views:
1,872
Posted By
DeenaH
Tumor markers are going down after 2 cycles of perjeta/herceptin/tykerb!
My markers were at 76.9 5 weeks ago (ca 27-29), 96.9 2 weeks ago, and this week they are down to 79.3! This is the first decrease in this marker since they started going up for the first time 9...
Forum:
her2group
08-23-2012, 08:38 PM
Replies:
41
Adding Carboplatin to Perjeta and Herceptin
Views:
8,376
Posted By
DeenaH
Re: Adding Carboplatin to Perjeta and Herceptin
Some shrinkage is good!! I'm hoping you get even more shrinkage by your next scan. How often are the scanning you? I think about you all the time. Hang in there!
Forum:
her2group
08-08-2012, 06:31 PM
Replies:
20
Denied compassionate use of TDM1
Views:
3,999
Posted By
DeenaH
Re: Denied compassionate use of TDM1
Nancy - not Rugo, although I do see melisko at UCSF. Right now I am being treated by Garrett smith. He was our courtney's onc. I met him at her memorial service. He has met with the highers up at...
Forum:
her2group
08-08-2012, 01:13 PM
Replies:
20
Denied compassionate use of TDM1
Views:
3,999
Posted By
DeenaH
Re: Denied compassionate use of TDM1
I'm sorry you didn't get compassionate use Amanda. I will never understand why they deny stage IV patients access. fYI though, TDM1 is going to be approved September 15th. That could be why they...
Forum:
her2group
07-21-2012, 03:24 PM
Replies:
2
FDA approves mTor inhibitor afinitor (everolimus) for breast cancer
Views:
1,653
Posted By
DeenaH
Re: FDA approves mTor inhibitor afinitor (everolimus) for breast cancer
It's about time! It was working on my cancer, but the side effects were completely intolerable.
Forum:
her2group
07-17-2012, 05:52 PM
Replies:
14
Perjeta #2 with Herceptin
Views:
3,589
Posted By
DeenaH
Re: Perjeta #2 with Herceptin
I just jumped on the perjeta train today too! Infused with Herceptin. I will be adding in tykerb next week. They want to be careful about GI issues. Have you had any? My lower bowels already...
Forum:
her2group
06-11-2012, 08:18 AM
Replies:
28
Pertuzumab: Today's The Day
Views:
5,151
Posted By
DeenaH
Re: Pertuzumab: Today's The Day
I didnt get the whole story, but I was told by an oncologist friend (not my onc) that there was a gag order regarding the approval of pertuzumab. Not sure on who (media maybe?). Supposedly they are...
Forum:
her2group
06-10-2012, 08:16 AM
Replies:
15
Courtney's Celebration of Life!
Views:
2,547
Posted By
DeenaH
Re: Courtney's Celebration of Life!
I was there too. It truly was an amazing day, and you could feel the love everyone had for Courtney.
Kim - I don't know about you, but I cried more than my 10% quota. She was just such a light...
Forum:
her2group
06-08-2012, 09:24 PM
Replies:
28
Pertuzumab: Today's The Day
Views:
5,151
Posted By
DeenaH
Re: Pertuzumab: Today's The Day
Ditto Vicki.
Forum:
her2group
06-06-2012, 09:30 AM
Replies:
34
!!! Pertuzumab may be approved by FDA as early as Friday !!!!
Views:
4,811
Posted By
DeenaH
Re: !!! Pertuzumab may be approved by FDA as early as Friday !!!!
Finally! I'm just hoping insurance companies will approve it without chemo.
Forum:
her2group
05-25-2012, 03:48 PM
Replies:
7
another important player in her2 story IDd--role in herceptin resistance
Views:
3,319
Posted By
DeenaH
Re: another important player in her2 story IDd--role in herceptin resistance
Thank you for always posting these articles Lani! I find it hard for my chemo brain to understand them a lot of the time though.
In laymen's terms, what does this mean? I thought there were...
Forum:
her2group
05-24-2012, 05:31 PM
Replies:
2
Everolimus (Affinitor) and white count
Views:
1,719
Posted By
DeenaH
Re: Everolimus (Affinitor) and white count
I just had my first labs since starting Afinitor yesterday, but haven't picked up the results yet. I haven't heard that it really effects the whites for most. I have heard about a huge drop in...
Forum:
her2group
05-17-2012, 09:30 PM
Replies:
5
Afinitor/Herceptin/Tykerb
Views:
1,680
Posted By
DeenaH
Re: Afinitor/Herceptin/Tykerb
There are trials, but nothing close to me. I think you may also have to take chemo with it, and you can't take Tykerb (which I refuse to give up).
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